Symptoms started appearing 1 months after taking antibiotics and it is progressive

Really sorry to hear about your suffering , it's horrible hearing about other people effected by these things :-( , I hope and pray your symptoms subside in time. 🙏🏻

Out of interest , how long did it take for your symptoms to manifest?

Does anyone on your medical team actually admit that it is CTS?

These drugs are crazy , I'm shocked that they are still prescribed by GPs and not restricted to Hospitals for emergency use only.

I'm terrified now that this is a taste of things to come for me :-(

I don't seem to be reacting too badly at the moment and the ADRs seem mild to others all I can do is wait, keep active and takes good multivitamin as well as bath in Epsom

salts for the mag uptake.

I'll keep you guys posted as the days and weeks progress.

Some good news , the pain in my legs had pretty much gone this morning , hopefully it will stay that way throughout the day.

Take care all of you.

Alex

It sounds like you got hit with a really horrible set of ADRs really sorry to hear that. It seems to me by what I have read so far that some people such as yourself get hit really hard and others no so much.

I think all I can do is wait and take care of myself. I am today starting to take a good multivit and also Glocosamine for my joints and tendons. Also I've heard that a bath in Epsom Salts is good for Magnesium uptake.

I also need to get some probiotics to get my gut bacteria started again.

Will let you know how I get on.

Have the medical profession not been able to proscribe anything for your pain to at least give you some respite? I know that opioid painkillers are not ideal but I seem to recall PloddinOn saying they helped, maybe they would work for you?

I'm at the stage now where theoretically any free floating Cipro should be out of my body and it's now just a case of seeing what damage it has done. To say I'm scared is an understatement , hopefully by stopping when I did and by taking proactive measures I can stop the onset of any nastier ADRs? Pray God I can. :-/

Also I think that steering clear of any FQ antibiotics in the future is a good idea , and not taking NSID painkillers as these seem to set the CTS off in some people.

I'm not sure what else I can do or any of us for that matter.

I'm so sorry that you have been disabled by this stuff , I hope and pray you will heal in time.

Thanks for the friendship and support from everyone here , it's good to know I'm not alone.

Bless you guys , I'll keep you posted how today goes on.

Regards,

Alex

I'm really sorry you are suffering so bad too Jane. Hopefully time will help..it's very hard to remain hopeful though but time did it for me and I did nothing extra to help. I just rested a lot and I can only be on my feet for about 30 mins now, as the tendons all still ache,,plus my calf muscles hurt and have all wasted away. I lost a lot of weight; then gained it and the lost it again. I'm down to 7stones now and it's a struggle to eat...but my appetite has always been the first thing to go, when I'm worried or stressed.

Alex, good to hear that you are already taking some measures to help, though I'm not sure anything really helps but to be proactive is a good thing, absolutely.

The docs seem to think the FQs leave the body but they don't I'm afraid. They settle into the GABA receptors. When you talk to the doc it's a good idea to take some info with you and it's referred to as FQTS (Fluoroquinolone Toxicity Syndrome) as there are many FQs around. Although I was given Levofloxacin, I think that Cipro is more widely used here.

You must NEVER take another FQ, of any kind again, unless it is a life or death situation and everything else has failed!

I spread the word wherever I go but if we had a small card, like a business card with the names of the FQs and the common ADRs, it would be so useful to hand out. Can anyone design anything? They have a good one in the U.S. but it mentions the FDA and although it is linked to,our MHRA, most people don't know this.

Fluoroquinolones are also in eardrops and are also given to animals...beware!

So I am following both of you and although this is a crappy site, it's all we have in the UK, so it will have to do, as the place to meet up. If we stick to this thread, we will find it easier for our posts not to get lost, I think.

I am still suffering from terrible insomnia, so I'm often around during the night:-(

Take care you two.

Carol

Jane

I know Lisa well and if you have ever been in any of the FQT Groups on Facebook, we may have come across eachother.

I know of about a dozen other Floxies in the UK but we are all scattered and at various stages of the poisoning; both physically and mentally. One woman down South wrote to The One Show to see if they would run a story; I don't think they replied. In the meantime, we had been emailing and she gave me a new email address but when I wrote a couple of times, I got no response. I know she was also unwell with other problems. I know of another woman who has been Floxed over and over again for 10 years and she has tried to get doctors to believe her, without success. There is a man in one of the groups who wants to be proactive with media, I think. Others are just too sick or have moved on and want get on with their lives, which is fair enough.

