Symptoms after hyper to hypo Smart thing HUBS

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Hi Friends,

Intailly I used to get headache, My MRI scan of Brain and head were fine, later my blood reports showed that I was a hyperthryoid.

I was a hyperthryoid Patient till May 2015, then doctor asked me to undergo RAI treatment .

I took 10mci RAI pill on May 11 .. After two months of that treatment with new boold reports doctor told that my thryoid has gone and now you are hypothryoid patient , and asked to take the pill thyronorm 100mg daily  .

so I tarted taking the thyronorm pill from August 1st .

But still I feal lightheaded, I feal more headedness when I bend or shake my head. Doctor told after few months you will feal normal .

I dont know am not getting hopes for his words .. due to this am not able to concentrate on work .. almost my 1 year profession carrier has gone. 

Am getting demotivated due to this and my work performace becoming weeker. Please suggest any alternatives..   

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11 Replies

  • Posted

    Hello Rajesh:

    My name is Shelly and  I am a nurse in the USA.  I have Hashimoto's thyroid disease, which caused Hypothyroidism.

    When you take the RAI it destroys the thyroid gland and all thyroid tissue.  It will not grow or come back!!!  You will of course turn into Hypothyroid and need replacement Thyroid hormone like Thyronorm (AKA LEVO).

    It can take the body about 6-8 weeks to make a proper blood level and in some people it can take 3 months!

    It is slow process & the body is slow to make a level.  As time moves on you will need to do more blood to see how your level is and in most cases you will need to have the medication adjusted.

    It will improve in time. Give it a bit of time. Now make sure you take a very good multivitamin with iron and take that with food. We need our minerals and vitamins in good shape so that our thyroid meds will work.

    Please take your Thyronorm about 1 hour before any food.  If you have food in your tummy it will block the thyronorm from working.

    I know how you feel and soon the medication will start working and most of the symptoms will subside.

    I hope this helps, let me know how you do.

    Shelly

     

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    • Posted

      Hi Shelly, Thank you very much for your reply and for the positive note .. seems like I need to take this " Thyroid hormone Thyronorm for my life time . Will it be a any problem in my future life ? whenever am taking this tablet I feel like what if this cause a some other problem in the future ..  
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    • Posted

      HI Rajesh:

      Yes, you can live a good life on the thyroid meds.  I was 27 when I got diagnosed and I am 54 now.  Please take the medication so you can build a level and then the doctor will test your blood again.  As long as you keep the level good you won't suffer the bad effects of  Hypothyroidism.  We need this hormone to keep our body well.  You are not alone.  Many people have it 

      Any questions just ask.

      Shelly

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    • Posted

      Hi Shelly

      Does the RaI always cause hypothyroidism or does it depend on the dose of RAI?

      Do you know if the dose is worked out by the persons weight?

      Lucille. (Lucy)

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    • Posted

      Hello Lucy:

      RAI is used mostly with people who have Hyperthyroidism,( TOO MUCH THYROID HORMONE), or thyroid cancer, or nodules that are fast growing in the thyroid. 

      RAI will kill off  (DESTROY) the thyroid tissue and make the person's thyroid not work.  The idea is if you are having Hyperthyroidism and the bad effects of it, this will stop that, and medication can be taken to replace the hormone. It does work but it takes time for the body to adjust, like anything new you take.

      It is most likely based on weight and is given by a Radiology person. After the treatment the person can be radioactive for a short time, and after urination, feces, they must flush the toilet twice. They need to drink fluids to help flush the body. They may have a metal taste in their mouths and feel tired.

      After a few days and in some about a week, the person has excreted all of the radioactive material.  The person will have to start thyroid replacement hormone as the doctor directs. It takes about 6 to 8 weeks to build a level.  The doctor will test the blood level until they get a proper level they will wait about 3 months and then at 6 months, etc.

      I hope I helped you. Any other questions just ask.

