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Apologies for posting on here, but I need some advise.

In 2004 i suffered from headaches, muscles & joint pain, weakness, skin sensations that lasted for 18 months. I saw the doctors on many occasions ant they said it was anxiety and stress. I was treated with various anti-depressants over that time and all the symptoms faded away.

10 years later in 2014 and over a period of 2 years I started getting chest pains which resulted in a few visits to A&E but each time all tests were OK and it was blamed on Anxiety. After a visit to A&E in January this year  I got really stressed and I started to get tingling in my feet, burning skin sensation that would come and go and move around my body. My GP recommended therapy and after a period of time the symptoms disappeared. I could never tell if the anxiety caused the symptoms or the symptoms caused anxiety.

This September the symptoms have returned again with intermitment vibration sensation in my legs, tingling feet and sore/burning skin on my legs, arms and shoulders (mainly legs). I'm not stressed like earlier in the year. I have changed GPs and had some blood tests which came back as Vitamin D was low and inflammatory markers are high.  I do currently have a cold.

I'm worried as to what could be causing all these symptoms and I'm due to have repeat blood tests next week.I feel it just can't be anxiety and I fear there is something else wrong. 




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  • Posted

    sounds like similar symptoms I experienced especially with the tingling and burning. Blood tests shows I was low in vit B-6. B-12. After taking them along with vit -D and fish oil all the symptoms disappeared.

    i don't know your health history but I was shocked to hear I was so low in these vitamins to have the physical symptoms along with nerve and tingling.

    mabe vit B complex B-12 would be worth testing. 

    Take care 


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    • Posted

      Thanks for the reply. I did start taking vitamin B complex tablet but stopeed taking them before my blood test as I didnt want to skew the result. As it was  my B12 was 581 (range 197-771). My vit D is borderline deficient.
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  • Posted

    Might be a good idea to have your doctor check your blood sugar &  A1c while he does your blood work.  Diabetes could possibly be an issue.  B12 is excellent advice.

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  • Posted

    Well sadly Stuart this sounds like a carbon copy of my life. I was diagnosed with auto immune disease 13 years ago after suffering a similar profile to you. I am now 53. Diagnosis took a long time. It was hard getting someone to understand what was going on. I have been b12 deffocient d defficient potassium defficient ....all of these things and more. But taking vitamin supplements while it may be generally helpful, never got rid of the disease for me.

    Problem is blood tests don't always show anything very remarkable. I have slightly raised esr and crp and believe ana was negative. I would urge you with those symptoms to try to get a referral to a rheumatologist. Your gp can't rule out or in an ato immune condition. A neutologist won't be of much use I feel. Vasculitus UK have a free helpline. A chat to them would help I feel and they could suggest some good specialists in your area.

    If you are having difficulty with your gp you could always pay for a first appointment with follow up on nhs.

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    • Posted

      Hi Stuart. Yes when I got joint pain things moved on for me. I got a referral to a rheumatologist who put me on the road to diagnosis. I have Behcet's. Very specific symptoms. But there are a variety of ai diseases. They have similar overlappibg symptoms with certain key ones which separate them.

      Don't be diverted by looking at my or anyone else's symptoms. You may think 'I don't have this or that'. Key is different for all of us. I know from my support group. We all suffer a myriad of different symptoms. We will have some the same others different. I know of people for whom bd only affects their eyes. For others, like me, it is central nervous system. For others it focuses on the joints. It totally depends where inflammation affects you. For some it is very mild and never gets worse. All kinds of scenarios are possible.

      But getting a proper diagnosis is definitely life changing. Treatment has improved my quality of life dramatically. I am running my own business, disease is well controlled. I have a social life again. Diagnosis is not always the end of your world. Sometimes it is a new beginning. If you can find a med that gets your symptkms under us great again.

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  • Posted

    Hi Stuart,

    Proper diagnosis is difficult because different diseases have symptoms in common, blood test results in common...often time it is initially a process of ruling out what you do not have ...and if I could collect just a pence, a tiny penny from each person labeled hypochondriac with psychosomatic illness when in fact they had true illness I could treat everyone to a lobster-prime rib dinner!

    Sometimes it is a new symptom that defines the specific disease.

    Perhaps you will request a referral to a rheumatologist

    In the meantime, keep a dairy of your symptoms and laboratory results ..the answer will become obvious in time.

    kind regards


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