Susan32767
Posted , 5 users are following.
Hello everyone. I am 58 years old and I've been suffering from PMR for three years. I started off on 10 mg predict but I'm now on 3mg. My symptoms are up and down. I've been ok on 3mg for ages and now I am experiencing slight pain in my neck, shoulders, head and top of my legs. I also get a sore throat with it. Does anyone else experience that. My doctor doesn't really get that bit. I'm also really tired again at the moment. Fatigue all through my body. Can't motivate myself at all.
2 likes, 14 replies
EileenH susan32767
Posted
It sounds as if you are at the very least having a flare of your PMR and the symptoms you describe COULD possibly be suggesting more than just PMR, leg pain, head pain and sore throat are mentioned as GCA symptoms.
susan32767 EileenH
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The head pain is more like a spongy head but sometimes I get tender spots on my scalp. Do you know what I mean by spongy head, sounds daft I know but I think this whole condition is daft and no-one understands it. I think people think you are putting it on when you tell them that when symptoms are at their worst you can hardly move.
MrsO-UK_Surrey susan32767
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bri21 susan32767
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EileenH bri21
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susan32767 bri21
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been to doc to have more bloods done. Can't get in for two weeks then can't get to see doc until ten days later. I have wrist and hand pain too sometimes, on the inside of my wrist and on Palm of my hands. Does anyone else get that. I've also developed tendonitis at the back of my heels. Is that related to PMR does anyone know?
tina-uk_cwall susan32767
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tina-uk_cwall susan32767
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one thing I will say is I understand that the 3 mgs stage is a bugger to get past and if you're experiencing these pains under no circumstances taper further. If you have been stuck on 3 mgs for ages that's telling you that the inflamation is still hanging around but hang on in there and as I said definitely do not taper further. All the best, christina
oh yes, sometimes I get a sore throat that amounts to nothing. I've personally never worried much about it.
by the way what has your Dr suggested, has he been inclined to up your preds one level or not?
susan32767 tina-uk_cwall
Posted
im due back in two months for more blood tests. I went last month but they were up but I had a bacterial lung infection and he said they could have been slightly raised because of that. Will have to go back and have more done cos definitely something has changed again
EileenH susan32767
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tina-uk_cwall susan32767
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EileenH tina-uk_cwall
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MrsO-UK_Surrey susan32767
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Also, if you are someone who had raised blood test markers at diagnosis, then these should be repeated and might also give some answers.
If you haven't had a Vit D blood test, then do ask for one as any deficiency can lead to pain similar to that of PMR.
As for your doctor "not getting that bit" about the sore throat, he has probably rarely, if ever, treated anyone with GCA - patients do present with different symptoms.
susan32767 MrsO-UK_Surrey
Posted
i need to go back to seethe doctor, I think you get to a stage sometimes where you think you can just carry on and it will get better again but hey ho not always the case.