Symptoms of reflux with 0% ph study

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Hello, I'm in dire need of any help with my acid reflux symptoms.

I was first diagnosed with barratts oesophagus and acid reflux back in 1996 at the age of 25.

Up until the age of 41, I had coped with taking ppi's which worked great.

I then fell ill with bowel issues spending 12 hour sessions on the toilet for 6 months. After numerous tests, it was found that it maybe ppi's that were causing, so I received a laporoscopic fundoplication.

For 5 months, things were great, no ppi's and no acid.

Slowly over time, my acid came back, with ppi's seemingly having no effect anymore.

So after spending a small fortune on specialists and a professor from Harley street, I finally found a surgeon who would carry out a second laporoscopic fundoplication back in January of this year.

He completely made another wrap and fixed a hiatus hernia.

Within 2 weeks, acid symptoms were back, and have gradually got worse month over month, with back pain, neck pain, and pain around lower rib cage on right hand side as well.

Loads of tests have been carried out, all bloods, ct scans, and mri's, ok.

Just had manometry which I was told I had a weak valve, barium showed splash back, endoscopy showed no barratts but I had grade a oesophagitus but my PH study showed 0% reflux.

My surgeon has said that no more can be done as I have no reflux but my symptoms of burning are causing me so much pain.

My mouth is full of sores, constant yellow tongue, tongue is constantly knumb, chest is sore to touch.

I no longer have any idea what to do, all I know is I'm in constant pain with no way to improve the situation.

Would appreciate any help.

Thanks. Wayne.

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4 Replies

  • Posted

    Hi I'm so sorry to hear of your symptoms you are going through especially after having an NF completed twice. I hope someone on here can give you some advice as needed.

    You mention you had Barretts oesophagus many years ago and recently there was no trace of it? I didn't think Barretts was reversible and having underlying barretts myself was wondering is this possible?

    Thanks, Ian.

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  • Posted

    Hi Wayne

    It sounds like you are having much discomfort. I can only add one thing and that would be to try and keep stress levels down. Stay calm and maybe focus on eating habits and excercise. It made a big difference for me.

    All the best to you!

    Piet

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  • Posted

    Omg my heart goes out to you.

    Could u consider the Linx device? Is it possible as u have had fundo? I'm not sure but maybe worth looking into.

    I also agree that diet modification is crucial and keeping stress levels down. I've just had a mouthful of mango lassi (yogurt drinkk) and I have reflux now. Dairy is definitely a culprit for me.

    Low carb diets have proved successful for GERD sufferers.

    Dgl licorice and licorice tea has helped me.

    D limonene is another supplement you could research.

    Raise bed 8 inches (big help to me).

    Digestive enzymes may be worth a try. Especially due to being on ppis so many years. You need to address your gut health. Have u tried probiotics. Fermented foods such as kefir and sauerkraut are good to get probiotics. Start on small doses and build up.

    Do u smoke and drink? If so you must stop as these weaken the LES muscle, as does chocolate, spicy and fatty foods. All the bloody tgingss we lovee.

    Look, I wish you all the best

    Feel free to ask me anything

    Regards

    Dom

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  • Posted

    Hi. my brother has a constant bitter taste in his mouth. Some doctors told him it might be bile reflux, but one doctor told him that it may not be bile at all, and it's irritable sophagus which gives pain and burning in his throat and bitterness in his mouth. Irritable esophagus is due to stress and emotional issues. Don't know if it's related to your condition but it may be. Ask your doctor.

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