Surgery x 3
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I had the endo Sac decompression done in 2013 and it helped with the vertigo, a little with balance and only lost 3% of my hearing prior to the surgery. Starting in April I noticed I was started to have more and more vertigo. Calling into work frequently. I had my yearly check up in July and received a decametasone injection in my ear that worked about a month for the vertigo. My hearing test showed no change. Then I was having a major Menieres flare and had another hearing test done which showed in less than a month I lost an additional 10% hearing loss. Was sent back to the specialist I wanted the nerve cut, I don’t care if I have no hearing in that ear only to be told no because I’m showing signs it is going in my other ear. I had the 2nd Sac decompression and had a csf leak. Which was closed and dried, discharged home after a day. I had severe pain, nausea, vomiting. I was told to go to the nearest ER. They were treating me for meningitis cause my spinal tap showed WBC in it. I was in the hospital for 5 days. Started having gel oooze from my incision and was transferred back to the hospital that performed the surgery. I had to have s craniotomy, they cleaned the infection out. I was told the CSF leak was still closed and dried. I was in for 5 days again. Since being home, I’ve had a lot of pain but what is killing me is the spasms in my ear. I can’t stand it. Headaches are horrible. I can’t think, can’t get my words out right, no appetite, no balance and I’m having vertigo again. Anyone else go through this. I just want to get back to work and life but I feel it may be a loss.
0 likes, 14 replies
JMJ Willow4
Posted
Dear Willow,
I'm so very sorry to hear your story. What terrible experiences you've been through. Since you're having headaches and can't get your words out right, I think you should find a way to get back to the emergency room. It doesn't sound like you should be thinking about getting back to work at this point. Are you in the U.S.?
Take good care,
J-
Willow4 JMJ
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JMJ Willow4
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So happy to hear that you'll be seeing someone soon. Let us know how it goes!
Take good care,
J-
david2salsero Willow4
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I’m sorry to hear about your MM experience. I’m sure after what you’ve been through, it would seem hopeless. Hang in there though and keep us posted. We all suffer in various degrees, but at least I know I’m not alone. Cheers and God bless.
Willow4
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christina91807 Willow4
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Willow4 christina91807
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christina91807 Willow4
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JMJ Willow4
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Dear Willow,
I want to wish you well. I know you must be worried. And elevated WBC typically means there's an infection brewing somewhere. I hope your surgeon has some immediate answers for you! So sorry you're suffering.
Let us know how you're doing.
Take good care,
J-
Willow4 JMJ
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Willow4 christina91807
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JMJ Willow4
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Dear Willow,
It's very upsetting when 2 doctors give opposite advice! Makes you want to tell one to call the other and come up with an agreed upon treatment plan! I hope you feel much better soon.
Take good care,
J-
david2salsero Willow4
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Willow4 david2salsero
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