Symptomless LS but loss of parts

Mousy, just to help reduce your stress on this subject, try looking up the anatomy of the clitoris. It's asctually an organ as large as the penis and only the very tip is what we usually call the clitoris. Mine is now covered over, but it isn't dead.

Hello Mousy, it's lovely to hear from you although I'm sorry of course it's had to come about. You do indeed sound like me and finding such as you was the reason I started this thread, gosh, a year ago now because there are lots of other threads for those with fusing. I used the Dermovate diligently on my then white edged inner lips but they responded not at all and just got quickly smaller until gone. My consultant DID tell me that my clitoris probably would get smaller and to use the Dermovate on it too. It certainly is getting smaller with the Dermovate seemingly as useless for me there too and I still don't know what the final potential outcome of this could be. No one seems to understand that it ISN'T covered over at all but shrinking in actual size rather than by decreased exposure. I too just stopped having sex with my husband which has been highly upsetting in what has always been a deeply physical relationship (for 30 years too as it happens.) I should add that he's been wonderful about it and of course there is a lot more to our relationship and we still cuddle up and stuff but nevertheless it is a sadness for us both. I don't have answers Mousy, I'm still scared too. The prospect of not having a clitoris just seems too weird. It is not the same as still having one which is covered over even though I know that is distressing too.

Hi lenep. Some people with fusion have been able to reverse that and uncover their clit again. Similarly reform their labia minora again. But I know my inner labia are gone for good and IF my clit were to finally go the whole same way it would be true of that too. But I've never heard of anyone that has happened to and don't know if that is the potential scenario here. At the moment it is SIGNIFICANTLY smaller but I can still orgasm. I just don't know what to expect. I'll join you - Arghh! I KNOW the clit is just the tip of a much larger organ. But tip or not, if it does go as in GO, not cover, then that's blooming well it!

We have to keep working at it (litterally)..)

Hah! Yes indeed 😉. But joking aside (it's lovely to chuckle thanks) don't work at it too hard and irritate your symptoms or make yourself sore.

lenep I'm sorry I didn't reply to your first post on here. Firstly this is an old thread and no ones posted me here in 4 months. It's great though, well for me anyway because such as you and Mousy were who I was hoping to find. Secondly I wasn't absolutely sure how to answer your post because you mentioned 'half gone' with 'fused' so was still uncertain if you were like me or not. Anyhow I'm glad we've made contact.

Also dare I say - less can be more?! I can remember partners who scrubbed away at my clit and it would take me AGES to orgasm. I'm far more responsive to a subtler touch even as I am now.

Ha ha, i remember clearly those partners too!

Can you believe we HAVE these conversations?! ☺️

Yeah, at first I thought was fused as well,. After a good look I realised differently, so back on the forum again..to look for more posts.

sometimes I think, oh it must be back surely, I had as good night's sleep and no chocolate..but nope...😊😊

I too am symptomless and shrinking, not covering over. 

Currently my hood is shrinking and exposing the glans more. As Chrissy has noted this makes orgasm easier, which is a blessing in disguise as too much friction was giving me issues. 

Once tissue (the glans) is gone it is gone, however the pudendal nerve and internal clitoris will remain. I am able to stimulate the nerve at the prepuce of clitoris and the mons pubis to orgasm with either a hand or vibrator. This is what keeps me from losing my mind; knowing that although I may lose the extra sensitive tissue of the glans, I will still be able to orgasm.

At present (possibly forever) I am unable to have penetrative sex which means that avenue of orgasm is unavailable to me. 

 

Ah thanks so much for that Elle. As I don't have fusion or adhesion issues I don't seem to have any vaginal issues so far (I'm not sure I've ever actually orgasmed that way but always enjoyed penetrative sex.). Are you experiencing your vagina getting smaller then Elle? And if so have you tried the dilation process? My thoughts are with you and your worries whatever the reason X

I have vaginal atrophy due to menopause. I'm trying Vagifem currently but I'm not convinced it's a high enough dose.

The atrophy and LS are recent diagnoses. The past couple of times penetrative sex was painful and afterwards white plaques showed up on my vulva. I realize that it may be rather premature to assume penetration is off the table but I also have lichen planus in mouth and fingernails, both are mild. I think I have experienced two tiny patches of it on my skin. I am worried that it will eventually show up in my vagina or that the cramping I feel in my vagina is LP. I had a gynaecologist say all was well and it was simply atrophy, however I'm going back there in a few weeks to confirm this as I am not convinced. Dilation is on my list of questions given the swift progress of this.

Thanks for your thoughts. x

Ah thanks for sharing Elle. I'm just about through the menopause now, still the Caribbean Moments though. My consultant gave me a set of dilators as soon as I was diagnosed but I've not needed them. I'm just back from my doctor's today because I had a small lump in my armpit and I was anxious but it's just a sebaceous cyst. Phew! But a few things poured out of me today, one of which was the anxiety about my clitoris. He said it definitely wouldn't go completely which was encouraging but at the same time, really nice doctor that he is, we all know general doctors don't really know that much so let's just say I'm not 100% confident.