My situation is very complex. I have a number of health problems apart from the FQT. The major one is that I have been living with Leukaemia for the last 5 years. It is progressive and as yet, there is no cure. Luckily I have a slow progressing type and am pre-treatment. Nevertheless, I am heading for treatment, probably in a year or two. I go to a specialist hospital regularily and have complete trust I'm my consultant that he will do the best possible for me. He is one of the absolute top Specialists in this field, in the country. 

It was the fault of my Nurse Clinician at the hospital, that I was prescribed Levofloxacin. When I was very unwell my GP rang her from my house, to ask advice on what to do. It was assumed I had a chest infection but no tests were done. The Nurse recommended the Levo, without checking my file. Had she done so, she'd have seen I had 4 contraindications and it was clear it should never have been suggested...no other antibiotic had been tried, yet in the past, others had been successful. My GP had never prescribed it before but as it had been recommended by a Leukaemia specialist nurse, she had no reason to suspect it would be so dangerous for me. She hadn't got the large meds bible (name escapes me) with her and she wrote the prescription. I took the first tablet that evening. The dosing was 500mgs Levofloxacin X 2 a day. This is a very large dose and Levo has 2 Fluorine molecules, unlike Cipro, which has one; I am also very small and skinny!

I am sorry this is so long. Anyway, long story a bit shorter, I sacked my Nurse and now my consultant is my first contact there. He does know about the ADRs and I have given him more information too. 

I need that hospital,and my consultant and also my GP, who was absolutely mortified when she realised what head happened. There was no question of her not believing me, as she watched it all unfold and when she visited many times, as I was bedridden, I was usually surrounded by masss of print offs all about FQT and I was pretty angry, upset, scared to death and at times hysterical. One of the partners at the surgery did know about FQs and their possible ADRs, in particular the musculoskeletal issues, which are the most common and all the docs used it as a leading exercise and my GP has been really supportive since (I'm 2 years out). She blamed herself and I reassured her that I wasn't going to make a complaint. I had no desire to gain financially - I just wanted to get better. 

I also reasured the Consultant that I wouldn't bring a complaint against the nurse but I know he had words with her. 

I was approached by a by a journalist last year, who wanted to write about FQT and other prescription meds with ADR, but he wanted someone local to him and he wanted to really personalise the story, including references to my family etc. and he couldn't guarantee my anonymity. This was my problem. It was my hospital which gave him the leeway to write about me, as I didn't live in the City itself. He wanted the Nationals to pick it up and I explained that I needed time to think about it, because I had cancer of the Immune System, which could be kicked into an aggressive, acute form and I needed to avoid stress, for this reason. He became very persistent and eventually I had to refuse to do the interview. I had to put my health first, as I couldn't take on any extra stress, I had no idea where the story could lead, if anywhere and I certainly didn't want to get into strife with the hospital, which will save my life (fingers crossed).

Phew, this is long but hopefully you can see that I am limited with what I can do, to help get this out there. I had some correspondence with the MHRA, in particular I complained about the patient insert, inside the meds box, being in such small font I needed a magnifier to read it and that the dangers of Tendon rupture were hidden on the 4th page. We have no Black Box system, as in the U.S. Etc, I made suggestions which they did take on board hut it's the drug companies who write the leaflets. Even when they update the info leaflets, often the ones I get are years out of date. I have noticed that the Yellow Card Scheme feature in the newer ones. 

I do want to help do something though and also have much published FQT info. There have been a couple of newspaper articles, printed a few years ago, one in the Mail I think. I have screen grabs of them and links to much info also but if you post a website or link here, it takes 24 hours for it to post, as Admins check them out first. My info is disorganised and I'd need to sort it.

I need to end this post, sorry guys but I needed to explain my situation. Brain fog and fatigue are big problems for me and some days are better than others!

If you read this far, thank you :-)

Carol

There is also a private message system here. It did have glitches too but maybe fixed now...

Carol

Bless you , thanks for sharing your story.

I'm only scratching the surface of this nightmare , so each day I'm more and more shocked about how the medical profession drop the ball time and time again.

The GP that prescribed Cipro to me didn't check my records to see that I was on a AntiDepressent which reacts badly with Cipro, also that I have a history of anxiety, no way Cipro was a safe choice.

I just consider myself so fortunate that I have stumbled upon this place with kind supportive people.

