T N since June 2015
Posted , 8 users are following.
Hi ya'll
I take 300 mg in morn,300mg@ noon and 600 @ bedtime but still if I laugh or scream or brushing my teeth brings me to the floor in pain. Does this ever go away.
Please send helpful book titles or does anyone know if this goes away without surgeries please!!
Thank ya'll for your time.....
1 like, 16 replies
karen36710 marilyn49807
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marilyn49807 karen36710
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Thank you for replying to my message. I feel all surgeries are just too risky and the radiation I am not sure of. So I have to take gabapintin to funtion as I am a widow now and have a 17yr. Old to put thru college. Anyway my best to you and Gods blessings to touch your life.
Sincerely,
Marilyn
karen36710 marilyn49807
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patricia_2468 marilyn49807
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Hi Marilyn, Talk to your neurologist about increasing or changing your medication. Perhaps you may need to combine meds, eg I take Trileptal with Lyrica. Unfortunately, this condition doesn't go away, but you may experience times of remission.
Get hold of the book Striking Back. Also, join the TN Association in your country. All the best.
marilyn49807 patricia_2468
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Thanks again and Gods blessings to you.
maggie80535 marilyn49807
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clint71 marilyn49807
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Sadly, TN will not go away on its own. It may lessen or go into "remission" for a time, but it will always come back, and often worse than it was before. You can watch a microvascuar decompression surgery on Youtube. At first it seems like a high-risk surgery because it involves the head, but once you watch it being performed, you realize it's actually a fairly simple procedure.
karen36710 clint71
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clint71 karen36710
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clint71
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karen36710 clint71
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maggie80535 karen36710
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The important thing is to find out how many times the surgeon has performed the operation they are willing to do. Nothing to do but ask outright! The answer; 15. Couldn't get out quickly enough.So if my TN returns,I start with the hospital.They recommend their surgeons. And a hospital that is Centre of Excellence.They have the Gamma Knife!
metsfanLisa marilyn49807
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karen36710 metsfanLisa
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angiegirl marilyn49807
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Hi I've got some books. They are the books that everyone that has TN will either have read over and over again or will want to read. Yhey are brilliant.
Striking back. Insight. Get them on line. For info on TN join The TN association UK. Or US. (I don't know where you are) Look on line. I'm in a flare up at present only mine is called SUNA. I did have TN but it's been rediagnosed. I've had it since about 2005. Take Care.