Taking a break from Dermovate?
Posted , 8 users are following.
For the first time in many years I have no white patches. My GP has suggested that I take a month off the dermovate to give my body a break. Has anyone done this?
At the same time I feel that even though the white has gone, more bits of me are shrinking and I'm feeling a bit panicked by it.
Hanny when you say that your fusing is almost gone, is that the fusing closed that dilation is helping with, or are your labia unfusuing and coming back? I'm also diliting. I was doing it twice a week but that isn't quite enough for maintenance so I'm going to go back to every other day. An aromatherapist also recommended Jojoba and chamomile essential oil which I haven't tried yet. Coconut oil works well for me as maintenance, but I'm always hoping to find the magic ingredient that helps me move forward rather than stand still. Aren't we all? I will feed back when i try it.
It's so depressing looking in the mirror at the moment. I do try to stay positive but somtimes it's just so hard.
Bridge
0 likes, 43 replies
justine89448 Bridge_of_Sighs
Posted
Morrell1951 justine89448
Posted
I love my jojoba oil with drops of Frankincense essential oil.
kathryn07219 Bridge_of_Sighs
Posted
Bridge_of_Sighs kathryn07219
Posted
justine89448 Bridge_of_Sighs
Posted
Guppy007 Bridge_of_Sighs
Posted
I have not used the Clob for months, and there has been no return of white plaques of skin. I just don't believe we need to apply it for maintenance unless you clearly have the white plaques of skin; it just doesn't make any sense to me. In any case who says we have to apply the cream for maintenance, the doctors? I think it has already been established numerous times that it's a bit hit and miss on this subject with regard to the doctor......they don't know!! one doctor will tell you to regularly apply the cream, and another will say the opposite.
I think it is good that you are dilating as it is important, and I am upset with myself that I have not done so. I have just ordered some dilators online, and so I need to do that, I just can't bear putting things inside me (Sigh)
Stay strong, at least the white plaques have disappeared, you must be very happy about that.
Morrell1951 Guppy007
Posted
sandra01720 Guppy007
Posted
My white plaques disappeared possibly within 2 weeks of steroid treatment but I still depend on steroid and emuaid to control my itching. For me, I would've only used steroid about two weeks had I based it on white plaques.
Guppy007 sandra01720
Posted
I think you have to control itching through diet. I think if you are experiencing regular itching then you are likely flaring. If you look at some of the older threads, remember on some of our posts we often talk of having 'slip ups' with food, and the subsequent symptoms are itching...it's the nature of the beast (LS) I often say to my husband that I eat like a Russian Peasant!! I am Gluten, Dairy, Sulfite and I have recently become Vegan to try to stop my Ulcerative Colitis flaring, (it has worked) but even with that super strict diet I could not get away with ONE evening of recently enjoying treats, quite honestly my skin was itching for HOURS, not on my Vjay but on my feet where I have LS. I was in a lot of discomfort for a long time, so you see you have to be careful, some women can't eat everything that they want to with LS, although there are always some people that can eat whatever they like with no problems, its just the way it is.
sandra01720 Guppy007
Posted
I've just been getting more careless in generals over time. Thanks for the reminder. Also have clementines here. Another weakness of mine and I've felt for some time that clementines are a problem for me.
Morrell1951 sandra01720
Posted
sandra01720 Morrell1951
Posted
sandra01720 Morrell1951
Posted
Morrell1951 sandra01720
Posted
sandra01720 Morrell1951
Posted
Guppy007 sandra01720
Posted
I love cinnamon rolls!!
hanny32508 Morrell1951
Posted