Well today is day 2.5 Cipro free and I already feel better than when I was taking this poison. Obviously it's each day as it comes.

I spoke to my pharmacist today (not the same one that gave me the Cipro) and surprisingly he knew about FQTS and agreed that they are pretty nasty and should only be used as a last port of call , I wish I had taken the prescription to him and not tescos :-/ , anyway , the upshot is he gave me a selection of vits and minerals and I've started those today.

It may well be a placebo effect but today my legs are not hurting , my arms and shoulders have been pretty clicky today and I've had a niggling headache, but in general I feel better than yesterday.

Tingling and numbness in my hands started to ease off around mid morning.

I'm going to start with Epsom Salt baths tomorrow to help with my Magnesium uptake.

It might all be in vain and I get smashed with this thing later down the line but it can't help to try. :-)

I have noticed that since taking Cipro I find it hard to get started in the mornings.

Oh I forgot to mention I'm taking Vit D as I have a tendency to be deficient.

Not sure if any of this makes sense but it seemed important to share it.

Hope you've both had as good a day as possible.

Take Care,

Alex :-D

It sounds like you're doing all the right things to help yourself. Jane gives good advice, when she says not to do the rounds of endless specialists, as many do...it's a waste of time.

My fingers are crossed for you :-)

Yes what you are saying does make sense and like you, I felt the need to share my story again and to explain the complexities around the prescribing of my poison.

I wonder if there are others in the various conversations re FQs here, who are still active on this forum? 

Look after yourself, because the docs can't help!

Carol

I'm really sorry you are going through the hell of Fluoroquinolone Toxicity Syndrome. You are not alone.

There he's been a major breakthrough on this forum, as a Moderator has picked up that people are literally all over the place here and there is much repetition etc., because I have complained so much LoL. If you can find the FQ discussion started by John 'I have discomfort and pain in both feet...' You will see a post to me from a Moderator,saying he will pin an FQ post, including permanent links to the sites we trust eg Floxie Hope.

This is a big step forward for us here 😀

Hang on in there Gayle

Carol

I was in the FQT group until last November and up till then it was fine and I gained much info and support etc. In the end, petty politics ruled and it stopped being helpful - became stressful, so I left.

I moved to a couple of new groups, which I'm still in - Fluoroquinolone Poisining and the Uncensored group. I rarely look in now though, as like you, I found them to be counterproductive and I felt they were dragging me down and stopping me healing. I had made a huge leap in my recovery and really they had served their purpose for me. I still read Lisa's posts on Floxie Hope and Hormones Matter though.

I wanted to connect with others in the UK, as some Americans have their own particular style and there was craziness!

I do still direct newly Floxed people to the groups though, as they are useful for a while and we don't have files with info here.

However, I'm going to hang around on this forum now, as I'm in a better 'place'.

Just a quicky , away now till Saturday so might not be able to get online for a few days.

Yesterday was a good day only the headache remained , that seems to be clearing a bit now.

Hope you guys are having as good a days as this condition allows, thanks as always for the support , I'll keep you posted.

Stay Safe,

Alex

Had a good couple of days , a bit achey and off colour today though but that could be anything i guess.

Aching arms this eveing , an early night I think is in order.

Hope your both doing as well as you can.

Stay safe.

Alex

Hope your littleun is better now but glad at least you got a couple of good days away.

Hope also that your aching arms have stopped hurting. I noticed after Floxing that my arms often felt felt really heavy and so tired that I could barely hold a cup. Just lifting my arms up was a chore. It felt mainly in my forearms and I still get that sometimes.

Otherwise, all quiet here :-)

Carol

Not such a great day today , feeling very wiped out , limbs aching and feeling foggy in the head , just a weird niggling headache , heart racing.

Capilary refill in my hands is oddly low , like my blood presure is down?

Bit anxious and panicy again.

Must stay positive , it could be a bug ive picked up.

Stay hanging on in there guys.

Alex :-/

It's easy to start attributing every little niggle to FQT but what you're describing probably is. As there's nothing you can do except try to just ride it out, all you can do is take it easy, rest and use pain relief if you need to.

You don't have to keep the positive face on here....always helps if you can but you are allowed to feel angry and sorry for yourself....I do a lot of tears and ranting rage!

Just take things a day at a time and try not to let your mind race to worst case scenarios. 

Yep. Keep hanging on and breathe....

