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Take for granted

Posted , 5 users are following.

kaz_40
kaz_40

I never realized how much I took for granted, before being struck down with a chronic condition.

Working

Housework

Driving

Shopping

Long walks

Playing squosh

Gym

Then fibro came into my life nothing has been the same since. sad

3 likes, 13 replies

13 Replies

  • lisa52101
    lisa52101 kaz_40

    Posted

    I laugh when I hear people complain about work, housework etc... Then I remind them of how much I'd give to do those things again 😢 

    I also said I would NEVER drive an automatic car but I've just got my new motorbility car and it's an automatic. Now I'm just grateful that although I don't drive often I still can😊

    • kaz_40
      kaz_40 lisa52101

      Posted

      Funny how we miss the things we use to do and what we took for granted. wish I could bring those days back.But we musnt look back as were not going that way, we are going forwards. onwards upwards battle on all standing fighting as one. take care lisa gentle hugs xxsmile
  • loxie
    loxie kaz_40

    Posted

    so very true kaz.  If we had suffered a permanent injury for example, we would have support, assistance, more importantly understanding.  We are restricted in many things in the same way as if we'd had that injury.  Our bodies ARE injured and our abilities severely restricted.  Fibro sufferers get very little in the way of permanent support, eg life assisting services, equipment, housing adaptations and so on.  We have to fight for every little scrap of medical help, social services etc., much of which is declined or never forthcoming.  I would get more help if I'd lost a toe than I get with this condition, yet the impact upon my life is way greater than even the loss of a whole limb would be.  The minute I mention I have fibro to someone, I get a reaction that blends firstly disbelief, sometimes impatience, then disinterest.  Most other life affecting medical conditions would engender sympathy, understanding, offers of help and practical assistance.  I'm so fed up with this syndrome being viewed as a way to avoid doing things - I dont want to AVOID doing things, I hate not being able to do things, I miss them all with a heartbreaking vengeance.  Give me my life back or acknowledge that I have had part of my life removed by illness.
    • kaz_40
      kaz_40 loxie

      Posted

      well put loxie Im so sick of how we are treated and our condition belittled. just wish we could get some recognition for what we are battling through some damn support would be nice. none of us want to be like this its no fun being like this, every turn we take for help support is blocked. we all would do anything to get our lives back to how they use to be. flaming fibro hate the government drs social services specialists ggggggrrrrrrrrr ahh feel better for the rantlol its maddening though loxie I wish some one would sit up and listen xx  
    • lisa52101
      lisa52101 loxie

      Posted

      I couldn't agree more with you Loxie. Whilst I was seeing one particular GP for a host of other medical issues, she was very sympathetic to my needs. The moment she knew I was also diagnosed with fibromyalgia and I asked for my usual pain medication I was told in no uncertain terms, and I quote " you know you can't stay on these forever, it's not like you have cancer now is it?". Painful on a number of levels

      1. My mum was in remission. 

      2. My dad had just lost his battle with cancer 

      3. My pain had just been dismissed so readily, despite my other conditions still remaining. 

      I realized at that point that as soon as the F word is mentioned I will always have to fight. 

      May I also point out that I have never been back to that GP since. Strangely  her husband is much more open to discussing my medical needs. That said, why does Fibromyalgia have to be such a dirty word?

    • kaz_40
      kaz_40 lisa52101

      Posted

      OMG what a terrible thing to say to you ? call herself a gp she wants striking off I would of reported her for saying that the uncaring cow. That is just terrible. Drs when you think they cant stoop no lower ? disgusting. Unfortunatly for  us fibromyalgia is a dirty word and one no gp likes hearing. take care gentle hugs xxx
    • loxie
      loxie lisa52101

      Posted

      exactly right lisa, the 'F word' is spot on.  It was like this with ME for many years until finally it became socially accepted that it was a very real and very life disabling condition, how much longer will we have to wait until fibro is either accepted and treated as the debilitating disease it truly is or until they stop bundling everyone with pain syndrome into one large indeterminate pot and calling it by a made up name!
  • derek1979
    derek1979 kaz_40

    Posted

    1 good thing its given me is its showed me what i have taken for granted and made me appreciate life so much more and the people in it to and i will never take our friendship for granted and thats not a promise kaz thats a fact xx
    • kaz_40
      kaz_40 derek1979

      Posted

      funny how we take things for granted in life then along comes mr fibro and turns it upside down oooooh how I hate mr fibro 
    • derek1979
      derek1979 kaz_40

      Posted

      i do to but its bought me you my best friend x
  • Bee70
    Bee70 kaz_40

    Posted

    We all take life for granted.  It isn't until a small change takes over and what is basic to many is a lifesaver for others.

    My hands have been in pain for years but still use my hands all the time to do the smallest of tasks.  Holding a cup of tea is a challenge these days as to even holding a pen.

    Reality kicks in when your life changes and makes you appreciate the simple things in life.

    Gentle hugs and thanks for sharing wink x

  • janet26165
    janet26165 kaz_40

    Posted

    What you say is so true.

    It takes ages to do the smallest task, at least if its the washing once its loaded you get a rest until its finished.

    I hate the way people always say how well I look, when in fact I have forced myself to go out, I am at the end of my energy and they want to stop you in the streety and talk. I know in my heart that they mean well, but I wish they would just take a minute to think what they are saying, before they say it.

    Its a constant battle, but onwards and upwards and fight the good fight.

    Take care and gentle hugs x

    • kaz_40
      kaz_40 janet26165

      Posted

      morning Janet how are today? did you manage to sleep ok. Its hard not being able to do the things we use to be able to. I was forever rushing round like a mad hatter. looking after my own home family nursing my mum. and now it takes all my energy to get up in a morning.its so hard and frustrating how things are now. compared to how it  use to be. still we musnt look back we have to go forward and except how things are for now. as hopefully things will change 1 day for us. As for friends mine have gone running to the hills since Ive been ill. Ive got 1 friend left shes not good bless her she a stroke a few years back. we see each other when we can.I have you ladies on here to talk to so that helps. battle on upwards onwards take care Janet gentle hugs xxsmile
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