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feeling rather miserable and scared. had successful avnrt ablation oct 2018. the after effects were almost worse with constant ectopics and runs ectopics. 6 weeks ago I was sure I was getting svt again for few seconds every few days as it makes me go very faint although a run of ectopics does so wasnt sure. past weekend I had what I thought was run ectopics and went very faint then seemed ok but within 10 mins svt back at 170bpm. this lasted 15 mins. over next 6 hrs had another episodes and the last 2 were in a&e so def svt . thankfully they stopped without needing adenosine. i am now back on verapamil 3 times a day. cant take betablockers due to childhood asthma. seeing specialist arrythmia nurse in sept and having another echocarduagram. i only had the ablation because i had one episode where the svt triggered a 5hr run of atrail fibrillation. obviously a fib is much more serious than svt.
how do people cope psychologically with never knowing when it will strike. i am still having ectopics and runs of them daily and each time i am anxious it will trigger the svt.
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I am sorry to hear that your SVT came back . I had SVT all my life for as long as I can remember . I am 56 years old . I had my cardiac ablation . on April 12th of 2016 . the healing process was quite scary but after a few days I was fine. I know how you feel about being scared not knowing when it's going to hit you. I lived that way all my life until I was offered the ablation. I do get skipped beats once in awhile but it's rare. It's usually when I don't eat at the right time. other than that I'm very grateful for that ablation. it's been over 3 years and 3 months and I'm still okay thank God. if you need to talk I'm here. blessings to you.
thank you betty. i have had bad ectopics since my mid 20's and am now 58 but ectopics especially multiple ones can trigger svt. i have isolated ectopics all day long with at least one episode of multiple ones.
its just an awful combination!
That's rough. The best way I can cope is trying to be prepared for the worst. I wear a medical alert bracelet, carry an emergency contact card on me at all times, have a 'to go' bag ready at home if I need to be rushed to the hospital. And I keep loved ones and close associates informed of my condition. I also keep a detailed medical log at home. This is important. I also take my own vital signs during any episodes. You may not be able to predict an episode but you can ensure that no matter how bad it gets you'll be ready and those around you will be ready.
i too have the to go bag at all times. having a detailed log available is a good idea as having to keep repeating your history is hard work.
i am getting everything together for trying to stop an attack and the specialist nurse is going to make sure i am doing them properly.
I can well relate to your situation and those of your other respondents, Deborah. My 72 years have included more than 50 of battling this sorry stuff. Since my second ablation two years ago, my quality of life has improved tremendously. No SVT since, but many, many ectopics, and fairly frequent short "runs". What seems to have helped me deal best with those problems is learning from the tests done before my 2nd ablation that I really do have an otherwise healthy heart. I've read repeatedly that a healthy heart nearly always tolerates this miserable stuff quite well. I think I finally believe that.
I'll also suggest exercise. I walk 4 fast miles a day, year-round, and that year includes miserably hot days and some quite cold ones. I also do resistance training and much appreciate the results. It's fun to hear my grandkids tell me that I might see their kids grow up some, since I seem so healthy. Time will tell. All this is meant as encouragement for you. Your situation just might get much better. Take care.
thanks gene. sadly exercise isnt really much option as I am already fairly disabled with prolapsed spinal discs but can see that it would keep your heart healthier. i have lost fair amount of weight nearly 3 stones and counting so hoping that helps.
good to hear that your heart coped with 50 years of svt.
I apologize for the unintentional insensitivity, Deborah, as to exercise. My occasional, minor back issues have left me with empathy for those with significant problems. If I'm accurately translating 3 stone into 42 pounds, your weight loss deeply impresses me. Well done! I do hope that my functioning reasonably well during my decades of SVT can offer others some encouragement. It hasn't been easy, but has been well worth it. Take care.
you have no need to apologise as I hadnt mentioned my other conditions. i am a bit of a wreck!
i laugh that apart from being partially sighted and needing new eyes, dodgy back and the dicky ticker I am fine.
was helpful to know how long you lived with it so thank you for that.
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