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I feel like I'm on an episode of Dr. House because no doctors have been able to determine what is wrong with me. I have spent thousands of dollars and so many hours with multiple doctors over the last year and I am so frustrated because my symptoms are getting worse and I still have yet to get any kind of treatment because I haven't been diagnosed. We have got through all basic tests for cardiovascular issues and are about to move onto neurological, but something is telling me this is definitely cardiac related. So, here are a list of my symptoms as well as the tests I have had done and potential diseases/syndromes my doctors have considered.
High resting heart rate of about 100bpm. This is while sitting/laying. When standing, it goes to about 120. Simple tasks like showering, walking up a flight of stairs, walking 20 feet, speaking for a period of time can raise it to anywhere from 120bpm to 175bpm. I keep a log of these changes and my associated symptoms (fainting, numbness, etc) that come with the tachycardia.
Fainting/Blackouts upon standing and after a period of time on my feet. This happens about once a week. I could be standing for 10 minutes and all of a sudden collapse. I usually catch myself and recoup before falling to the ground.
Numbness/Tingling in hands and feet Especially first thing in the morning or when raising arms above head. It feels like my hands are asleep and will last hours at a time.
Pooling of blood in legs when standing After showering or standing for more than 10 minutes, blood will pool in my lower thighs around my knees and my feet. This will turn the areas bright red and swollen and only goes away once I have laid down.
POTENTIALLY RELATED SYMPTOMS:
Extreme Fatigue I could sleep 18 hours a day and still be tired. I sleep about 8 hr/night on average and have always been tired throughout the day, but this is getting much worse.
Weight loss I have lost about 80 pounds since November 2017. I am a 22 year old female, currently 6' and 168 lbs. I have stopped eating as much and been prescribed Adderall, but I am now unable to gain weight when trying.
EKG - Normal (laying down)
ECHO - Normal
Blood Pressure - Normal (Average 115/80
Will be performance Laying to Standing Test today to potentially diagnose POTS.
Bloodwork - Normal
Please help me. I am open to any potential ideas about doctors/tests/conditions. I know something is wrong but I am so frustrated that these tests keep coming back normal. This is not how I want to feel living my life. I can't exercise, walk up stairs, go shopping, or do anything that require even a little effort without feeling faint/having horrible tachycardia. I just want to get a diagnoses so I can get treatment and go back to enjoying my life.
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