Take off my prescription glasses- a cure?

Well Jimmy, good luxk!  I stopped my one coffee a day and moved to decaf, feel better already.  I have had this partial recovery before though, and then subsequent reversal to former state.  Anyway, I have my fingers crossed for both of us. 

Tried it this afternoon, works, now feel fatigue again @ 8:50pm Australia time. So I am trying it again see how it goes. Tomorrow 8:45 see ENT specialist who is a 76 yr old professor.

Jimmy,

What you are doing in effect is reducing the number of things that you are processing with your defective "VESTIBULAR OCCULAR REFLEX" signal.  It is the same thing that happens for me when I drive at night, fewer things to see, fewer things to process.  In my case I have been diagnosed with Vestibualr Neuritis,  or VN, which means there is damage to my Vestibular nerve and it is sending false or wrong signals to my brain. That, in turn, confuses my thinking and decoding of balance signals, including the Vestibular Occular Reflex signals, and makes me very tired trying to continue on through it.  

The Vestibular Occular Reflex is what is responsible for us being able to look at things as they move by, such as walking or riding, and keep those things in focus.  It's kind of like the way a video of something moving appears to be stopped, staying in the field of view, even though we can see other things moving past in the background. It appears to us like it is just staying in the middle of the picture and not moving.  ( that's probably a lousey analogy)

But, get this:  When I first got VN, I was seeing double.  I couldn't tell who had possession of the ball during the Super Bowl in 2014 ( when Payton's Bronco's couldn't do anything against Russell Wilson's Seahawks) unless I covered one eye.  I could't read, because the words and sentences kept jumping all around, for about 4 months.  Now, a year later, trying to watch the NCAA Men's Basket Ball Tournament "March Madness" I had to wear my distance glasses or I couldn't see the score, time on the shot-clock etc. So, I have come full circle with it (vn) in the glasses department.  But it is still so fatiguing to do anything, especially walking around, that it makes me feel anxious and panicky.

My 2 cents worth.

Ben  

 

Good luck with that keep us posted .

I have VN since August 2024.  At first I could barely do anything and for someone who is very active that was mind boggingly anxiety causing and more!  But it made sure I walked, even though it was hard, especially under trees because of the different light reflections that happen. I an doing the rehab exercises and now am back at the gym doing most things, though I do get fatigued easily. The only thing that still makes me dizzy is swimming freestyle because of the head turning and the effect the water has on light reflection. But it is getting better.  I do something every day. No matter that it exhausts me it is important to keep going. This week so far no balance problems at all!