Swollen glands/lymph nodes and CFS

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Does anyone have any experience of swollen lymph nodes and CFS? I ask as I've got a swollen gland/lymph node on the right hand side of my neck at the bottom of my jaw that has been there for about five years and I wondered if it could be connected (It isn't painful or anything). I did have it looked at (via an ultrasound) and they said it was just a swollen gland and nothing to worry about, but I'm curious to see if anyone else has this/has had this to see whether it's worth researching more into it for aiding recovery.

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  • Posted

    Did you have glandular fever before your were diagnosed with the CFS? It causes swollen glands and they can swell up again from time to time if you've overdone it. If you had it checked and they say there is nothing to worry about try and not get too stressed about it. It's probably just your body's way of trying to fight off infection. I had glandular fever and my glands often swell up then go down again.

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    • Posted

      Hi elaine62759,

      I didn't, that's the thing that makes it extra strange for me. That is, the only reason I went to get it checked out was because it was ocasionally blocking my wind pipe when I was sleeping on my left side, so I got it check out 5 years ago, but it could have been there for longer. It does occasionaly get bigger when I have a bad cold or flu type thing, but it's always just stayed swollen enough to easily feel it when I don't have a cold (if that makes sense).

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  • Posted

    I have had swollen glands on the side of my neck. They get so enlarged its almost embarrassing. I have had mine ultrasound and they were just swollen glands. I went to my rheumatologist and she diagnosed me with sjogrens syndrome and CFS and I have since been diagnosed with fibromyalgia. My swollen glands come and go. My doctor put me on 120 mg of Cymbalta and it has worked wonders for my fatigue.
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  • Posted

    I have had swollen lymph nodes that started around 6 years ago when cfs started. I found they would swell up when I was stressed and when more run down than usual, this was pretty much every day.

    They would flare up later on in the day as energy depleted. Over the years iv managed all my cfs symptoms with good diet, managing exercise, reducing stress and the lymph nodes pretty much went when I found out about food intolerances, that was the main thing to set them off for me.  They now only swell slightly sometimes after eating and I just think that's friction from chewing, then it goes down quickly after iv finished eating. 

    I have never had glandular fever for the record.

    I did speak to 2 doctors about it, they seemed to think it's nothing to worry about however, as in the case of christina00756 that sounds quite extreme so I suppose it depends on the impact and how bad they are swelling.

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  • Posted

    I have already explained this to you in great detail. Are you a troll Sockpim?
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    • Posted

      I haven't asked about swollen lymph nodes before philsey. I also don't understand why you'd think that coming onto a forum and asking questions about CFS would make someone a troll...

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    • Posted

      Dear Sockpim,

      Apologies, I appear to have mixed you up with someone else who I wrote very fulsomely to about swollen lymph nodes etc.

      Trolls get a kick out of causing anyone to repeat themselves, argue in circles in any thread or social media system - they don't care where - and they need to be called out. For the sake of those who put themselves out to answer and help others I would do it again. But I would take more effort to check out my facts before making a direct accusation to the wrong person.

      Once again, I apologize, and I really hope you have not sustained psychological hurt or serious anxiety.

      Philip 

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    • Posted

      Hi philsey,

      I'm well aware of what trolls are. As stated by yourself, you mixed me up with someone else, but even if in the future I ask something related to what you've explained to me, it may just be that I'm hoping for a different type of answer rather than doing anything you'd class as troll like. It's been 11 years and I still haven't worked out the main cause of my CFS/ME or what is making it continue, so I still need to explore more avenues to find a way to make myself better.

      As you wrote a detailed response to someone about swollen lymph nodes before, perhaps (if relavent) you could write something similar on this question/post as well as it may be useful to me or others looking at this for information to help them.

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    • Posted

      Hi

      I would gladly paste you the stuff I said about swollen glands etc if I can find a way to access all my contributions to discussions. The fact I can't find stuff is one reason why I failed to check and mixed you up with someone else!

      Any idea how to access all one's own contributions without an exhausting trawl through every discussion one may have contributed to?

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  • Posted

    Hi, I get swollen and painful glands in my neck, the worst being on the right side, which can be very painful at times and I have read that CFS can cause swollen glands. Don't know why though!

     

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  • Posted

    Yes ive had a tender large hardened lymph node under my left armpit since ive been ill 28 years. I should have it ultrsounded just to make sure but doctors never seemed worried about it. Its about the size of a walnut.
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