suspected PMR-awaiting labs
Posted , 9 users are following.
My Dr. is pretty certain I have PMR, and I have had all types of blood work and X Rays taken 2 days ago. I have an appt. next week ( 5 days) to go over the results with him. I have read all I can on PMR, and I have EVERY symptom. This weekend the pain has now spread from my hips and shoulders and upper arms, down my forarms and into my wrists and hands. I can barely do anything right now. Taking Advil does nothing except rasie my BP ( I am on a Beta Blocker), and gives me terrible headaches.....so for right now all I am doing is using heating pad. It took me almost an hour last night to get up off the toliet seat !!!! I know if this is my diagnosis there are meds that will help fairly quickly. Does anyone have ANY suggestions to relieve some of the pain for the next 5 days. I am in agony and can hardly move. Thank You
0 likes, 18 replies
kimberly04963 manikki
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Nanduff manikki
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sue-dorset manikki
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Have to agree with others. Nothing touches PMR like steroids. OTC painkillers may dull the pain slightly but will not alleviate altogether. Heat will also help a little. But do try and keep moving, albeit slowly. Hopeful your doctor will do the right thing at your next appointment.
audrey80537 manikki
Posted
if you could sit in a warm bath but if you are anything like I was you will never be able to get out. I don't know where you are but a swimming pool with warmer water also helps. If you have some real pain meds around that also helps.
If all else fails and you can handle it have yourself a stiff drink
so very sorry
Call your doctor and tell them the pain is too severe to wait past Monday or go to ER today and have them contact doctor.
No one should be in that kind of pain although we all have been at one time or another.
audrey80537 manikki
Posted
if you could sit in a warm bath but if you are anything like I was you will never be able to get out. I don't know where you are but a swimming pool with warmer water also helps. If you have some real pain meds around that also helps.
If all else fails and you can handle it have yourself a stiff drink
so very sorry
Call your doctor and tell them the pain is too severe to wait past Monday or go to ER today and have them contact doctor.
No one should be in that kind of pain although we all have been at one time or another.
Danrower manikki
Posted
I suffered 8 weeks total, 4 weeks after a rheumatologist said "you have no inflammation" Was hung out to dry, during which time I told my girlfriend that if my symptoms did not improve, in 6 months, I would eat a bullet. That bad.
After I read about the symptoms online I contacted my GP and said: "I will be coming in to your waiting room and will plop myself down. YOU will have to deal with me or call an ambulance." He prescribed 2 weeks of 15 mg/day prednisone, remission was miraculous in 6 hours. After 85% improvement, on pred, 2 weeks later: confirmation of PMR by head of Rheumatology @ Mayo.
I understand doctors reticence to over or unnecessarily prescribe drugs, including prednisone.
BUT you could be Damn well sure that if the doctor's close family member presented with PMR symptoms the Doc would have already started a trial low dose of prednisone!
I agree with Audrey: press the issue, and soon.
ptolemy manikki
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Danrower ptolemy
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manikki
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ptolemy manikki
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Anhaga manikki
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FlipDover_Aust Anhaga
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audrey80537 manikki
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The very next day I felt like I could have climbed Mt. Everest
Wishing you the best.
manikki
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ptolemy manikki
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Danrower manikki
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Hallelujah
We all know the feeling. So happy for you. I feel the endorphins.
But take heed of the advice of others here.
My experience is like a prisoner who was given a reprieve from execution. I was elated and thought I was free. Unbounded optimism.
18 months later, I have avoided torture and execution.
But I am still prisoner.
For me, that is the reality.
I still hope for freedom.