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SVT ablation

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42 year old women with SVT awaiting ablation,

Please can anyone help me decide whether to go ahead with this op. I have had this condition for 30 years (diagnosed for 2). I have been taking beta-blockers which were of no help and just been switched to Flecanide - hope that works.

I have managed to cope with this over the years but am really frightened now as I dread having to end up with a pace maker or worse.

This condition has molded who I am and how I behave and although I enjoy life, work and my children I know that I live every day with this heavy cloud over me that claws at every thought and decision I make about simple everyday things - like not wanting to bend down and pick up my childrens clothes - I could go on but you all know the rest!

I want to be a normal Mum doing all the active things with my kids and not be rushing off to A&E anymore. Please can anyone share their experience of how the ablation was for them and how scarey it was? Has anyone had the op at Papworth?

I hope all of you out there are making progress in dealing with your condition and PLEASE - if you are young do all you can to be free of it otherwise it WILL dominate your life even if like me you don't want to admit it.

Thanks to you all for sharing your thoughts as I can now see that I am not alone.

0 likes, 27 replies

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  • paul62634
    paul62634 Guest

    Posted

    Hi Dawn . I know only too well of the feeling that hangs over you and I guess I've got used to it . When it happens you just want it to stop and when it stops not to come back. I had a reveal fitted by minor surgery about 2 and a half years ago to record automatically the episodes I was having . Put on bisoprolol after it revealed 48 episodes! Had an ablation which went fine . Not my most favourite choice of venue but a considered choice to end the curse as I call it ha ha ! Any way three months on no meds feeling like a new man and hey ho it was back with a vengeance . Instead of 2.5 mg a day of bisoprolol to control it I needed 10 . A year later I ve managed to cut down to 5 mg a day . Don t know what to do anymore I have an appointment to see the specialist coming up to discuss another ablation. I was told the success rate was 95 % pretty good odds I thought. The ablation is to stop the electrical pathways But I guess nature sometimes finds a way also . I wish I knew the answers Dawn..if it's any consolation I ve had hundreds of episodes and still here and cycled thirty miles on Wednesday . Take care . Paul 
  • dawn38901
    dawn38901 Guest

    Posted

    Hi Paul, go for it, I was talking to someone who had a friend who had to have it done twice, havent looked back since. 
  • paul62634
    paul62634 Guest

    Posted

    Hi dawn thanks for that. How are you doing ? 
    • dawn38901
      dawn38901 paul62634

      Posted

      Hi Paul, today has been a good day, flecainiode and bisoprolol keeping it at bay so starting to feel less anxious, how are you doing? 
  • paul62634
    paul62634 Guest

    Posted

    Hi dawn Same as you really bisoprolol doing the job. Rather not be taking it though! Are you waiting for the hospital to come back to you with a date for your ablation. 
    • dawn38901
      dawn38901 paul62634

      Posted

      Hi Paul, yes waiting for the hospital to get in touch with a date, the consultant did say that he was putting in that he wanted it done asap, and I realy could do with it being soon seems as it cost me £16.10 for one months worth of tablets yesterday, not good !!! and lets hope this time you get a permanent fix and you too Robbie.
  • robbiew1971
    robbiew1971 Guest

    Posted

    Hi Paul/guest

    I have had 3 ablations now over the last 13 years I have lived with this, sometimes you are just unfortunate and it comes back, as paul said, nature has a way !! I am awaiting to see my cardio specialist again to see our next move but this last episode was much shorter/not as fast and stopped on its own. The odds of a permanent fix are very very good and I really hope everyone who has it is sucessful. My first ablation lasted 5 yrs before i had any symptoms, the next lasted another 6 years, the last has only lasted 13 months but I guess my heart is just awkward lol !!! Good luck to you both.

  • ashley_14340
    ashley_14340 Guest

    Posted

    I'm so glad I have found this where you are all talking about having SVT. I'm 19 years old and I was fine all my life up until last year where my heart randomly wouldn't stop beating at 160bpm for 14 hours I was rushed to the hospital and had to have an injection to restart my heart it was really scary. They then diagnosed me with SVT but say I have palpitation out burst of AVRT ( which are what I call my strong palpitations ) my palpitations are getting worse they happen every day some are double palpitations and feel like I'm going to have a heart attack as it takes my breath and hurts a little bit. the other palpitations I get are just a little flutter which arnt scary. I have quit my job where I was working nearly 40 hours a week as it made my SVT so much worse. I worked in retail ( bending down for clothes that had fell on floor would make my heart go funny and me feel dizzy ) running up stairs back and forth would make my heart beat very fast for longer than it should after I stopped going up stairs. Since I've left work I am having less palpitations but I want to work and not just relax most the time. I have been put on the waiting list for a key hole heart surgery where they want to check first to see which I have first svt or avrt then they want to burn around my heart as they think I have an extra circuit around my heart. I'm really scared and don't want surgery as I'll be awake while there doing it!! And my worst fear is having a pacemaker I really wouldn't want one of them as that means they'd make a hole in my heart to place it in and a scar on my chest then I'll have to get it operated on every 5 years to re charge it. I don't know what do to. Have the operation or not ? Will my SVT get worse if I don't have it or will it remain the same as it is now ? I worry to that when I chose to have baby's that it'll get worse and I will have to have a c section due to my health at risk if I have an svt attack while giving birth. If I don't have SVT would it knock years off my life ? Advice is needed please really worried
    • ashley_14340
      ashley_14340

      Posted

      I was given betablockers but I never use them as I don't want my heart to rely on them and my heart rate is normal most the time. It's only one offs where it'll go high so I never know when to take them
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