Swallowing difficulty

Hi Jenny;   It's always the answer to everything from the Professionals, that we have Anxiety............but for me, I know I am not feeling anxious when I start to take my tabs/food etc.....but yes, we certainly do become anxious when the food/water, etc Won't go down....just seems to keep going around in our mouths/get caught going down......so to me, it's the other way around.....Anxiety After the fact, not before.........but once I learn't how to deal with this issue, All Works Well and NO anxiety..........Bron

Hi bron I did not know you had this ' symptom' along with all the others hmm more room for thought lol sy 

Morning Sylvia;    Yes , actually this was one of my First signs....had a Barium Swallow back in 199Bron6, when they first thought it was MS....but it came back negative......I used to then even, choke on toast Crumbs, and one day, was eating a Water Iceblock, and Just couldn't get it Up or Down....that was a scary time.......Bron

Hah! Yes bron anxiety and depression are like a " get out of jail card" for specialists clinicians doctors and GP s . And so you go on a long journey of suffering where you become a nusiance to them with a long list of awful symptoms which quite often they say " you are imagining and all in your head " well , I eventually proved them wrong!!! 

Hi sylvia17461 I too have hasimotos. I take thyroxine every day for life and have to have regular blood tests to check the levels.I have problems swollowing and on numerous occassions I have chokeing turns which have been quiet frightening as Ive litterally been fighting for my breath. gp has told me to phone for an ambulance if this happens again. take care gentle hug

Hi kaz if you ve been taking thyroxine for a long time and feel no better, you probably need a higher dose or a different hormone replacement maybe T3 added or NDT ( trial and error) research shows 3 parts T4 to 1 part T3 . The problem with that in the UK is , the powers that be GMC are trying their best to ban T3 altogether so you will be very lucky if you are given it , natural dessicated has all the hormones in and was the only treatment for many many years before synthetic T4 was "invented" but most doctors will not give you a trial . Levothyroxine does not help every one with hypothyroidism . It has been well researched and proven that some people are hormone resistant and the T4 is not converting to the active hormone T3 in which case you will never feel well. I believe you have a lot of other problems other than the fibro diagnosis ( that may be a misdiagnosis) there is more and more evidence that thousands of people are being wrongly diagnosed because the GMC state ' GP s doctors and endos must follow their ruling and go by , what they call the gold standard of blood tests TSH results. These tests have been proved to be unreliable and when your results come back from the lab as normal hypothyroidism is dismissed . Low basal temperature is common in patients with hypo this is never tested , symptoms are ignored if tests are normal, even though they are staring doctors in the face , you are not given the chance to trial thyroid meds ! All other tests are normal. So you are told CFS or if a lot of pain  Fibromyalgia . I would ask your doctor to either add T3 or trial NDT . A long story cut short , Having said this no doctor or endo would prescribe either for me so I was left to struggle on with T4 only . Although I was so much better with this medication I was not 100% . Eventually I decided to self medicate with NDT , difficult !  as it is prescription only so I send to US and now I am trialling  thyrogold and doing well but early days . The difficult thing with this illness ( hashimoto) is trial and error to find the correct hormones and doses and can take time best wishes sy 

Sorry kaz I must have said something they didn't like so cancelled my reply out! I just wanted to say maybe you should ask for another thyroid hormone I believe you have a host of other problems which may or may not be connected to thyroid disease . As for the the difficulty swallowing and the choking fits My take on it is it is more likely to be a symptom of your thyroid problem rather than your fibromyalgia , best wishes jay

Thank you sylvia it has made very interesting reading, I will see what my results come back like.I should get the results this week, I hope throgold that you are trialling works well for you.It is trial error to find what works for us and what doesnt. I will have a word with my gp about the t3 and also mention the ndt. thank you for the info and for sharing it with me. take care gentle hug x

Very similar to me not quite the way I describe it but similar . Could be from the thyroid gland . Antibodies attacking gland and causing inflamation to it . That and difficulty swallowing were the first symptoms of autoimmune disease ( hashimotos) possibility , do some research on it health unlocked thyroid is a good forum to have a look at . And yes Derek acid reflux another symptom of hashimotos along with difficulty swallowing .