Carol

I decided to go for a walk with a friend of mine , the sunshine and walking seemed to help , i also had 2.5mg of Diazipam , this seemed to help with the tight aching limbs , obviously this carries it own risk and cant be used long term but it's worthy of note.

It is very easy to blame everything on FQT and i have to try not to , thing that keeps niggling me is that i am in early stages of FQT , and I keeping thinking i have much worse to look forward to. :'(  , this makes me very angry and upset , waking up each day thinking "What will fail or misfunction today??"

I really shouldnt moan as i seem to be quite lucky with the level of FQT i am experiencing at the moment , but i cant help but feel stupid that i didnt research this poison properly before i took it. I just didnt expect the doctor to give me something so potentially toxic

Anyway , just thought I'd check in and say I'm a little better.

I'm considering doing a blog , a day to day diary , at least if i document what i can when i can , maybe others can benefit from it. Any thoughts?

Bless you guys , you are a constant source of comfort and support.

Stay hanging in there.

Alex

It is good if you can get some fresh air and walk a little. I also use small doses of Diazepam to help keep muscles relaxed.

Yes write a blog, others will be helped and informed by it. I kept/keep a diary and it helps to 'get it out', also good to look back on, as things change. When I look back, I'm reminded of effects I'd forgotten, as brain gets foggy and things get blurred, plus it's also useful for when you feel ready to inform the Yellow Card Scheme. They ask us to update, as our files remain open, until we are completely recovered.

Don't feel stupid for not researching first; you will from now on! None of us did, or we wouldn't have taken the stuff. We put our trust in our docs and if we are too ill, we can't research beforehand anyway. I feel stupid for continuing to take the Levo after I had recognised what was happening, despite the leaflet saying to stop taking the meds at any sign of tendon pain. I still couldn't really believe it was affecting me and instead of stopping at day 5/6, I continued until day 9, when I'd taken 18 tablets.

We all feel stupid once we've joined up the dots and many never even do!

You will wonder what each new day will bring but you have no reason to believe you will get worse - you may not. Some do escape the very worst of ADRs and you could well be one of them. Though, worry you will ;-) It's human nature and moan you can :-)

A good source of drug info/ADRs is (If I write the web address properly, it will take 24 hours for this post to appear, so I will put a % where the dot should be) drugs%com

Keep on keeping on

Carol

im struggling a lot at the moment, having recently lost my job, trying to sort finances out and my ongoing battles with the NHS. Will catch up soon. I have spent the best part of the last two years researching adverse reactions to quinolones, reporting to the MHRA, keeping pain diaries and trying to get the medical profession to wake up to this problem without much succes. Have a good weekend. Jane

I'm really sorry to hear about your job  i hope things start to work out for you.

I'm just scratching the surface of FQT and it's outrageous that the medical profession seem to turn a blind eye to the suffering that these things inflict on people.

While I'm still clear headed enough , I'm going to document as much as i can , hopefully getting a blog started this weekend , with any luck it will help others , if it just stops one other person taking these poisions without it being life or death i'll consider it a sucess.

How do you report to the MHRA? , I think Carol said I can do it via this webpage? , do i need to sign into a different section of this site?

I'm determined to keep positive as much as possible and active , even if these things rob me of my health I'm going to try my best not to let them rob my spirit.

Hope you have a good weekend Jane and Carol , stay strong , keep keeping on.

Thoughts are with you both, 

Alex

Seems we've both spent the last two years doing the same but I haven't had the job hassles - just the pain.

I hope things pick up for you.

Look after yourself

Carol

Sorry i've been out of touch the past few days , my middle child started having seizures , so it's been a lot of playing catch up with the medical fraternity , he had aneurysm at 11 months so this is all pretty scary stuff.

Anyway give with one hand and all that.......

Ive actually had a pretty good few days myself , I dont want to speak too soon , but i think the suppliments might be doing some good , or it could be that i'm one of the lucky ones who manages to avoid the very worst of being floxed , either way i'll take it anyway i can get it

I have reported the ADRs to the MHRA and requested that it be filed with my surgery as well , also have asked that a note is put on my medical records that i dont want ANY Fluoroquinolone AB's in the future unless it's life or death.

Am still going to do a blog when i get time between hospital trips and having 3 kids

How are you guys? , I hope your having good days , I pray you are.

I joined the Facebook group and subsequently unjoined as it's quite hostile and people seem to want revenge or recompence for the FQT , that's not where my head is at the moment , i just want more good days.

