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Tardive dyskinesia - any other sufferers out there?

Posted , 3 users are following.

NooNooHead1981
NooNooHead1981

Just that, really.

I've had it for about 18 months and it seems to be settling down a bit. My symptoms aren't as bad as they were, it's mainly the lip smacking/licking and grimacing / tongue protrusion that are the worst symptoms, and manageable.

I'd love to connect with other sufferers and share experiences, to know that I am not alone.

1 like, 2 replies

2 Replies

  • stacy021977
    stacy021977 NooNooHead1981

    Posted

    You're not alone. I was just recently diagnosed w TD and have been placed on Ingrezza. It's not helping. I've been taking it for about two months but have noticed the torso twitching and constantly moving my legs are coming back and increasing each day. I'm sick of not being able to control my body, sick of all the medications and pain. I hope and pray that it get better!!!!

  • walter176
    walter176 NooNooHead1981

    Posted

    Hey NoNo, I hope things are getting better.  My wife has TD and suffers a lot from it.  I have been doing some research and found no relief from Vitamin E.  She has been taking Buspar and that also had no effect on the movements.  Recently I came across a guy with it and he was using Klonopin which I am on for anxiety.  I have given my wife 2 mg in the am and 2mg in the pm and within days there was marked improvement.  She still takes the Buspar for now, but we will check on that later.  Hope this helps
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