Synthyroid overmedication makes me crazy

Posted , 4 users are following.

Hellowhen I was pregnant with my first kid doc told me I am hypothyroid. Then start synthyroid from 25mcg to 125 till now. But in the beginning of this I had panic attack , all the symptoms of anxiety went to emergency they said its anxiety attack . All my blood work is normal .ecg is normal then I went to my doc he said to do hyperthyroid test . The values came out is tsh is 0.19 and free t4 is 24

He told me to reduced the synthyroid dose from 125 to 112.

But after 3weeks dos the blood test again and tsh level decreases from 0.19 to 0.03

Then he again reduced my dose from 112 to 88 mcg

I don't understand what's going on with me I am just29 with two little kids.

My body is getting so weak random pain achy joints jello legs

I am so anxiety can't sleep 

What should I do plzzzzzz help me 

Is that adjustment period of 6 weeks are so awful?

When I will feel better?

0 likes, 10 replies

10 Replies

  • Posted

    Hi Sania, what you’re experiencing is typical. When you change doses, you’ll often get spikes (less likely valleys) in results while the meds re-equilibrate. Three weeks isn’t long enough- it takes a full three months for the meds to level out.

    Aside from that, my experience has been that the meds mess with the thyroid feedback loop to the point that it’s nearly impossible to get the dose right. Other people on this site have been able to get a stable dose. I was never able to get it stabilized.

    You might try working with a (very experienced) endocrinologist to see if you can get help getting the dosage right.

    Good luck!

    • Posted

      You’ll have to ask around... neighbors, pharmacy (maybe they’ll tell you which docs prescribe NDT- that’s a start), or just start calling doctor offices and do what you can to interview over the phone.  Try some out. If they don’t seem knowledgeable or don’t listen to your symptoms, move on to another doc.
  • Posted

    Hi, Sania, i agree with MtViewCatherine, changing doses takes ages, levo is a long acting medication.  But why would your doctor reduce so little when you are having such symptoms and when your tsh is far too low? it looks like you have either been having far too much levo and it has built up, or maybe things have changed a bit in your body - there may have been hormonal changes in the last months? Something else?  Or may be nothing you can explain. i myself find levo, even small amounts, builds up too much and sometimes have to have a few days  off now and then if i have symptoms - maybe you need to discuss everything with your doc., as everyone is very different and levo is not a medication to alter without advice, as too little can have side effects, and too much can be dangerous for the heart and the bones.
  • Posted

    You sound as though you are very sensitive to Levothyroxin, in which case it's better to be lower than higher when it comes to how much you take. I'm only able to take small amounts of it now as I'm intolerant to it I found that out a couple of years ago.Finding an Endocrinologist who understands and accepts side effects isn't easy, as I've found out. I'm going to see my third Endocrinologist soon I hope. This time I rang the Endocrinology Dept myself and asked if they understood what I was saying, they assured me that they do and have someone who can help, hoping for third time lucky. Good luck and I hope you find someone to help you.

    • Posted

      Good luck to u ....

      And can u please tell who is the best endocrinologist who can help me? Plz

    • Posted

      I'm waiting for the third appointment to come through re my problem. My advice so far is to contact hospitals via PALs (UK) and tell them you need to find out if they can help with your specific problem. I've done this with this appointment and the response has been positive, better than the last two, but I still need to see them, then we will see. It takes weeks each time to get an appointment, I'm running out of time now as I'm taking less and less Levo due to side effects.

  • Posted

    Sami, one more thing to consider. I’ve found artificial sweeteners such as aspertame to influence thyroid levels. 

    I noticed with the meds I stopped drinking diet soda because I didn’t need the caffeine. But the diet soda contains a form of phenylalanine, which is a precursor of thyroxin.  While I font advocate for diet soda  or artificial sweeteners, I’ve given up trying to cut out the diet soda, as I actually feel better when I drink it.  How nuts is that!

    • Posted

      After that thing I also cut out soda from my diet ...can u please tell me what to expect between the dosage adjustment period ?

      Feeling dizzy drowsy , ......

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