Posted , 3 users are following.
Hi I’m new to here, and just been diagnosed
My question is that my symptoms come and go 1 good week and then a few days of being exhausted , every limb and joint hurts, bowel movement is off and on muscle cramps etc etc
Does anyone else have symptoms that come and go, I’m confused .
0 likes, 4 replies
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ellen12819 Rabc
Posted
Rabc,
Hello I am now in maintenance and was so upset to realise I will always get the odd day or two when I am confused, badly fogged, aching and stomach yuk. But once recovered from the continual venesections it does become less frequent. I went six weeks feeling like I was well before I had a day of sounding like a thick imbecile and looking drunk. I thought I was getting dementia and was scared. Now I know it is a thing that like the exhaustion etc will come and go, I will cope and rest on a rough day ... and I am not scared now I know. But we won't get the other stuff if we didn't have it before diagnosis, we will be okay. Take care. Ellen.
Rabc ellen12819
Posted
ellen12819 Rabc
Posted
Rab, some hospitals check the liver first, others don't unless there are distinct pointers to a problem. You do not neccessarily have a liver issue .
Depression is a known part of this for many. Lets face it we can't say it spell it or say we knew about its existance until we got the thing. We are alowed, even expected to wobble.
You have honestly done the hardest part ... getting diagnosed, being believed. You need to take a breath get some antidepressants in you if you need them. Double your water intake (it seriously helps) and know People are waiting to know how you are. Good luck.
miller.jones Rabc
Posted
Not sure if ellen12819 is joking or not but to put tag on you with depression and suggest going on meds is very wrong also the double water thing she has no idea of your history so pay no attention.
You just sound stressed which can cause the symptoms you have described you need to relax.