symptoms of arnold chairi
Posted , 5 users are following.
Hello there i am new to this fourm , i have had chairi for a number of years but suffer from many symptoms am just wondering if anyone else has sufferd the same ,
legs giving way and end up collapsing but am concious,
pressure feeling above eyes,
warm weather brings on my symptoms,
spaced out feeling ,
no headaches tho ,
just sense of feeling there odd and not with it like been drunk but not .
docs have given up on me and say if i want the op i could have it but they think it will not help but i can have it if i want , this has been going on years now am total loss of what to do ,
so any help or if people have felt simliar would be nice .
man thanks hannah
0 likes, 6 replies
brendab hannah70156
Posted
paul_85807 hannah70156
Posted
I've suffered Chiari since 2011 and I've collapsed 5 times now the last being in January this year which lasted much longer than before .
When I collapse like you I am conscious and all my body shuts down leaving me not able to speak and dribbling , then have a thumping headache more than normal.
Back in 2012 the neurologist said it may never happen again and the diagnosis was Chiari 1 malformation .
The weather has never affected me and yes sometimes I do get an ache behind the eyes.
I do get very dizzy and drunk like and feeling like you are spaced out .
I'm awaiting to see the neurosurgeon once all the test results have come back to the neurologist, if like you I would jump at the chance to have the OP.
Talking to very helpful people on this site has confirmed answers to my questions and one was whether the OP can help and be successful . The way I see it is an opportunity to have a chance to lesson the pain or symptoms you're suffering now
paul_85807 hannah70156
Posted
Sorry about that my shaky hands managed to post before I'd finishes the conversation.
Do you have a neurologist assigned to your case as they are rely helpful if you state how you are suffering as there are so many symptoms to CM and some bring on other symptoms and lead on in my experience we are all different but have some similarities .
I hope I have answered some of your questions and please do stick with the fight to get better as it certainly can get you down I find talking to lots of people with the same condition rely helps as they know what your going through do take care Paul.
hannah70156
Posted
Hope255 hannah70156
Posted
How long ago were u diagnosed with chiari? R the doctors (neurologists) that u r seeing, r they specialist on chiari?
If u r having the symptoms that u listed, they r just the beginning, there will be more to follow and the ones u have will get worse.
Why r these doctors giving up on u and telling u that the decompression will not make u feel any better?
b2wc97455 hannah70156
Posted