Swollen glands for years

Posted , 6 users are following.

Hey, I found this form while hunting the internet trying to get answers and I'm hoping someone can help! For 15 years I've had an issue where my glands infront of my ears can swell up reall badly and when I try to eat It feels like someone is stabbing a knife into my cheek. It reached a really bad peek in my high school years and my parents seeing how badly it can swell took my to the doctors. My GP decided it was most likely a blockage and sent me to the hospital for an ultrasound. I was so excited to finally get this resolved only to be told they couldn't find a blockage anywhere in my mouth. I was called back in for an appointment where my doctor called me a liar and said I had been making it up to avoid school. My dad tried to fight my case but my gp told me at the age of 14 the only other think he could do was snip the nerves in my face and I would never be able to smile again. Absolutely horrified and heart broken by such an awful response I accepted my fait that nothing could be done. 8 years on from that it's getting to much to deal with! Does anyone have any ideas what it could be! 

1 like, 8 replies

Report / Delete

8 Replies

  • Posted

    Really sorry that you've been treated like this. I'm also sorry that I've no idea what's causing it but I think you should take photos of your face from all angles when it swells up so that you have something to show the doctors. It may be worth looking for a pattern of what you eat in case it's linked to a food intolerance or allergy. No surgeon would lightly cut any facial nerves as some of them are crucial for speech as well as eating and smiling. it may also be worth talking to a dentist about them as they have training on the anatomy around the mouth area. Good luck.

    Report / Delete Reply
  • Posted

    Yes, take photos of when they are swollen.  Do you have any other symptoms like dry mouth, dry eyes and/or dry nose?  Do you have aches and pains?  The reason I ask is there are a number of things you could have.  First, see an ENT.   Sometimes it can be a duct issue and other times if you have other symptoms like the dryness etc., it could be autoimmune related.  It's best to cover your bases and also request some blood work.

    Report / Delete Reply
  • Posted

    Hey I just had surgery for that on the 15th of august...they removed the gland an knot...it was a swollen lymphnots..every time I ate it swelled up...its been doing that off an on since I was like 17 I'm 40 now then last year it came again an finally this year I went to a specialist an ent...its not something u eat to make it do that..its a stopped up gland with calcium

    Report / Delete Reply
    • Posted

      This is my first time EVER looking this up. I'm 55yrs old. I just thought everyone had that painful let down feeling of the saliva, when taking the first bite of food!!!! I know, pathetic! I had to have a total hip replacement, had to be cleared by my Dentist. They told me my mouth was a mess, Gingivitis!! I take great care of my teeth. Since reading alot of this, I read, this also affects your teeth!! I have the dry mouth, the dry eyes & as of last night, the big swelling on my left side, right under my ear down my jaw. Nice, kind of, to know, there are others like me & this is not a normal "thing" Everyone has...:p!! Guess I go to my GP to get a script for an ENT???

      Report / Delete Reply
  • Posted

    Ask your GP for a referral to an ENT Specialist. One at a facility that has a great rating like one associated with a University Hospital. Sometimes you need to be your own advocate and get better help.
    Report / Delete Reply
  • Posted

    Yes get a referral an got to an ent...best thing I done
    Report / Delete Reply
  • Posted

    That's good to hear, keep us posted as to what you find out. Hope it gets better for you soon!

    Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up