Symptoms after PE's
Posted , 5 users are following.
Hi
I had pulmonary embolisms in both lungs in November and then had Pneumonia a week after discharge from hospital so was back in again.
I have been out of hospital for 7 weeks and although I do feel better in some respects (I can now walk and eat etc) but I am getting some symptoms that are concerning me, although I have been to the gp and see her nearly every week.
I get a chest heaviness that comes on randomly, the feeling of rapid / heavy heartbeats, disorintated and feel wobbly, catching of breath and then the feeling of can't breathe properly.
Does anyone else have or had any of these symptoms?
Debby
0 likes, 28 replies
lizzie70061 debby01
Posted
Hi Debbie . At last someone that's like me.Yes I have this heavy feeling in my chest. As if something pressing down on it. Irregular heart beat at times. Doctor said not palpitations. Please can we chat . I am sure people think it is my imagination. My PE was in August. When was yours. lizzie
debby01 lizzie70061
Posted
Of course we can chat. I too think at times that people think I am imagining some of the symptoms.
My PE's were diagnosed in November
Windy8000 debby01
Posted
My PE was found in Oct and I still have good and bad days. I am thankful for this chat group because it's the only place that understands and doesn't think I'm making up these symptoms!! I've had Drs laugh at me. Think I'm over researching. I did find my medicated inhaler helps with some of the pain.
I have my 2 day stress test on Mon and Tue. The also drew blood to send to North Indiana lab for a clotting disorder I should have results by next Thur.
debby01 Windy8000
Posted
Good luck with the stress test, and I am glad you getting the blood test for a clotting disorder.
lizzie70061 Windy8000
Posted
I only found this forum yesterday. Made me realise how many people have suffered PE. It is very scary. The doctor's mostly go by information they get from us. It is so hard to describe sometimes. How long have you been on blood thinners. Nose bleeds must be scary.x
debby01 lizzie70061
Posted
These last few days have not been good for me, am hoping that it will pass.
I have been on blood thinners since November
lizzie70061 debby01
Posted
debby01 lizzie70061
Posted
Do you find that the Citalapram helps?
Take care x
lizzie70061 debby01
Posted
Thanks Debbie yes just 20mg and I can cope all day. But this recovery is taking its toll. I think it is just that you don't know what is going on inside your body and when it will get back to normal. you take care too. xx
debby01 lizzie70061
Posted
I know how you feel. These last few days have been horrible and at times I feel worse then when I was in hospital, it is so worrying as you don't know what is going on and if these feelings are all part of the PE's or is it something else.
Roll on normaility x
graceofgod debby01
Posted
hello there, anyone still following this thread? I wanted to know how others are doing, + 3 months post PE. I am only still in week one... but I'm feeling ok, just very tired and still a little breathless. Dreading the thought of going back to work -- even though that is only in a few weeks. I feel like my priorities have changed completely. Did this happen to anyone?
debby01 graceofgod
Posted
Hi
I was diagnosed in November with large bilateral pe's, 5 months on and although I feel alot better and can do things I still get a little breathless and have right heart strain, get good days and not so good days.
I am still going for tests and had another echocardiogramme today.
I get very anxious and this has come on terribly since the pe's.
Listen to your body it has gone through a trauma and needs time to recover. Don't worry about going back to work and if you are not ready then you need to take more time off. I don't know how many/large your pe's were, but it takes time to recover from this. No-one can say exactly how long as everyone is different, some say months and others say a few years to fully feel better.
Listen to the consultant, doctor and your body.
Take care x