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Hi sine i have been 23 years old i have been getting ill every few weeks. My mains symptoms are fatigue, i suffer with painful neck and shoulder and hips, and knee. I am in constant pain with this and take reg tramadol.
When i get a flare up, i feel run down, sore throat, runny nose, all over joint pains like flu, and i crash, i literally am floored . I find my legs and arms become weak and lethargic and i have no energy. these crashes were happening every 3- 5 weeks, and if i did anything strenous like gym, etc then i would crash after few weeks. This has got worse lately, and after a crash, i feel fatigued for 6 weeks, mostly during the mornings, i also feel flat, no energy, feel low in mood, low motivation. Then all of a sudden i will be fine again like the flick of a switch.
i am under a consultant rhematologist. My compliments are low and my immunoglubulin m raised, I have had loads of test, Ct, scans, etc.
i do suffer with irritable bowel, and do get raynaurds when cold.
I actually thought this was chronic fatigue syndrom as it does seem to be related to what i do. i can manage to walk dog daily, do light yoga 1 x week and i horse ride 1x week. But if i was to do high energy stuff- then i become ill.
i always get ill on holiday abroad, i get sooooo tired that i have to go bed by 9pm, i also am ill and drained when i get home.
swimming used to make me ill too, 1 week later i would have same symptoms of feeling like i was run down, i also feel freezing when i have a flare up.
so basicallly i get flare ups every few weeks, slight sore throat, runny nose, feel freezing, lethargic, fatigued, headache, fluey joint pains. i never have a rash.
i wok full time, but when i have a flare up i am sent home from work.
I have cut down on my activity over last 7 weeks, and not had a flare up since, which definately shows the link to activity.
my consultant wonders if its SLE, but i dont have the realtaed symtoms.
i still wonder if its CFS
he has referred me to a immmunologist now to see if he can shed any light on things.
just wondered if anyone else has these symptoms, i know nothing about SLE, but can someone tell me what the symptoms are
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