Symptoms with no diagnosis

Posted , 7 users are following.

Hello everyone. I've had 3 severe attacks and was hospitalized last night, hoping the doctors could tell me what was going on. Each attack is the same. My ears are filled with pressure and I lose almost all hearing in both ears. Then the vertigo hits with a combination of nausea, sweating, and vision problems. I told my boyfriend I was unable to hear and extrememely dizzy and when I lost consciousness, he took me to the ER. The doctors did a urine and a blood test which both came back normal. So they concluded I had a panic attack and recommended I see a phychiatrist. I do not have anxiety and was very upset when the doctor would not listen to me when I told him that I knew the problem wasn't anxiety. My hearing is getting progressively worse with every attack. It was a waste of time and money going to the hospital and now I'm not sure what to do. Any advice is greatly appreciated. 

0 likes, 8 replies

8 Replies

  • Posted

    Very sorry to hear of your very distressing symptoms which are very debilitating and scary. Menieres is often characterised by : fullness and pressure in the ear, loss of hearing, and vertigo. Although these are the symptoms you describe there are other causes such as acute problems like labrynthitis which cause the same symptoms.

    It is vital that you seek help from your GP initially , who can prescribe medication such as Stemitil to take to alleviate the vertigo. If you are unfortunate enough to experience repeat attacks then you should be referred to ENT specialists in balance disorders. They can do tests to confirm a diagnosis of Menieres and crucially rule out other causes.

    What you describe does not fit with anxiety/panic attacks especially as they meet the major diagnostic indicators for vestibular related inner ear disorders.

    Please make a GP appointment as soon as possible and contact the Menires society for help.

    Good Luck and best wishes

    Robert

  • Posted

    Have you seen an ENT?...are you onn any type of medication....first thing is to see n ent and confirm you have mennieres..many other things can mimic....until then not sure.....skip the GP an d get an appt with a good ENT doc....see what is going on.

    Good luck

  • Posted

    I am no doctor but you sound like what I had and that would be a massive migraine. Once on migraine meds those symptoms that were all from Meniere's via diagnosis by doc all went away...I feel your pain. It is all a guessing game for doctors. If it persists see a neurologist. I am on Trokendi 100mg.

  • Posted

    I have had Meneres for about 17 years.  I have an attack at least once or twice a week.  You can't plan anything cause you never know when an attack will occur.  I was out of work 2 days that week and 2 days the previous week which I do not get paid for.  It was becoming awful letting my work down and letting my family down on weekends.   Last week I finally became fed up and decided to try medicinal cannibas oil which you take thru a vape pen.  I stated Wednesday Aug 26th.  It is now Aug 2nd and I have not had an attack since.  It is amazing  the fog has lifted.  It does not get you high or anything like marajuani does.  Before when I would wake up in the mornings and sit up the room would spin and not stop and I just have to lay there still for about 4 hours till it passes then I'm worn out the rest of the day.  Now when I wake up I feel the dizziness for a few seconds and then it goes away.  If I had known this would help me I would have done it years ago.  For anyone who has this I would recommend trying it to see if it will help you.  None of the meds I have been taking do anything to alleviate the symptoms.

  • Posted

    Sorry for the scare! First see an ENT! Then see an upper Cervical chiropractor! Watch Utube with Dr Michael  Burcon and he will explain what has happened to you! There is hope but the ignorance about Meniers is pervasive with MDs!ENTs can diagnosis Meniers !!
  • Posted

    You must get a proper diagnosis from ENT / Aural Physiology specialists. Tests should include physical exam including balance and hearing and you should have an MRI to rule out other causes.

    From what you describe Meniere's disease must be high on the suspicion list. If you can persuade a physician to prescribe you betahistine tablets get started on them asap as they are specifically developed for Meniere's and should over time damp down your symptoms and may diminish some of your hearing loss and tinnitus. You also should ask for Buccastem tablets (prochlorperazine) which you dissolve under your top lip when you feel an attack starting. They will damp down the vertigo and nausea but not the underlying cause. Neither of these drugs will interfere with the tests you need.

    Good luck.

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