      Shelly

       

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    • Posted

      Dear Shelly, Due to this  lightheaded ness and  pressure behind eye , am not able to concentrate on the work, so its effecting my this year performance .. I am thinking to meet the doctor again .. but the problem is I have taken the Thryoid mediice from iINDIA from one of our known doctor and now I am South Korea .. I will go back to India in FEB 2016 , so shall I wait till I go back to India or consult doctor in South Korea ..? I am little confused .. please help
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    • Posted

      Hello Rajesh:

      You should see a doctor in So. Korea as a number of things can cause dizziness and feeling light headed.  Sometimes it can be from thyroid meds and can also be from a low Red Blood cell count.  Medical people all around the world are capable so I would see someone while there.

      keep me posted,

      Shelly

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    • Posted

      Dear Shelly,

      I need some more suggestion to get my health back .

      Its alomost 8 months after I started taking thryronorm for hypothryoid (as I was hyper before RAI) .

      But still my headache is not gone . I had recently blood check all my blood count are normal , only TSH level is littile low . 

      So I had the MRI scan for brain and neck part, in the report everything was normal .

      But Still I dont know what is causing my headache, my doctor just told change your life style but my life sttyle is simple am a vegetarian and I dont smoke or consume alchohol, but I stopped exercize after thyroid and headache attacked me , so am clue less for what do now.

       

      I feel headweight  if I suddennly get up , and I can not find proper postion for sleep, I feel small headache at back of my head if I try to lift my head from pillow

      I always feel I have headache if I shake my head or If suddently get up or bend my body . 

      And once in a 15 days or 20 days I get more headache(expecially more pain in the back head, it does not go till I take some pain killer .

      This headache is killing my professional life, form last one year lot of de-growth in my professional life .

      I need some clue to get rid of this , I started loosing confidence in life.

      Regards

      Rajeh 

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    • Posted

      Hello Rajesh:

      A few things should be looked at.  First is something called Orthostatic Blood pressure (BP) changes.  Some people can have wild BP changes from lying down to standing or sitting.  Some places will give you a BP machine and you can test it yourself or you can buy a machine.  It can cause bad headaches to occur if your BP is changing fast when you move around. Move slowly and get up slow and don't shake your head. A GP doctor can test you and take your BP in a lying down position and a sitting position and a standing position.

      Secondly,  is allergic reaction to a med or food or some other item. Some people get awful headaches like migraines from allergies and if it started recently after your thyroid medication, it could be an ingredient in there.

      Thirdly,  have a Ear & Nose  doctor look for an inner ear problem. Balance goes hand in hand with your inner ear. Headaches can be from an inner ear problem and you can feel dizzy or woozy like your head is made of lead.  Many people can have it and it can be treated.

      I am glad the MRI was normal because you do not want an aneursym at all.

      Also make sure all your minerals and vitamins are okay.  This means you should have a potassium, magnesium, sodium, calcium, Vit B-12 and Vit D checked.  Low levels of  any of the above could also cause headaches to occur.

      Another thing to consider is your adrenal glands.  Some blood cortisol levels can be off as being Hypothyroid.  It is a simple blood test and can show how your adrenal glands are doing. This can also cause headaches if too high or too low.  Ask for a blood glucose test because if that goes too high or too low headaches can occur. 

      If you can get a referal to a Neurologist as they deal with the head and some people can have nerves in the head get constricted and that also can cause problems and they can do an Electroencephalogram and it can show a lot about the nerves and I recommed it.

      Please keep me updated on how you do, hang in there and let's solve this.

      XO, Shelly

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    • Posted

      Hi Shelly,

      Thanks for the details .

      Which specialist Shall I consult as a first step ? as my endocrinologist told that  most of the things looks fine .. so I need to consult other specialist . 

      Rajesh 

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    • Posted

      Hello  Rajesh:

      Some things like BP and blood work can be done by your GP. All of the blood work above should be done.  Allergies & Neurologists you may need to see a consultant first.

      So proceed with getting to see the consultant, and keep me posted on how you do.

      Shelly

       

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