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Taking a break from Dermovate?

Posted , 8 users are following.

Bridge_of_Sighs
Bridge_of_Sighs

For the first time in many years I have no white patches. My GP has suggested that I take a month off the dermovate to give my body a break. Has anyone done this?

At the same time I feel that even though the white has gone, more bits of me are shrinking and I'm feeling a bit panicked by it.

Hanny when you say that your fusing is almost gone, is that the fusing closed that dilation is helping with, or are your labia unfusuing and coming back? I'm also diliting. I was doing it twice a week but that isn't quite enough for maintenance so I'm going to go back to every other day. An aromatherapist also recommended Jojoba and chamomile essential oil which I haven't tried yet. Coconut oil works well for me as maintenance, but I'm always hoping to find the magic ingredient that helps me move forward rather than stand still. Aren't we all? I will feed back when i try it.

It's so depressing looking in the mirror at the moment. I do try to stay positive but somtimes it's just so hard.

Bridge

0 likes, 43 replies

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  • Bridge_of_Sighs
    Bridge_of_Sighs

    Posted

    Thank everyone for your replies.

    I don't seem to have any outer labia and now my inner ones seem to be getting smaller. I was stable for so long until my husband was so ill and I had major stress. I'm delighted to not have the white skin, but don't want to loose any more of me. Haven't been stressed for  a couple of months now, but maybe it takes a bit longer for my body to catch up. I suppose I was also worried that if i stop the clob the disappearing will speed up. I can see a seam on one side where bits haven't quite fused, the other side is smooth and I suppose beyond repair. Of course I didn't know what I looked like before, so it's difficult to assess.

    • kathryn07219
      kathryn07219 Bridge_of_Sighs

      Posted

      You could be describing my anatomy!  I've given up worrying about it - at least it's out of sight!  No sex for me either as the space is too small.  I'm much more worried about the lichen planus in my fingernails which I can see people flinching at.  On top of that, it's extremely painful.  And then there's the early signs of oral lichen planus .... and so it goes on.  Best not think about it!
    • hanny32508
      hanny32508 kathryn07219

      Posted

      Lichen Planus is also a big nuisance, isn't it.  For the Lichen Planus in my mouth I rinse with coconut oil after cleaning teeth.  That has been very beneficial this far.  I also do my nails with coconut oil so now and then.  With the mouth I have had good result, I don't know about the nails yet. Perhaps that needs to go on a little longer.  I also wash my hands in baking soda water, to keep the skin disease at bay.  They don't look too bad at present. 
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