Swollen feet
Posted , 6 users are following.
I have PMR and GCA which was diagnosed just over two years ago!
I am on steroids and methotrexate.
Recently I had a painful left ankle and it was painful to put weight on it.
After a few days the pain subsided but i was left with a bright red swelling on the outside of my foot. It looks like ive poured boiling water on it!
Not sure if this is linked to my other concerns and wondered if anyone else has experienced something similar
0 likes, 25 replies
EileenH anne28129
Posted
Nothing I have ever heard anyone mention - probably worth asking your GP about perhaps? You are at a higher risk of infections - was the pain in the bone or the soft-tissue?
anne28129 EileenH
Posted
The pain was not the bone! It was like a burning sensationand really painful to stand on
EileenH anne28129
Posted
I had that sort of pain but all over both feet really - and never any reddened local swelling. It was due to the PMR affecting the tendons and joints in the instep of my feet - my feet were puffy but not red.
anne28129 EileenH
Posted
Thanks Eileen
I'm seeing my consultant next week so I'll mention it to him
patricia43291 EileenH
Posted
Ever since I've had PMR, my toes have been giving me problems, pain, red, swelling, mostly at night, but sometimes during the day.
My GP has suggested a couple of things: better supportive footwear and cut down on my rum drinks, (I usually have two every evening). I did both, but it hasn't helped. Perhaps it is the PMR?
EileenH patricia43291
Posted
That would fit with erythromelalgia - I'd be surprised if the GP was familiar with it but it can accompany other autoimmune disorders.
https://www.nhs.uk/conditions/erythromelalgia/
Have you got a rheumy?
anne28129 EileenH
Posted
yes, Im seeing him next Tuesday
EileenH anne28129
Posted
Make sure he is aware.
anne28129 EileenH
Posted
will do
Thanks Eileen x
patricia43291 EileenH
Posted
Wow, that could be it. Do you know if there is a definitive test for it?
EileenH patricia43291
Posted
https://www.msdmanuals.com/home/heart-and-blood-vessel-disorders/peripheral-arterial-disease/erythromelalgia
Not really - it is diagnosed on symptoms and increased skin temperature - which is course depends on it happening in front of them! I had a period in early untreated PMR when I would very occasionally have symptoms in my feet that may have been due to it but they haven't recurred since I was on pred. For me it happened if my feet got too hot in ski boots!!!
patricia43291 EileenH
Posted
The symptoms sound right, but for me, my feet don't get hot first, if anything, they would get cold. Several years ago, before PMR, I used to get a burning, then itching, rash, anywhere on my skin, that was exposed to cold. I used to say, I was allergic to cold. Great for me, who lives in Vermont, where, right now, it is about 5 degrees f.
EileenH patricia43291
Posted
Just watching skiing from Vermont, Killington!
Do they go cold and blue-ish? And then suddenly heat up and burn? That could be Raynaud's and a reactive hyperaemia as the blood flow returns.
Michdonn EileenH
Posted
EileenH, are they skiing in the Dolomite? We are scheduled to open on the 6th of December. That is an early opening for Pajariot. I waiting for new boots that I ordered. ⛷⛷🙂
EileenH Michdonn
Posted
The season opened yesterday in the main part of the region - the scheduled day. One or two small places opened last week after the heavy snow 2 weeks ago and Schnlalstal has been open on the glacier for some weeks.
Enjoy when it comes!!!
patricia43291 EileenH
Posted
Yes. I think I have that too. My brother has Raynaud's. My fingers can get a little blueish or whitish sometimes, but I don't think that could be what's going on with my toes at night.
They've been skiing at Killington for a few weeks now. Expecting a snow storm tonight, suppose to go on for a couple of days.
Michdonn EileenH
Posted
Oh EileenH, I will seems like I been waiting for a month or more. My poor wife has to listen endlessly to me but skiing. I be on the mountain Friday, even if my new boots have not arrived, with a smile on my face. I favorite day is the 24th when I ski with the little one on the little hill, they get so excited, I love it!
🎅🎅🎅
Michdonn patricia43291
Posted
Patricia, Killington is a great ski area I spent many ski weeks there with my family, but sometimes cold! Once a person starts skiing in the Southern Rocky's in the warm sun they get spoiled. I am spoiled!🙂🙂
EileenH Michdonn
Posted
Even Michaela Shiffrin said it was extra icy - and the Austrian camera run professional struggled!!!!!!
Michdonn EileenH
Posted
Downhill skiing is really dangerous. Only skied one downhill run, the Kandahar and Garmisch Germany. I was a pretty fair skier when I was younger, but that was more hill then I could handle. After skiing it, new found respect for those who do. Watching on TV you really can't appreciate the hills.
🙂⛷⛷
patricia43291 Michdonn
Posted
Michdonn, What will you be doing in your new ski boots, on the mountain?
I'm not a skier, but went with my family last year to Suicide 6, which is really close to me. I was amazed, there was a crowd of geriatric skiers. They were at least seventy five, but probably much older. And, they were great! And, they had on these suits, that reminded me of spiderman. I did a painting of the scene.
EileenH Michdonn
Posted
The Kandahar runs are all rather hairy!!!! My cousin stood in the ski hire shop here int the village and told the guy "I'm an excellent skier..." as I and his son squirmed behind him. He thinks the Gran Risa in Alta Badia (the xmas giant slalom run) was difficult when it was prepared for tourists! The race runs remain closed for another day to be converted to normal skiing standards 😉
Michdonn EileenH
Posted
EileenH today I would not even think about skiing a run hill run. We have a number of double black diamonds, which I did not ski last, but have in the past. I have nothing to prove and am very happy to ski blues and blacks. At 82 why push it, if I feel great and the conditions are right I might. ⛷⛷🙂
EileenH Michdonn
Posted
I loved being up there on the top runs which are mainly blues with the odd pale red 😉 No need to concentrate as much. Who needs to prove anything!
Michdonn patricia43291
Posted
Patricia, first I will get them fitted, then going skiing. Boots are the most important part of your gear or kit as some would say. Never skied Suicide Six, several other VT areas though, Killington being my favorite.
🙂⛷