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Does anyone have an experience with coming off PPIs?
I've been taking Lansoprazole for a couple of years and I've been trying my best to come off this dreaded med but it doesn't seem to work.
I'll try to give you a briefing with my history:
I'm 23 years old, have been struggling with acid reflux since I was 15. I've seen more than 15 doctors in my life and no one seemed to help me. I've done an endoscopy and pepsine test a couple years ago and everything came back normal. My doctor prescribed the first PPI (I think it was rabecprazole) when I was 15 to manage my acid reflux (which I think was the first mistake that led to my current problem). Rabecprazole did not work,after seeing several doctors and trying different kind of PPI's (nexium, pariet, omeprazole you name it) every PPI seemed to work for s while and suddenly would stop working for no reason! A couple of years ago I saw a doctor who told me my acid reflux is mostly related to anxiety and stress, but this was too late! I became completely dependent on Lansoprazole, and this doctor wasn't much of a help.
After doing much research I decided to come off This dreaded PPI and focus on managing stress. So I saw a method online where you start by tapering and reducing your dose gradually. I take 30 mg per day so I started my removing 3 granules from the capsule everyday, everything went well for the first 3 days but after the third day I started having rebound acid which lasted for 2 days, then everything went fine for a couple of days, and all of the sudden I'm back with rebound acid. This has kept happening for 3 weeks (note I did not reduce my dose for more than 3 granule)... anyway the last couple of days have been living hell for me! I have never experienced this much pain and discomfort in my life! I feel like my oesophagus is burned! When I breath, I'm inhaling fire! I feel like I have a lump in my throat and all of this is accompanied by extreme nausea! Please someone help me! What are your experiences with coming of ppi's? Is what I'm experiencing a part of acid rebound? Or did I develop something else!? I think I have damaged my oesophagus! My life is literally hell right now
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