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symptoms of Lichen Planus

Posted , 5 users are following.

raeann35838
raeann35838

Ok everywhere I read it says Lichen Planus is suppose to be itchy and painful, well my shoulders back arms and legs have the spots on them but do not itch. ANYONE Else Ever have this happen with them?

0 likes, 5 replies

5 Replies

  • jae21633
    jae21633 raeann35838

    Posted

    I think it depends on what type you have. They're not all the same. I have EDP/Ashy Dermatosis/Lichen Planus Pigmentosus. It doesn't have any symptoms. It just shows up as dark patches. Mainly asymptomatic. Just looks terrible
  • Currumbin
    Currumbin raeann35838

    Posted

    No, sorry,  My lichen Planus for 6 months had no NAME to the spots or the terrible itching all over my body.  that is why general doctors and specialist label the spots some many different names and handed out endless pyscriptions of creams, etc to cover my whole body with... BUT... none worked and actually the side effects of these many creams increased the itching and the reddness. 

    SO it was not until a GP deceided to take the biopsy which will at least identified the part of the name of the illness.  but NOT ALL THE NAME>

    There is very limited researched on the various types of Lichen Planus... so the LABEL is missing parts of the name. 

    take care and good luck with your spots.  (PS  the itch is terrible as many suffers will tell you... so you are blessed not to have the itch)

    Are you from Australia or in Australia?   I am trying to get a group going here in Australia so we may actually meet once or twice a year to share our stories ) 

  • Jeepers
    Jeepers raeann35838

    Posted

    Hi Raeann. My LP has virtually subsided now but I had little  red hard spots in various places, which didn't itch. The only places that itched were scalp and patches behind my arms above my elbows ( white shiny bumps close together)  and boy did they itch! Only clobetasol could soothe these.

    Happy to say my kind gradually went after two years, though the little red spots took longer to fade and a couple of my nails still crumble and split twelve years later.

    Unfortunately I progressed to lichen sclerosus. sad

    • Currumbin
      Currumbin Jeepers

      Posted

      Hi Joodie, I am so sad to hear that aftern 12 years you went into lichen sclerousus.

      May i ask the elbows description did you have at that period of time with those markds a medical biospy?  done to identify the medical illness.  ANd in the period of time you healed and lived life, did your stress increased or was there a notable health issue that may have contribuited to lichen sclerosus?  thanks you from   currumbin! 

    • Jeepers
      Jeepers Currumbin

      Posted

      I had no biopsy Currumbin. Did you?  My dentist first diagnosed mild OLP before I even  knew I had it and it was confirmed at maxillofacial unit at hospital, then gradually the LP moved in in several different forms and from place to place over my body. I saw pictures online which looked exactly like the patches above my elbows. If I leaned my lower arms on the soft arms of a chair at home or on a  train seat, that triggered the itch even though that part of my skin itself was not in contact with the furniture. Strange.

      I don't recall any specially extra stressful times then, or when the LS appeared, but had come off HRT not long before the LP, and used to wonder if that contributed to it as the sudden drop in estrogen does stress  our bodies.

       I used to go to the gym then and suspected that too, wondered if I had picked up some bacteria from sweaty hands.... what our minds think of when without direction, eh?  My

      LP cleared up  in about 2 years. I had read it might, so expected it to, and it did -  closely followed by the onset of LS which I did not expect ! and have now had for many years. ( I just call the ongoing nail damage  a lingering effect from my old LP days as to me now, being used to it,  it is insignificant.)

      I do believe that stress can be a contributory factor of many illnesses, but the majority of us who get stress in our lives do not also get LP and/or LS. Maybe one day we will find out  what causes it.

       

       

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