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Swaying heavy and light boat feeling, light headed, anyone from Singapore

Posted , 9 users are following.

alan94308
alan94308

Hi,

I have been feeling a light headed, swaying heavy and light on a boat feeling for around 5 months now, non vertigo, when walking is like walking on plank, cotton ground, sometimes heavy and light 

Feel better if in moving bus, since the sensation if about same

Also have a tight sensation under the bridge of nose linking to the head

I am a panicky and anxiety person by nature and sometimes awaken by nightmares of falling down sometimes back, but not to the extend of getting this swaying light headed feeling at all

One night i bumped my head on a wall, some slight blue black on the left forehead, but no vomit, fever, double vision at all, everything was ok for 5 days

On the 6th day, i woke up with this feeling and has been with me, the only thing happen on previous night was that i was awaken by a falling nighmare

Doctors done basic check on eyes, walking with left leg follow by right leg and nothing wrong with brain

I been to GP who gave me antibodies, inflammation to try for 2 weeks, thinking might be nose inflammation, but never work

ENT done scope of nose, nothing in nose, test nothing wrong with inner ear balance, Chiropractor no use, done MRI waiting for result now, neuro gave some nerve medicine to try

Anyone from Singapore having this problem, need to talk 

Thank you

Alan 

 

0 likes, 12 replies

12 Replies

  • Lapka
    Lapka alan94308

    Posted

    Have you tried Epley maneuver therapy. It helped me 2 years ago, it should be done by an experienced physiotherapist or by a doctor.

    Good luck!

    • alan94308
      alan94308 Lapka

      Posted

      The ENT already told me not BPPV or inner ear problem, done gaze and hearing test already, so Epley maneuver therapy is not for me
  • steph12793
    steph12793 alan94308

    Posted

    Have to traveled by boat or airplane prior to this feeling?
    • alan94308
      alan94308 steph12793

      Posted

      No boat or airplane prior to this

      My neurologist told me not mal debarquement, need to be on boat for quite some time first

  • Ruffian829
    Ruffian829 alan94308

    Posted

    I have the same exact symptoms, following a trip to Disney World (a few boat rides, ride rides, plane trip, etc). At the same time I got a viral infection (103 fever) on our last days there. Ever since I’ve been rocking like I’m on a boat, except when I’m in a car.  It’s been almost 6 months. 

    My vestibular physical therapist says is mal debarquement syndrome. My neurologist and the ENT said it’s labyrinthitis. Either way, no medication has helped.  I started taking Bit B and magnesium but I don’t think it’s helped. Physical therapy is starting to help a bit, I think. I’m doing my best to keep up with it and I’ve YouTubed additional exercises that I can do too. Nothing else I’ve seen or googled brings me any more insight to what this is or what else can be done. 

    • alan94308
      alan94308 Ruffian829

      Posted

      Hi Ruffian829,

      If is mal debarquement syndrom, you will actually feel better in moving car

      Since your problem started after the viral infection, then you should work your way from there or could it be viral infection and it lead to or combine with PPPD after 

      Where you from ?

      Alan

      Singapore

  • kelly84510
    kelly84510 alan94308

    Edited

    Hi love.. I would definitely look PPPD and MdDS.. and to be honest most doctors don't know much about this...I have also been told that you can feel better in motion with both these syndrome... PPPD usually starts after a vestibular event and MdDS usually starts after a motion event( cruise or plane) ... I have been diagnosed with vestibular migraines, PPPD and MdDS.... VRT seems to be working for PPPD, but it seems to take a few month.. while no real studies have found VRT to work on MdDS patients...Ive been dealing with this for 7 years and I've never had any medication for this... the anxiety is huge for both syndrome, so finding ways to deal with the anxiety is my best tip.. you may need  ssri's.. 

    • alan94308
      alan94308 kelly84510

      Posted

      Hi Kelly

      My neurologist told me not mal debarquement, need to be on boat for quite some time first, he knows about it

      But he not sure of what is PPPD and he referred me to another senior consultant Neurologist for a second opinion

      By the way what is  VRT and where are you from

      Alan

    • kelly84510
      kelly84510 alan94308

      Posted

      VRT is vestibular  rehabilitation therapy... retraining your brain to work with your eye's and ears.... you can find exercises on YouTube.. I'm from Australia..

    • alan94308
      alan94308 kelly84510

      Edited

      Kelly

      You were saying you can feel better in motion with both these syndrome, what do you mean, feel better when VRT or feeling better when in motion like in a moving car 

      I will tell the senior Neuro the next visit about maybe is PPPD and what he opinion

      You were saying for 7 years without medication, how you get about with it

      Do you mind if i contact you over phone, say Whatsapp, Telegram or Wechat cheap and easy, it would really help to talk to someone that understands, i only managed to find 2 guys in Singapore with the same problem, but it was years ago they posted in the forum and i cannot reach them anymore

      I PM you

      Thank

      Alan 

       

  • joshuapryce1987
    joshuapryce1987 alan94308

    Posted

    I think you should broaden your horizons, someone in Singapore will have to same symptoms and issues as someone in Germany. If you do this you will find the answer much quicker and more helpful. Its good to get different opinions.

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