Hello Sylvia, thankfully my full battery of tests which included my thyroid proved all was fine..   just my White cell count was down a bit, but then that due to something my body is fighting, which of course will be the issues with my legs...   Going hopefully to a doctor Tues.. fingers X'd.. and will be dicussing that issue to..  

 

Morning Deb; are you sure your White Cell Count was "down"??? It is Normally Raised when fighting an infection....they are the Infection Fighters........I also followed Sylvia's suggestion re Thyroid, and had another test done, which came back "border-line", so am trialling Thyroxine/Oroxcine......do say I Don't have the Constant Lethargy, but the Fibro pains, yes......am still feeling that the Thyroid is an issue in relation to the CFS  (and all along have felt that many of my CFS/ME symptoms were similar to low thyroid.....I didn't have weight gain or loss of hair, which are other symptoms, but the Extreme Lethargy I certainly had)......do have another Specific T3T4 Uptake Test done, if your Fibro dr will order one for you, when you see him......you may just find that it was like mine (Borderline), and Thyroxine does not do any harm, normally.........trial over a period of 3-4 months......do some research, and see what you find, in relation to your bodily fatigue?.......Bron

Hi Bron...  Yes doc definitely said it was on the low side. I have to watch my iron levels as I have a tendancy to get very low in iron.   Doctor said the level wasn't dangeriously low and was probably due to fighting off something. Well dah the connection for me is my lower legs issue. If those red things are are due to a bacterial something in the blood vessels..then yes I'd say I am constanting throwing white blood cells at them ... and getting low.  ??

I hope your on to something there Bron with your Thyroid.  :-) 

 

Hi Deb; I'm definately not trying to alarm you, but if you are certain that your Dr said "low white cell count", then I think that when you see the Fibro Dr tomorrow (at least I hope you still are?).... can you ask him to order another blood test to check this again?     Low white cells are known as Neutropenia, and there is usually another reason for this.....if it was only due to the sores on your legs (that have been there for more than a few days), then your WCC should be raised.......this does need to be checked......it may even be that the sores are secondary to the low WCC (sorry WCC stands for White Cell Count)....as if WCC is low, this means you are More prone to infections, and could be something wrong with ?bone marrow, where the WCs  are formed......or it could be a result from your Trauma, and your body not healing/healed properly yet????  Please remember, I do Not know everything, just bits and pieces....but would feel better knowing that ALL is well, and nothing to concern you......make the most of this visit, as I know you have said, health help is not always available..............best wishes.........Bron

Hi Bron...many thanks for your input and I appreciate it..    I will definitely lay it all out to the doctor. HOPING that I can get into see him.  I had NO call back today, so I'm not liking my chances!!!

I've had those sore Red areas on my legs for near 2 years, They don't get any smaller, they just start to appear very small and get wider and darker.  One smaller one this evening was niggling me like an itch and another was paining me.  I cannot scratch them as they are so so painful that way.  I push gentle on the small one that was itchy, and it set off a referred nerve pain tracking  down into the side of my foot.  Everytime I pushed it did the same thing to the same nerve in the foot... So I guess the little nodule thing underneath this one is on a nerve.

Putting up with so much pain every day for all these years, restricting my exercise now severely, to a debilitating crippling stage now it's no wonder the body is crapping out further..hahaha.  I wondered also if the Meds are playing a part.  Flareups make my mouth ulcerate, and I can even wake up with a cold sore when my Flares are causing my whole of body to burn and sweat for hours on end for days...  Of course the body is stressing, and I don't have folk to help me with meals/house work so I wonder, because I push and push to near complete exhaustion that all that system pressure is kicking back on me.

It doesn't take much repetitive movement at all to Flare me up. This does brass me off....

From being a very fit agile, busy person to this... yes like everyone else now battling our bodies...  hohummmm

Fingers X'd for tomorrow for an appointment. Even if he can see me in a fortnight I'd be estatic!  But I'm not holding my breath.  And if I cannot get into a doctor, I'm going to go through the Advocacy action group.  That is the first step, before 'Complaints'...  That is our process here, and don't have a choice.