Anyway enough of my waffle.

Hope your well.

Alex

Sorry only just replying to you....the days can somehow slip away...

What a frightening time for you with your child. I'm so sorry and can only imagine how tough it must be for you. I hope things are settling.

I'm very glad to hear that you may be escaping worse FQ damage and good on you for managing to find the time to report your ADRs under the Yellow Card Scheme, amidst all you have been dealing with.

Yes it seems those Facebook groups have become about revenge, money and some calling for complete banning of FQs - which is never going to happen and IMO, shouldn't anyway. They just need to be used appropriately.

When I first joined a couple they were much more about support and sharing of experience and discovering what might help. I was lucky as I did get so,e support from them for a few months but I don't have anything to do with them now.

We have to try and work with this website, rubbish as it is :-( It's all we have.

I suppose that because things are definitely taking off in the U.S. with awareness spreading via the TV news channels (many news broadcasts over the last few months, which are generating a huge response from the public, who are realising they have been flowed) combined with progressing lawsuits, the support has been overtaken by other issues. The majority of floxies on the FB pages are from the U.S. Incidentally, there has been much discussion about generic FQs as opposed to brand named. Not only are people unable to bring about lawsuits  when generics have been taken but also their safety is now considered to be dubious. Generics are not identical to the branded meds and haven't undergone the same safety checks. Most docs here are prescribing generics of every med these days as they are so much cheaper!

Anyway, you take care and if you have time, drop back in here and let us know how you are going on. Oh and waffle away.....I certainly have! Lol

Carol......Plodding on

My son has just been admitted to hospital for an EEG and MRI , I'm being proactive in case he picks up an infection , is there a list of all FQ antibiotics and derivatives?

Hope your ok,

Alex

Levofloxacin (Levaquin)

Ciprofloxacin(Cipro)

Enoxacin(Penetrex)

Norfloxacin(Noroxin)

Nalidixic Acid(NegGam)

Olfloxacin(Floxin)

Moxifloxacin(Avelox)

Cinoxacin

Gatifloxacin(Tequin)

Grepafloxacin(Raxar)

Lomefloxacin(Maxaquin)

Sparfloxacin(Trovan)

Perfloxacin

Gemifloxacin

Oxolinic Acid

I'm not sure if the last tree are licensed or even if all the rest are in use. The most common here, I think are Cipro and Levafloxacin

Hope all is well. I'll be thinking of you all.

Carol

Orfloxacin (Floxin)

Sparfloxacin((Zagam)

Trovafloxacin(Trovan)

First-generation

cinoxacin (Cinobac) (discontinued by manufacturer)

nalidixic acid (NegGram, Wintomylon)

oxolinic acid (Uroxin)

piromidic acid (Panacid)

pipemidic acid (Dolcol)

rosoxacin (Eradacil)

Second-generation

The second-generation class is sometimes subdivided into “Class 1″ and “Class 2″.

ciprofloxacin (Alcipro,Ciprobay, Cipro, Ciproxin, ultracipro)

enoxacin (Enroxil, Penetrex)

fleroxacin (Megalone, Roquinol)

lomefloxacin (Maxaquin)

nadifloxacin (Acuatim, Nadoxin, Nadixa)

norfloxacin (Lexinor, Noroxin, Quinabic, Janacin)

ofloxacin (Floxin, Oxaldin, Tarivid)

pefloxacin (Peflacine)

rufloxacin (Uroflox)

Third-generation

Unlike the first- and second-generations, the third-generation is active against streptococci.

balofloxacin (Baloxin)

grepafloxacin (Raxar) (removed from clinical use)

levofloxacin (Cravit, Levaquin, Tavanic)

pazufloxacin (Pasil, Pazucross)

sparfloxacin (Zagam)

temafloxacin (Omniflox) (removed from clinical use)

tosufloxacin (Ozex, Tosacin)

Fourth-generation

Fourth-generation fluoroquinolones act at DNA gyrase and topoisomerase IV. This dual action slows development of resistance.

clinafloxacin

gatifloxacin (Zigat, Tequin) (Zymar -opth.) (Tequin removed from clinical use)

gemifloxacin (Factive)

moxifloxacin (Acflox Woodward, Avelox,Vigamox)

sitafloxacin (Gracevit)

trovafloxacin (Trovan) (removed from clinical use)

prulifloxacin (Quisnon)

