Posted , 3 users are following.
I have vulval lichen planus and I'm also seeing a consultant about eye problems, which he has diagnosed as Ocular Rosacea. However, I didn't realise at the time that lichen planus could affect the eyes and didn't mention to him that I had this. Does anyone else have lichen planus of the eyes? If so, what are your symptoms, please?
0 likes, 12 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
karen41728 Cheetah
Posted
Hi cheetah
I have LP, it affects mucus membranes, my eyes have bothered me for some time now, one of them constantly waters, it's so annoying and they feel sore and tired, I'm 60, how old are you
Cheetah karen41728
Posted
I'm 72, Karen, and my eyes feel like that, too. I have to clean my eyelids in the morning and then try to keep them comfortable with eye drops, which the consultant prescribed. But they're always red, tired and sore, like yours. I do have Rosacea, so his diagnosis was understandable - and may well still be correct - but when I see him again in December, I'll certainly mention the lichen planus to him. Have you seen your GP?
karen41728 Cheetah
Posted
No I haven't cheetah, just seem to have one thing after another lately, you get fed up with it, I hope the drops help.
linda32054 Cheetah
Posted
I have vaginal LP and also oral LP and yes my eyes bother me all the time. I have severe dry eye. I use drops 10-15 times a day and lubricants at night with sleeping goggles too. I have been diagnosed with Sjogren's which attacks all the moisture producing cells in your body. I have not asked the eye doctor if I have LP in my eyes but I plan to at my next visit. I suppose they would have to do a biopsy to be sure. UGH! I really don't look forward to going through with that.
I'm 73 years old and have autoimmune problems since my 30's. Guess they just get worse as we age.
Good luck with your eyes.
karen41728 linda32054
Posted
Hi Linda
This LP is a nightmare seems to get everywhere, every problem I have I blame on that, I was diagnosed about 15 years ago but didn't show any symptoms then it's only later after the menopause it develops over time, my dentist found it and sent me for a biopsy, really didn't even know I had any problems then, just these last 5 years really, also around that time 15 years ago I had colposcopy for abnormal cells after a smear test, caused by a virus, hpv, which just lies dormant when we are younger, I thought getting rid of them cells was the end of it but it isn't, so the two are connected, when was you diagnosed Linda with OLP? Did you have problems in the past with smear test.
linda32054 karen41728
Posted
Praising God for that!
karen41728 linda32054
Posted
Hi Linda
Isn't a colposcopy to remove abnormal cells
karen41728 linda32054
Posted
linda32054 Cheetah
Posted
Hi Cheetah,
Thanks for asking...I was diagnosed with Lichen Sclerosis of the vulva about 10 years ago and it has pretty much burned itself out. I only use Clobetasol about twice a week and it keeps it under control. As far as the OLP I was diagnosed about 18 months ago with a biopsy ordered by my dermatologist. I have been through countless medications for this disorder and none work very well except the systemic drugs which are great, but they have many side affects which at this time I'm not willing to risk - so I just keep away from the food that irritates my mouth and use topical medications
This disease is pretty awful, but yet each day I feel thankful it's not something terminal which many of my friends are dealing with.
Bless you and hoping you can find some relief.
Warmly,
Linda
Cheetah linda32054
Posted
Ten years, Linda? My dermatologist told me it usually burns itself out in two years, although I have had it for about 3 years now! I've recently had a flareup and have a persistent area of inflammation that I'm trying to get rid of, following her regime of Dermovate daily for a month, then twice a week for a month. When I saw her in May, she discharged me because all the inflammation had gone. Four weeks later, it came back! On discharging me, she told me to use the regime again if it came back and continue to use the moisturiser all the time. I did wonder about using the Dermovate twice a week to keep it at bay - it seems sensible to me if it's just going to keep coming back. Do you think I should see my GP about it, or just do that? So frustrated! However, you have given me hope that if I can control it for 10 years it might burn itself out!
karen41728 Cheetah
Posted
Do you have oral lichen planus too
Cheetah karen41728
Posted
No, I don't, Karen, thankfully. I know it can spread, though, so I've told my dentist and hygienist about it.