sweating
Posted , 11 users are following.
Do hope someone has an idea of what is going on for me here. I have PMR and GCA.
I have slowly come down from 60mg to 15mg of steroid medication and have had lots of unusual symptoms. I have awful sweats - I wake in the morning covered in sweat. During the day I can feel it running down my body, i put my glasses on my head and when I retrieve them to read they are all steamed up, my head is also wet. At the moment its running down behind my ears and neck.
My Doctor does attribute most of the strange symptoms to the steroids as a side effect.
But to be honest along with the weight gain, the thinning hair, depression, exhaustion, confusion and the sweats, along with the stiffness and the odd pains............ I am totally and utterly at my wits end.
Any suggestions please
0 likes, 26 replies
missmagwumps Abella-Linda
Posted
Hi Abella-Linda,
I can only agree with what everyone else has said and all my symptoms I put down to pred...sweating, hair loss, weight gain,...I wont go on...my symptoms have dissipated a lot since I am now down to 5 mg - due to be 4 mg soon....
I personally feel the steroids have done more damage to be than the suspected PMR.....a few other pains have started to slowly creep up as my dose is lowered but they are not bilateral pains, just one ankle that has arthritis and my lower back that has always been a problem since disc surgery, plus I have multiple degenerative problems with collapsed vertebrae etc....
I sincerely hope your symptoms decrease as you can slowly lower your dose - at least I could hide my sweats slightly as they occurred during one of our hottest summers ever in the UK but they still weren't pleasant....I wish you well on your journey ....x
Abella-Linda missmagwumps
Posted
Thank you for the info i understand where you are coming from. I think we all fear the steroid medication but at the time thats all we have.
Am pleased that you are almost at '4' well done.
Has your weight come down? Others have tried the 'Anti-Inflammtory' food plan so am going to give it a go..
Please have a look it may help you too
I too wish you well - take care x
missmagwumps Abella-Linda
Posted
No - my weight hasn't come down despite a nasty bout of gastroenteritis since Christmas day ! My diet pretty much includes the ingredients in anti-inflammatory food plan ....I really need to get out of this depression and fatigue all this has caused but suppose it will take time...I am going to research some food supplements to find my Mo-Jo again too...........probably be a waste of money but can but hope...x
Abella-Linda missmagwumps
Posted
hello Missmagwumps
I feel how fed up you are and I know exactly 'how' you feel. Its all such a waiting game, everything is on 'hold'.
Please don't give up on the anti-inflammatory diet. Do have another go for at least a month and be very stict with your self. No naughty treats, which is what we all struggle with - I too often reach for the biscuits and before I know where I am a whole packet has disappeared and my dog didn't have any! Its me feeling sorry myself!!!!!!!
I am about to give it a 'go' for a month, am using a book 'the Anti-Inflammatory Diet and action plans' bought it on Amazon. I hope thats a bit of a help to you.
Please be careful regarding supplements and herbs, there are lots out there , its a minefield. You could spend lots of money to no effect, lots out there who claim to have a CURE for your problem but dont know a thing about your condition or medication.
Take care and Good Luck as we all wish each other.
Flutterbie57 Abella-Linda
Posted
Sadly, no suggestions, but you just described me. A good sense of humour is required, and the thought I cling too is, that it will not last for ever. We talk to each other on this anonymous site and I imagine us all being able to recognise each other on the street, chubby, moon faced and sweaty. 😃
I have to keep my mind busy to keep myself partly sane.
I had the sweats before I was diagnosed. They disappeared some where on my journey , but they returned after I dropped below 10mg pred. My glasses fog up often. My biggest concern is that they will fog up at an inappropriate time, like at the supermarket check out or going through customs, and they will wonder why I am looking sweaty and nervous.
My Doctor puts it all down to pred as she does with other odd little medical problems which come and go. I had the sweats prior to diagnosis, so I think they are PMR related.
I do wear a thin cotton scarf more often now. Unfortunately not for fashion reasons, but to wipe my sweated brow, and my glasses have to spend more time on top of my head to hide the fog.
We will return to normal one day I am sure.
All the best
Abella-Linda Flutterbie57
Posted
OOOOOH Flutterbie I understand all that you have said. Yes am always making jokes about what is happening to me. One is walking like a constipated duck and another that I use with the fat face is 'oh I have only just got up and havent let the air out yet'.
I have just pictured you at the airport!!!! Yes we do need a sense of humour but it does wear thin at times.
Yes we will 'find' ourselves again soon
All the very best to you
Linda