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Symptomless LS but loss of parts

Posted , 34 users are following.

ChrissyC
ChrissyC

Is there ANY one else out there who has LS in the way that I do? I've taken part on several threads but have really ended up feeling more alone than ever. I have NO symptoms and I do know how lucky I am not to suffer the way most people do. My inner lips just turned white and despite diagnosis and being given Dermovate they completely disappeared in around 2 years. And now my clitoris is going too. No itching, no fusion or adhesion. It is horrific to have nothing I can do simply watch helplessly as it goes. Has anyone else experienced anything like me? I feel quite the freak and so alone.

4 likes, 156 replies

156 Replies

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  • christina03355
    christina03355 ChrissyC

    Posted

    Hi I'm 48 years old and I'm noticing things have changed in my vagina my clitoris is not erect anymore and I have dryness on my hood and it itches and hurts ..what should I do..Is it because my hormones levels down Is this normal at my age. I do still grvmy periods..thank you

  • diana71766
    diana71766 ChrissyC

    Posted

    Not sure what is happening.afraid to look. I care for you and l know things will get worse.
  • nan1999
    nan1999 ChrissyC

    Posted

    ChrissyC, I was just recently diagnosed with LS and came across this discussion from 3 years ago. If you don't mind me asking, I was wondering if things have improved for you sexually? I was diagnosed a couple of years ago with VIN (vulvar dysplasia) and that was the beginning of mental changes I have gone through with regard to sexual desires and enjoyment - I was physically "fine" after removal of a couple of spots, but I have never fully recovered from the feeling of "less than" sexually. My husband is very understanding, but my lack of desire and enjoyment is a struggle for both of us. I haven't started treatment for the LS yet, and hopefully that will help some of my physical symptoms, but I don't know how to get past the mental part of it. I wondered if you have any advice in that regard?

  • debra53674
    debra53674 ChrissyC

    Posted

    Hi Chrissy, I finally found this site and I'm so happy I did. I thought I was the only one who had this. I don't have any symptoms just my outer and inner labia has completely disappeared and all I have left is a tiny bump where my clitoris is. I have no sex drive what so ever. And I've never heard of LS. What is it.

  • julia2017
    julia2017 ChrissyC

    Posted

    Yes, I have this too!!! What can we do?? This seems sudden but I think it actually has happened over a few years. Starting in early menopause. Have you any new news to add? I see your post is several years old.
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