Suspected Lupus.. need advice
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Hi i am looking for some advice, my sister had a phone call from her doctor today who stated that they believe she might have lupus due to the fact her blood clots. My sister suffered a cot death in October and since said the blood in her placenta was clotting which although not cause of deathled to the placenta to stop functioning at 100% she also suffers from alot of clotting during her monthly cycle which apparently comes every 2-3 weeks rather than more regularly.
Does anyone know if this sounds like lupus? I have tried looking it up but all I am finding is lupus is autoimmune and there are many different kinds and treatments. Although this call was only this morning I am wondering how they confirm this etc, and what next steps are as well as if anyone thinks this could well be lupus?
Thanks
Sam
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Jan999 sambaines16
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sambaines16 Jan999
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Jan999 sambaines16
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sambaines16 Jan999
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jacs54002 sambaines16
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sambaines16 jacs54002
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jacs54002 sambaines16
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lolapants sambaines16
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After having 9 misscarriages i was diagnosed with aps/sle, i take asprin to thin my blood i was diagnosed some 23 years ago . your sister will need more bloods to be taken the main test is the ANA blood test. it is very hard to diagnose and your sister will have to have at least 4 symtoms of lupus plus blood results to determine Lupus . she will need to be referred to a rhumatologist who will ask for these tests to be done they are specialised test that they can ask for. Hope fully your sister does'nt have lupus as it can mimic other conditions such as fibromyalgia good luuck
leona18728 sambaines16
Posted
Like everyone has said she needs to wait for blood test results, but completely understand your need to research this yourself,
All I can say is as a young woman I had 3 miscarriages and suffered terribly with my periods I had clots of blood like liver every 10/12 days, I was worn out and restricted as to where I could go or what to wear, this went on for many years before having an hystorectomy in my late 30's
Things settled down for a while then I started to become very ill with kidney infection after infection, after 2 years of tests I was diagnosed with Lupus SLE I was 42 then, when talking to my consultant one day miscarriages were mentioned and she now reckons I possibly had lupus since my late teens I'm now 57
I also have fibromyalgia which was diagnosed 15 years ago to,
The quicker your sister gets a diagnosis and gets the right treatment the better for her as stress is very bad for her if she has lupus,
I wish her all the luck in the world and is lucky to have a supportive sister.