In development

delafloxacin — an anionic fluoroquinoline in clinical trials

JNJ-Q2 — completed Phase II for MRSA

nemonoxacin

Veterinary use

The quinolones have been widely used in agriculture, and several agents have veterinary, but not human, applications.

danofloxacin (Advocin, Advocid) (for veterinary use)

difloxacin (Dicural, Vetequinon) (for veterinary use)

enrofloxacin (Baytril) (for veterinary use)

ibafloxacin (Ibaflin) (for veterinary use)

marbofloxacin (Marbocyl, Zenequin) (for veterinary use)

orbifloxacin (Orbax, Victas) (for veterinary use)

sarafloxacin (Floxasol, Saraflox, Sarafin) (for veterinary use)

I've learnt to disguise links and explain what I've done (ie., substitute a symbol for the dot - crazy) so the post goes up straight away. 

Are  you talking about the Open Page on Facebook, when you say the 'Fluoroquinolone Toxicity UK'? If it is that one, it doesn't interest me, as it's not a closed group but a FB page only. it was also not active for about 12 months, if this is the same one.

When they put up your post, which usually takes 24 hours, I'll click on the link and see.

Thanks

Plodding on

"Fluoroquinolone Toxicity UK " is not that open group it is a closed one,and is new. You can find it just put on FB Fluoroquinolone Toxicity UK and come up.

Right I shall search for this new group and take a look. I've pretty much had my fill of FB FQ groups though, so it'll have to be good to make me want to join! Lol

Are you an Admin btw?

The fluoroquinolone Toxicity Group and I change the name today

because it is another group from USA with the same name.and I was thinking to have our own group in UK

to make my own group becaue they post just about iodine So ,I did my own group now.In my group can post what you want,if somebody come up with a cure or diet or anything is welcome ,is not strict.

 I have been involved with a few FB/FQ groups over the last two years and apart from one or two from the UK, most of the members are in the U.S., with a few in Canada ( I recognise one of them in your group).  I don't know how long it is since you were floxed or how long you've been involved with the FB/FQ groups but I'm two years out and I reckon about 70-80% recovered, having come from being bedridden for the first 6 months due to Achilles' tendons etc  damaged. No disrespect at all for US Floxies but as you know, they do things differently over there and that brings its own problems when relating to health provision etc. I am no longer particularly in need of support; fingers crossed for no major relapse and so my interest would be purely to help newly floxed, if I can and to try and spread awareness in the UK. I wouldn't want to be dragged down again - many groups are 'broken' and have lost their focus.

So please let me know if you start up a group purely for UK Floxies.

i'm off to try and sleep now too...it's late but I'm a nightowl anyway! Lol

I've sent you a private message on FB but it will go to your 'other' folder, as we are not connected on FB.

i'm at the hospital atm, so may not be able to get back to you for a while.

only had 3 hours sleep, so feel like crap!

I apologise for making the assumption that you're in the UK; I should have asked.

FQT is a global problem and it is huge. In the last two years I have come across hundreds of people who are suffering and I know of FQ support/info groups on Facebook with thousands of members. I don't know whether or not you use FB but I think there is a group for Canadians. If you've read some of the posts above, you'll see that there are problems with certain groups, so if you are going to join one, just be aware of 'factions' and 'cliques' and to take only what you need from them - there are many. It's also very easy to get panicked (even more than you are now, if that's possible) by terrible stories. Some people are more focussed on legal issues, rather than recovery.

Quinolone Vigilance Foundation has a website, which operates separately from the groups and can be a good source of help too.

Carol

If you're still around let me know.  I joined this thread after you dropped out (I think!).  Carol and I started our own FB group just for UK floxies.  We're still trying to find all the peole who were writing on this forum - Janeyloo and Gayle and Onecrop have joined us.  Write back on here if you like - I'll look out for a notification email to say you've replied. I hope you're starting to feel a bit better - our group is trying really hard to raise awareness of this cr*p!

Miriam

Hi Gayle, 

I'm in Sheffield uk and I'm really struggling with post cipro issues. I have terrible light headedness and am really freaked out. Would you mind responding and letting me know how you're doing? It's been nearly a week since I had my last cipro tablet and I'm still so groggy, feel high anxiety and like I can't stop my legs from twitching and shaking and as if I've had ten double espressos. The dizzy/ light headed feeling is what's freaking me out 

Any advice would be amazing. Hope you're well and see this message.

Cheers Richard