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I have just been diagnosed with LS but I suspect I have had it for s few years. I am in pain constantly from the burning, itching and tearing. I have seen two proctologistd, my GP
and a dermatologist. I was told by someone or the internet that there Is a surgery or plastic surgery to fix this. I am 71 and soooooo frustrated. What can I take for pain. I am seeing s gynecologist on Wednesday. I haven't been able to work.
Thanks for listening
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What Jane said is great advice! Also you can add a couple pinches of baking soda to the rinse, I use that every single trip to the bathroom.
I also take ibuprofen when it’s too much to bear for pain. Takes the edge off.
I’ve been using clobetasol from dr. But also SO important to use coconut oil or olive oil and or aloe gel.
There is a post here about aloe gel and turmeric essential oil that I’m about to try - it’s helped a gal on here miraculously!! (I’m waiting on mine to get here via online order).
Some things that have helped others that you can search the group for -
EmuAid (both are anti-inflammation)
Nappy (baby) cream like diaper rash
Taking supplements- Vit D3, magnesium...
Massaging the area (when tolerable) when you use moisturizer and prescribed cream
Glad you’re here. There is a wealth of info and support!!
I’m in the throes too, you’re not alone!
Hope it eases up for you soon. ❤️
H Marilyn- I was diagnosed 33 days ago -my inner labia were covered in ulcers, my clit was twice its size and too painful to wear pants, peeing was like flaming gasoline. I was in terrible pain and crying everytime I gad to use the bathroom. The good news is within 8 days the itch stopped, 10 days pain was gone abd arou d 14 days all ulcers were completely healed. I used Emuaid and Emuaid Maxx (ordered on Amazon), used a moisture barrier with Vit A, D, E after each pee, cut back on sugar, wheat, alcohol and ate low oxalate diet. Incorporated more vitamin supplements to try and balance my body ( thx Nancy KB) and took baths with baking soda when i needed to calm things down below.
There is no “ surgical cure”, this is a disease we will hv for the rest of our lives, but it can be controlled. The surgeries mentioned online are primarily to help release labial fusing with the use of steroid Clob, and to reshape vaginal and anal openings that have been impeded by build- up of scar tissue. You can’t “ cut LS away”, it is deep in our dermis and is our own T- cells attacking our own body.
Some foreign articles are talking about use of direct untraviolet light, injections of plasma- rich platelets into vag tissue and the use of adipose fat injections as alternative treatments, but again no “ cure. “
We are here for you, there is a ton of useful info on this sight to help you and don’t despair! ??
I feel for you. If I needed surgery ask so many questions. They don't know enough about to start cutting you up. Try Aveeno bath made of oatmeal you need to get it calm down. Warm water ,no wiping . wash cloths . Try the virgin olive oil. Going to be hard but get stress level down. May need something for that. Your skin is very agitated. Will pray for you.
maybe we all should start calling ourselves the Vagina Dialogues!
You can google Lichen Sclerosus Specialists in your area. I live on the east coast near Annapolis, and found a Gyn that specializes, and a Dermatologist that specializes, and they talk to one another, and have come up with a plan for me that works! Hopefully you can also find a Specialist..
Be careful with surgery....LS can Not be eradicated.....there is a reputable group in Washington DC to consult if necessary...a Dr. Goldstein, I think!
Things Will get better....BELIEVE!
Hi Marilyn, I'm 72 and I know how you feel and there is some great advice here. I am trying practically everything mentioned and it really does work. It's about finding what works best for you. We all react differently. Diet also plays a part in this so we hve to be mindful of working from the inside out as well too.
Until you get the Clobestol or other steriod ointment from your doctor, someone just told me to use Witch Hazel for the itching. So I bought that tonight.
You may gather from the posts here, we know more than the doctors about treatment. It's a great support group here and we will get you through this.
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