Posted , 5 users are following.
I was diagnosed with crohns in 1999 and have had various treatments over the years with several flares and periods of remission. The crohns has been in a flare for 3+ years now with no sign of remission. In this time I’ve tried steroids, methotrexate, Humira and most recently infliximab. None have worked and my recent mri scan shows things are getting worse -stricture getting bigger, fistula not healed etc. My consultant thinks it’s now time to speak to a surgeon and told me to prepare that I may end up with a stoma. Having been so ill for so long I’m trying to embrace the idea of surgery in the hope it may give me some relief. I wondered if anyone could share their experiences with having surgery? Was it as bad as you thought? Has it improved your day to day life? Would you have preferred to carry on trying medication rather than the surgery? I’d be interested to hear others views. Thank you.
1 like, 8 replies