Suspected endometriosis
Posted , 7 users are following.
Hi guys. Just wanted to share my story of what I've been going through and hopefully get some advice because I feel very confused/angry at the moment. I'm 20 years old, I got my first period at 11 and have had problems since day one. I was prescribed microgynon 30 at age 14 to help my periods which I generally got every 2 weeks and lasted up to 14 days. The pain was unbearable and my life felt like hell because of this. The pill subsided things a bit for a year or two and then slowly the full blown pain and other symptoms returned. Apart from this I have developed various other symptoms over time such as frequent urinary tract infections and severe pain all month round. I basically have been dismissed for 9 years because of my age and basically it's just a "bad period" and I need to get over it. I currently take a combination of mefenamic acid and 15/500mg co codomol to try and control the pain. I finally found an understanding GP who suspected endometriosis and referred me to gynae which took a further six months. I had the apointment on Tuesday and I felt like it was a total diaaster. They were again very dismissive and told me that "some people just get pain for no reason" and that I'm so young and have plenty of time because I'm not currently trying to conceive. The doctor said my womb looked very inflamed and had "raw sore looking areas" ?! Which I found slightly alarming but apparently this wasn't an issue.. She also said that she suspects endometriosis but frankly didn't really seem to care and advised me to get the depo provera injection which I have heard nothing but horror stories about and I'm extremely anxious about getting it but I was basically told on the day that if I don't try it they won't help me further. I've switched to different pills a few times to try and control things but every time has been a disaster and made things worse. I feel even more confused & upset than I did before I went! Just really need some advice on what further steps to take. Sorry for the extremely long post. Thanks x
0 likes, 12 replies
marina1983 KezMc
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katie64649 KezMc
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See your GP again and ask to be referred to a different gynecologist, and insist on a diagnostic laparoscopy. In the mean time....research research research,
http://endometriosis-uk.org
This is a great site, please consider calling their help line, they will be able to help and advise you, and sometimes speaking to someone who just "gets it" can help.
Also there a number of endo related facebook pages, support groups etc which may help, even if its just to vent your frustrations.
Hope this helps! Your story reads very similar to my own and I really feel for you x
KezMc katie64649
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fernster244 KezMc
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fernster244 KezMc
Posted
Also whatever you do, don't start the depo injections.
KezMc fernster244
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fernster244 KezMc
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marina1983 KezMc
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k43103 marina1983
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MissAmEdwards KezMc
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Its been a constand battle and i hae had 2 more operations since, and been back today as im still getting the pains, the only thing you can do is keep pushing them to take you seriously. The only option my docotr told me to do is have a baby! Which they told me would be difficult but would sort the probelm, not the best advise to give an 18 year old.
I hope this helps and that you get the help you need but don't let them fobb you off as they will keep using the age card
shamina79555 MissAmEdwards
Posted
Iv had a laparoscopy but the doc who did my op said that "they didn't find anything so I'm fine but if I get more pain in 6 months come back to them" so they discharged me from their records. I'm like WTH, my consultant is the one that said to me that "even with a laparoscopy Itz not 100%" so how can they say I am fine.
Wherever I go they say "oh Itz normal" or they try me on a dif pill or just turn me down and say I have a urine infection.
I am sick an tired of all the docs just pushing and shoving me, I want help and not be treated like I'm some mad attention seeking person.
Please if u have any advice on anything please reply back to me probly Ur advice could help me and I would be very grateful to u. Thankyou. Hope to hear from you soon. X
shamina79555 KezMc
Posted
I have been to my gp who says my symp show I have Endometriosis but my gyni says that Itz hard to tell because they have no solid evidence as it hasn't been seen, so she had put me on the contraceptive pill. I am realy fusterated and angry because I have had a laparoscopy and even though my consultant did say "it's not 100%" I am not being taken seriously, as they say endo is not a illness that can be found very quick.
I am realy upset and get very depressed I just want to be helped, but no one is really helping me. I am scared for what the future holds for me and the only thing I want more than anything in life is to be a mum. I have done alot if research about endo and it does say that the longer you leave it untreated the more severe it can get, so what I think to myslf is that if the docs or gyni can't tell the way they say to me and it gets worse will they take any responsibility for my future. I don't bloody think so.
I just want someone to help me and atleast tell me what's wrong with me.
All I can realy say to u is please don't give up, go to your doc or gyni whoever and don't let them just say anything to u if u have to push and shove do it, u have all the right, because if u ain't going to help yourself get to the bottom of it no one is.
I don't know if my reply has helped you but I just wanted to share my story with you. Lastly all I want to say is FIGHT because we all have rights.