TA and PMR
Posted , 3 users are following.
I have had TA for about seven years and had just gotten off of Prednisone a couple of months ago and then PMR set in. My Rheumatologist started me on a low dose of Prednisone, but then things went beserk. I had several bad falls and then couldn't walk, stand, or get out of bed without help. My doctor upped the med. to 40 mg, and things calmed down. Now I am on 20 mg. I am 73 and it has not been a fun time. I have had many side effects from the Prednisone and worry about being back on it, but I may have to be on it the rest of my life. I hope I'm not discouraging anyone, for my doctor really thinks that I am a special case - a hard nut to crack. Here is one for the medical books. My husband also developed TA and later PMR. However his case was not as bad and he soon recovered. Thank goodness. It was encouraging for me to hear that other people had the same symptoms. If you just have PMR, alert your doctor about any headache because you do not want to get TA. It is much more serious and can cause blindness.
0 likes, 5 replies
Nefret
Posted
Guest
Posted
Yes that does seem like one for the record books with both you and your husband suffering from PMR AND GCA - I have heard of two sisters living together who both suffered from PMR - they apparently cured themselves with Evening Oil of Primrose and didn't take steroids! I am on the point of being introduced to one of them and hopefully will find out more.
After 8 years it must be so difficult for you to remain positive as I'm in my third year and know each time I have to increase the dose back up I lose that positivity for a few days until I snap out of it, and it's amazing but we do, don't we.
It's good that at least your husband has recovered from both conditions and that must have been some relief for you, and it also means there is hope for all of us. From what has been mentioned on this site before, it would appear that men recover more quickly than women for some reason - something in their water!!!
Do hope your husband stays well and that you will be able to celebrate your recovery with him one day as well. Good luck.
MrsO
Shastajak
Posted
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I'd be very interested to know how they did that as I've been takin Evening Primrose Oil for about 6 years. I can vouch for it helping with painful breasts during menopause.
Jak
Guest
Posted
By the way, how did your blood tests go recently - did you have to increase back up as high as you feared? Do hope you are feeling more comfortable anyway.
MrsO
Pammy
Posted
I was the person trialing rosehip powder - sorry I didn't report back - I only took it for 5 days and it upset my stomach. I haven't heard of anyone with PMR having a positive result with it.
I am one of PMR fighters and although I read all the comments on this site I don't often contribute these days. I'm running a PMR-GCA UK support group in the N.E. ( area 1) covering from Bishop Auckland to Whitby (Area 2) covers Tyne and Wear, N . Durham and Northumberland Anyone wishing to join us can email xxxxxxxxxxxxx
Our new charity PMR-GCA UK is now registered and aleady has acquired £55,000 from a Trust for set fees and research - what a wonderful start - thanks to all the hard work and committment of the people involved.
There is no rhyme or reason to this illness - today I've had the lowest ESR and CRP readings for 3 years (ESR 9 and CRP 8) which should mean I'm \"normal\" and yet I'm very, very stiff and fatigued!
Go with the flow but don't give in to it.
You are not alone
Pam
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