Suspected chiari malformation ? Is that mri csf indicate acm ?

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Hello . 

I have a question about mri csf flow , i will attach a link to the video , i would apreciate if anybody would tell me if that mri csf would indicate arnold chiari malformation ? 

I am confused since last neurologist said that it's probably not acm because of too low 

cerebellum hernitation , but all my symptoms are getting worse , to name few of them : balance problems , poor memory and concentration , field of vision that is somewhat worse than few months ago, neck stiffness.  I have my next apointment in about 2 months , so that's why if anybody could help me and tell me if that mri csf flow indicate arnold chiari malformation i would be gratefull . 

Link to youtube video with csf mri sequence .

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  • Posted

    Chiari 0 is now recognized, and proves that it is not necessarily the length of the herniation that causes the symptoms and most definitively cause CSF blockage. This is not your get 2nd or 3rd or more opinions from different neurologists, and then some neurosurgeons.  Quickly.  My wife and I visited no less than 7 neurosurgeons and 5 neurologists during my initial journey with Chiari.  Of those 12 professionals, 10 were not able to recognize most of what was actually shown on my MRI's or were not trained enough to act upon what they saw.  Two of the professionals saw and explained everything that was medically happening in my case, and one was able to competently act.  I had decompression surgery, which does help some, but most have symptoms come back because it does not get rid of the cause - a tight spinal cord pulling down on the hindbrain.  Thus cutting a hole in the back of the skull does make more room for CSF flow, but it is dangerous and painful and has a long recovery period.  Research tethered cord, specifically Tight Filum Terminal Dissectum, as performed by three US surgeons: Dr. Heffez, Dr. F. Henderson and Dr. Bolognese.  Also done by Dr. Salvador in Spain.  This surgery got me out of bed after 2-1/2 years and is only a 45 minute procedure.  My brain surgery was 5 hours of trauma.  DO YOUR RESEARCH and do not take the word of just one medical professional...your life is more important than that.  See as many professionals as possible, do your homework and don't think that brain surgery is the only option.  God Bless

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  • Posted

    ...Additionally, most MRI's in the US are done lying down.  You need an upright MRI done to adequately provide a CSF flow analysis, and then make sure a Chiari neurosurgeon specialist is your doctor of choice, not just a staff neurosurgeon.  You want the best of the best - you are worth every penny. AND, please remember you need to be your own advocate and educate yourself as much as possible.  Chiari surgery is usually "elective" per most neurosurgeons and insurance companies.  Why?  Because in the US the current medical mindset is that there is no cure for Chiari.  Well, again do the research on Tight Filum Terminal Dissectum surgery.  A sleep test showed that I had central apnea because of my Chiari herniation so bad that I stopped breathing a minute at a time all night long.  A neurologist still said it was not Chiari and that is was "anxiety"; as did a neurosurgeon  Wow, my wife and I could not believe how limited the understanding was in the medical community, even with my sleep report in their hands!.  So, after brain surgery, still had the central apnea.  But after the Filum surgery, it was gone in about 3 months, because the CAUSE was removed/released.  Dr. Bolognese did follow up MRI's on hundreds of patients, showing an upward migration of the Chiari herniation of an average of 3.5 mm after the Tight Filum surgery.  So Chiari 0 is measured as this in theory should help you.  Ask/Seek/Knock...I did and I am back to raising my children and serving others.  So again, see multiple professionals, do your homework quickly, and never give up.

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