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Swollen on both sides of my face

Posted , 9 users are following.

long56426
long56426

Both sides of my face swell up. It’s off and on.  Have no idea what triggered it  very annoying not knowing what I would look like tomorrow.  Has  anyone have a solution  or medication that would help with the swelling?   Thanks

0 likes, 12 replies

12 Replies

  • evemillion14
    evemillion14 long56426

    Posted

    hi there, I'm eve and i am living with sjogrens. What you have described sounds odd, i used to get a swollen face in my parotic gland (side of face) and it would be agony so it probably isnt what you have.

    However, it sounds similar as sometimes before i would get the pain i would get the swelling. This is just me talking from experiences of my own so you may have something completely different! Either way i think you should get it checked out, sounds like you need proffesional help,

    eve x

    • long56426
      long56426 evemillion14

      Posted

      Hi Eve yes it’s my parotids that is swollen 

      I did see ent.  And biopsy ct.  mri

      Couldn’t say why it’s off an on swollen like that

      What did you do to help with your swelling? Meds?   Thanks

    • evemillion14
      evemillion14 long56426

      Posted

      Personally i went through all of the ent and biopsy and that is when they were close to diagnosing me with sjogrens syndrome.

      For the glands in particular i was treated with co amoxiclav straight away to treat parotitis.

      Now i am on a full time medication of hydroxychloroquine, i would say this helps with symptoms.

      Eve x

  • Vette1
    Vette1 long56426

    Posted

    I've been struggling with this for over a year now. My right parotid gland swelling off and on every week. I have seen 3 ENT none knows what to do. They claim it's not taught in medical school. I recommend you ask your ENT for a sialenoscopy of your gland to see if there is debris or a stone or tumor. 1st get a MRI or CT scan. In the meantime use warm compress towel and suck on lemons or limes to open up your ducts. What ever you do do not get a lip biopsy for Sjogren's test. You will regret it big time. Your lip will be numb forever with nerve damage. And the test results will always be negative for SS. I'm suffering for life with a lower numb lip. Also ask to be tested for Mumps. And HIV and other autoimmune diseases.

  • christine26761
    christine26761 long56426

    Posted

    Hiya long...feeling for you. My face used to look like a big red  pepper, makeup helped lol.. the only thing doc could do/give me was predesilone-steroids..they did the trick quickly, I don’t bother with meds anymore ive had SS for over 30 years I just ended up getting my hair cut to hide most of it..it worked too...yes, I’m a tad vain, I only get that bad once in a blue moon now...be blessed long, have a lovely day..😍🙏🙏

    • shaq26875
      shaq26875 christine26761

      Posted

      Hi Christine , has SS not affected your joints, tendons, muscles ? I tried to go without meds for 6 months and it got so bad that I had restart plaquenile ..last couple of months tendons in my palms are swelling ,got put on methotrexate and temporary steroids as well as plaquenile  ...stopped taking methotrexate it after 3 doses. 

      ​How do you manage the pain ? I can only take soluble solpadeine ( have gastric issues) and I find that addictive !!!

    • christine26761
      christine26761 shaq26875

      Posted

      I do have Fibromyalgia, Arthritis too so they all end up effecting me in those places and Asthma too all of those autoimmune issues..just had a total knee replacement in hospital a month in hospital been home a week..normally it’s 5-10days max..I had a huge flare up of Fibromyalgia because of trauma to my body..the muscles in my body kept spasming and cramping  it was horrid watching others go home much earlier...I was very blessed because the hospital was very understanding of my other conditions...I take Amithriptyline one 25 mg been taking them 30 years and never had them increased.take them at night it’s an old antidepressant and it blocks the nerve at the end stopping it from travelling throughout my body...great nights sleep too and well, the small amount of antidepressant in it I see as a bonus...whyy wouldn’t we get depressed from all this..I use Osteo Panadol 1200 mg ever six hours it’s a slow release Paracetamol...over the counter..Over the years for SS I have taken many over the counter meds like artificial saliva and tears I had most of the fluid crystallised in my left ear and had vertigo 24/7 I couldn’t even step on a matchstick I would feel like I was going off a cliff it was that bad, the Neuro said it would just go one day..we’ll it did but 14 tears later and there was nothing at all they could do or give me....I felt truly blessed, someone behind me in church one day prayed a healing prayer over me and it just went,,praise God,,,dont know how I would have handled that as well as my knees..yes 2 of them bone on bone from arthritis ..grr,,the next one gets done in six months..I really hope you get something that will help you shaq really feeling for you..I’m in Australia so meds probably have different names..be blessed and have a lovely day😍😍😍🙏🙏

    • shaq26875
      shaq26875 christine26761

      Posted

      I was prescribed amitriptyline by an ENT Dr coz when was 1st diagnosed with SS I told him I got bad headaches and generally didn't sleep well at nights. I took the med. a couple of days and got paranoid I would get addicted to it smile    The effect was like going unconscious , 1 moment I was lying awake in bed getting ready to settle down and the next minute it was morning, the alarm had gone off and time to start the day  and I was still groggy and the thought of driving scared me . So I stopped . 

      ?For fibro I was prescribed cybalta (sp.?) but I think all my pains were SS so I didn't take it either.

      ?I am glad you are getting better now and coping with surgeries etc.

  • Lilfrank
    Lilfrank long56426

    Posted

    I’ve had a similar problem for years with my submandibular glands. About 10 years ago I had utrasound examinations and X-rays with contrast solution. They could not find any stones but saw that the ducts were very narrow due to stricture. I was asked to join a trial and had my first sialoplasty. It works in the same way as an angioplasty. A balloon is inserted into the ducts leading to the gland. It is inflated for a number of seconds a number of times in order to stretch the duct which enables the Salinger to flow freely. This works for a couple of years before the ducts narrow again and you have to go back for another.  I know that the operation is available for the parotid glands too.  I have now had the procedure 4 times all under local anaesthetic all performed by the wonderful NHS. If you are based in UK I recommend you ask your ENT to refer you to Dr Jules Dyer at New Cross Hospital in Wolverhampton who developed the technique, or at least that the ENT contact Dr. Dyer to find out if anyone in your area performs the surgery. If you are not in the UK google the procedure and ask your ENT to refer you.

     

    • Lilfrank
      Lilfrank

      Posted

      Saliva not Salinger 😂autocorrect 

    • Vette1
      Vette1 Lilfrank

      Posted

      Thanks for the info frank I will Google the procedure and ask my ENT. My problem is with my right parotid gland. Same here no stones or tumors just narrow duct & alittle debris. I had a Sialenoscopy this yr only last 2 months. Then my gland started swelling again. I really need a cure for this mess.

  • Jalanez
    Jalanez long56426

    Posted

    Yes, my face will swell too. I have begun to narrow it down to the foods I ingest and just how inflamed my body is from day to day, as well as how hydrated I am. Dehydration tends to make my face and eyes swell, I've noticed, much like those with a hangover..thus the dehydration conclusion on my part, along with other signs and symptoms I've noticed that go along with this swelling. What I have done to minimalize it is to make sure to stick a strict anti-inflammatory diet, cut way down on salt, and hydrate hydrate hydrate - inside and out.  It sounds awful at first but doing it more and more I am seeing the progress and feeling so much better. The sense of relief over little victories such as patches of dry skin and puffy eyes and face means everything in this battlewinkI hope this helps, take good care!

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