1. Community
  2. Gut, bowel and stomach
  3. Ulcerative Colitis

Symptoms of proctitis spreading?

Posted , 4 users are following.

filbyvic
filbyvic

Hi, I'm new to this group. I'm 35 and was diagnosed with proctitis 2 years ago.

Started on pentasa 2g once daily which has kept everything fine until now. Have been getting pains in the right upper part of my abdomen. Scanned for gallstones , all clear. So they think poss disease may be spreading so might have to have another scope If it doesn't resolve sad.

I'm also just in my first flare since diagnosis. Blood mucus and diarrhoea. I've doubled my pentasa and they've started me on asacol foam enemas (now that was uncomfortable!).

So just wondered if anyone else had proctitis that spread and what symptoms they had although I know everyone's different esp with this disease.

0 likes, 3 replies

3 Replies

  • wunder3
    wunder3 filbyvic

    Posted

    Have you tried oil of oregano? Bee propolis? Boswellia? Lglutamine powder? Vit D supplements? Are you taking your b12 shots? These are the things that have kept me in remission 
  • wunder3
    wunder3 filbyvic

    Posted

    Low Fodmaps diet may further help, keep a food diary and record your individual reactions to food. Remember to always take probiotics. Hope you feel better
  • looloo43
    looloo43 filbyvic

    Posted

    Hi, i started with proctitis several years ago which worsened to ulcerative colitis(affects more of the large bowel). just wondered if doc's have done a blood test for you to check liver function as pain in upper right abdomen - they should do this regularly liver & kidney function when you are on most of the different meds prescribed for proctitis or ulcerative colitis.  also a scope, although unpleasant, would be a good idea for confirming whether it has spread further round the bowel & help decide if the medication you are on is the most suitable. i have been through all this myself so know it can be frustrating & worrying. blood,mucus,diarrea alternating with normal bloody stools, urgency to go to toilet & feeling of incomplete emptying, excessive tiredness & constant stomach pain, waves of nausea are all common symptoms of colitis.  If it has progressed to ulcerative colitis(uc), which it sounds like it possibly has, try to avoid excessive stress, & vegetables with skins, leafy salads (iceberg lettuce ok!). if you do eat veg like tomatoes, peppers, potato skins -  chew it up properly before swallowing. there are lots of meds available, i am currently on my 4th one in 3yrs waiting to see improvement.  some work for  a while, & then it flares up, my latest flare triggered by excessive stress. i am now trying the same med(ipocol) as my mum who also has uc, she has been on it for 13yrs & has not had any major probs for last 8yrs. many of the meds are same ingredient - mesalazine, but in different forms, have different coatings, disperse differently in the bowel, so one med can make the difference to one person & not another its trial & error. give any med you are put on at least 12wks chance before discussing with docs changing med, unless you are getting worse, they dont work quickly sadly.  good luck & take care, would be interested to see how you have got on, please post back to group.
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.