t score and prolia for Osteoporosis
Posted , 8 users are following.
Hi
Im back again but its been a real bad time, husband had to get pacemaker and lots of Drs for us both but Rheumy insisting on my getting the prolia. My BMD measured at Femur 0.581 with a t score of -3.4. He said Im totally in need of shots but after reading possible side effects Im petrified. Anyone here ever take this med for Osteoporosis?
0 likes, 23 replies
Nefret sharon35553
Posted
I've been taking Prolia for the last 4 years. No noticable side effects and my osteoporosis T reading is now back in the normal range.
sharon35553 Nefret
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Thanks you for your reply, Im so happy its working for you and Constance.
constance.de sharon35553
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I have a t score of -3.5 (hips). I have bonviva injections once ever 3 months. Can't say I have had any problems.
sharon35553 constance.de
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Anhaga sharon35553
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sharon35553 Anhaga
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Thanks again for the reply. I am so afraid of taking the shot which is schedules for this coming Tuesday. I read so many awful things from others who are warning that they got so ill from it and while there were very few positive comments I realize that the people with good results hardly ever post, its only the negative ones. Still some of the side effects mentioned were very bad and long lasting so I am considering going the natural way, going to a vitamin shopp and getting the necessary vitamins and continue eating all of the veggies and foods needed to help the condition. I mean in all seriousness if I dont take the injections I think I could try to manage it on my own, whats your opinion on this?
Anhaga sharon35553
Posted
Google combination of micronutirents osteoporosis and you should find an article which describes research showing that nutrition is effective.
And please take Vitamin K2!
Good luck - let us know how you get on!
Anhaga sharon35553
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You may wish to know that denosumab (prolia) works by actually destroying osteoclasts, so even more so than with the bisphosphonates it's a good idea to limit the amount of time you take it. Osteoclasts don't just remodel bone, they are also part of the immune system.
Anhaga
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sharon35553 Anhaga
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EileenH sharon35553
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"In a six-month randomized, open label human clinical study, 176 healthy men and women aged 18 to 85 consumed the ingredients in the Vitamin Code Grow Bone System, along with a healthy eating plan and walking program, and experienced a significant increase in bone mineral density as evidenced by comparing their before and after DEXA scans."
I think you'll find that Anhaga achieved that as well - the exercise is as important as the substance. They may also claim it is a clinical study - but that doesn't mean it was either well run or meaningful! Not denying it may well helpas it is a packaged selection of good stuff for bone - but don't believe everything that health food store assistants tell you.
Anhaga sharon35553
Posted
Sharon, there are numerous formulations and depending where you live different ones will be available. As Eileen says, the exercise component is also very important. We have to look at supplements as just that: supplements to a healthy diet and as active a lifestyle as we can manage. I chose a supplement containing calcium hydroxyapatite because I read that this form of calcium is best absorbed by people on pred. Once I am off pred, or maybe sooner if I end up at 1 mg forever, I'll probably switch back to calcium citrate as that's seems to generally be the best, and is considerably cheaper than what I'm taking at present. In my opinion the two most significant things I added (among many other things) to my life when combatting bone thinning are Vitamin K2 and additional exercise in the form of Nordic walking and tai chi. A friend of mine also says she thinks we should have a good source of silica in our diet, or take a supplement. As I now consume lots of leafy greens I'm hoping I get enough without needing an additional supplement.
Anhaga EileenH
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There has been a study, combination of micronutrients bone density are the key words for google, which showed that micronutrients are effective in improving bone density. I don't know if the various bones supplements now available reflect the findings of this study. I have to confess that even considering trying to find out makes me very tired, so I think I'll just carry on as I have been and hope for the best!
sharon35553 Anhaga
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sharon35553 EileenH
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Eileen I so agree with you, yes Im tired of reading and reading up on all of these things and also on store assistants trying to sway you to purchase products. Im going to give it a try and see what happens, I doubt it can harm me so Ill hope & pray it helps! Thanks for all your help!
EileenH sharon35553
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If you have a state of the art gym in a retirement community - does it have a PowerPlate? They have been shown to improve bone density in subjects with limited mobility and also to improve fitness in teenage ski athletes when used in addition to normal training. If I could find one locally I'd be using it!
sharon35553 EileenH
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pat38625 EileenH
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EileenH pat38625
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They are said to help bone density - if I had one, I'd use it. If you don't try, you don't know!
pat38625 EileenH
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Thank you so much for your reply and advice. You have made my day. I was very aprehensive to use it because (I think) it targets muscles apparently and I just did not want to take a chance and end up with a flare. I actually have it on a website to be sold but I can now take it down and I can use it meself lol But as you say if I don't try then I won't know. Very true, it will not be today as I went a walk yesterday with my son and climbed up a very steep hill. My calf muscles are a wee bit tight and my thigh muscles (well they're always stiff) I'm trying to be sensible and pace myself. Pat
EileenH pat38625
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Just do a couple of minutes at first - it doesn't feel like much but it does work muscles quite hard keeping your balance.
There was a programme on Geran TV a few days ago about osteoporosis - and the doctor on it was talking about how using weights also helps with avoiding it as the weights encourage your muscles to tug on the bones and deform them very very slightly - and that is what encourages them to produce more bone.
pat38625 EileenH
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Thank you Eileen, where would we all be without you and others "Ye Old Faithfuls" not in age but with advice and information and good old wisdom. It makes this PMR journey a lot less scary when you have the tools (info). Probably get my son to bring the Powerplate down for me. I swear I could open a gym with the amount of equipment I have. Sold the brand new Pilates and the stand for it last month, I really didn't have the space that I thought I had, not to worry you live and learn. Well some people do lol