Teenage girl, extreme fatigue all the time, what could it be?

I was the same at your age , I didn't get diagnosed with anything till 40 years old . I have hypomobility syndrome and I've had it all my life. I had growing pains all my life but because I was used to feeling this way, I just thought everyone must feel like this. My daughter was born with a heart murmer and I had problems during pregnancy premature birth and problems after delivery . No one took me seriously I have heart problems that started at 21 and continuing to this day which never got took seriously elevated heart beats that could of been properly manged in my 20s that got overlooked. If you feel that you have a issue keep on with it. Conplain as much as you need to. Things do get overlooked. You've had your bloods done which is great and they are ok. Mine were ok all the time. Until I got very very poorly. I have alsorts wrong with me now , I do get chronic fatigue and it's hard to diagnose, fibromyalgia is too , they are both a very hard condition to get to the bottom of. If you have a diary write everything down. Even down to a runny nose. Ears throat headaches ect. Any pains with your periods , discomfort,  diahreaa , and anything that has unusual symptoms. I was always going to the doctors with fatigue all my life and I caught every virus going , my mom has hypomobility symptoms and has vasculitus which is a hypomobility symptom,  but did not get the proper diagnosis only vasculitus so my condition was hard to diagnose . My moms family are in India we now know it's a hereditary thing but did not have the information available when I was younger or I may of known what I was dealing with. 

If you've had a lot of childhood illnesses like tonsilightous infections , or have taken antibiotics a lot keep a note if those too. Ask your mom and talk to your parents more about it, sometimes moms don't seem like there listening but they are , they may not want you to worry. If your sports are getting too much talk to your teachers. There is a lot of information out there on google , ask your parents to look at it with you . Good luck and keep in touch . Kindest Regards 

No, you are NOT a hypochondriac! If you read this forum, you will see that you are not alone--that a huge number of us with CFS/ME have gone through the same thing as you. Now of course I'm not saying you have this illness. But CFS/ME is a diagnosis of exclusion. In other words, if your bloodwork is coming back negative and there seems to be no other cause, you could have this illness. You need to listen to your body and not to what other people are saying about your body. That means you have to advocate for yourself, and tell your parents how fatigued you're feeling, and be very firm about seeing a specialist in CFS/ME. GP's are often not well informed about this. The sooner you get diagnosed, the better, and the better chance you'll have of recovering. You shouldn't push yourself, because if it is CFS/ME, you can make yourself a lot worse. By the way, in making yourself heard, you are not complaining, you are simply making yourself heard.

It is quite possible that it is just something you will gradually grow out of. Puberty can be a lot of strain on your body, and everyone will respond to it in different ways. If you're doing long distance running okay, you probably won't end up with a diagnosis of CFS (good news imo).

I realise that this could sound dimissive, when I really don't mean to be, but it could be that for now you are best just responding as you feel is best, getting good regular sleep, and hoping your body sorts itself out. Currently our medical understanding of a lot of these problems is not very good, so if your doctor has checked you out for the most likely problems, going the medical route could just do more harm than good. Even if your fatigue is causing you significant problems, compared to firends who have more energy, there's still a good chance that your doctor won't really be able to help.

Fingers crossed that you do just naturally improve as your body and hormones pull through puberty, and I'm sorry to hear that people aren't being as supportive or understanding as you'd like.

Hi fluffyduck,

Have you been tested for hypothyroidism?  That is what my aunt had when she ws your age,  similar symptoms.  Just ask your doctor.  They may have done it already, it is a simple blood test.  If they haven't ask them to check it.  It is very easy to fix.

Good Luck,

Sunny

Hi, this is going to sound strange and I am only writing this from a personal view that at your age I would try to ignore it and get on with enjoying what you can.  I now know that my problems date back to when I was 14 years old maybe younger like yourself.  My Mum said I had a bad back like her and I went to her Oestopath once a month.  It didn't give me more energy, sort out the depressive mood swings or sort out the IBS but it was enough for me to put it to the back of my mind and fight on.  The only reason I am suggesting trying to ignore it is that I participated and enjoyed far more than I would of done if I had known then that I have Fibromyalgia & ME/CFS.  I have lived through alot more everyday pain than I could of done on the right medication I admit.  With that in mind I would recommend leaving getting a diagnosis and releaving some of that discomfort until your 20's.  If my diagnosis would of been made when I was your age either I would of stopped myself or family would of stopped me from doing so much.  You will constantly hear "pace yourself", "don't do that because you will suffer", "you know you shouldn't do that", "are you sure you should be doing that".  You can say goodbye to all the sport you love and going out with your friends in the name of feeling better.  My personal advice which might be good, might be bad would be to not concentrate on it at your age right now.  If you are anything like me when I focus on it I feel that much worse and it's so important to experience all the things available to you when you're young which you can't do when you're older.  I used to eat Kendle Mint Cake I think it was called to give me more quick energy.  I know ignoring it isn't the best advice ever if it something that needs fixing, but the tests you've had came back fine.  This only really works for Fibro & ME/CFS I think because it can't be fixed it can just be helped.  I only got properly diagnosed last year (I was 35yrs old).  Since then I constantly question myself if I should be doing what I want to do and family ask should I really be doing something like that?  I wouldn't recommend waiting as long as I did because the medicines do help.  However I'm glad I didn't know when I was young because I'm glad I achieved and experienced everything I did.  This is purely advice taken against my personal experiences.  It's your life and you'll only get one chance.  I personally could of never managed long distance running but I could sprint (I even won the Mums race at the kids school sports day last year)    

Possibly you might have CFS.I truly hope your parents take your complaints seriously and take action to help you. You might have mono, lyme, depression, the list can go on what ever you might you need to get some kind of help for your own minds sake. Whatever your diagnosis is don't let it stop you from doing what you want as long as you humanly are capable of doing it. I had all of your problems that you listed and as I got older I had more gone wrong with me. I know have diagnosis of NMO along with TM, polymyalgia and some more. I no longer can walk and am confined to my bed and a wheelchair if I'm not to bad that day, the point is i lived up to that point I could no longer physical was able to. I may only be 35 and to many my life would be unbearable and most days it is due to my pain, but I thru that I still do what I can, I spend allot of time with my kids and husband,and because of my condition I probably spend more time then normal people due. I due as much as I caneed, and I don't let anyone tell me what I'm capable of doing cause I'm the only one in this body, and the same goes for you. I truly hope you get the help you need ASAP!!!!

A daily Multi-vitamin with iron should help you. It sounds like you could have anemia..low iron levels. That will make you tired. Also stay hydrated and drink alot of water. Good luck. 

I'm also having this same problem I'm 19 Male I have had horrible fatigue and brain fog I feel fine in the morning but as soon as I get to work it feels like a weight on my body and my brain. Everything feels overwhelming and loud/bright. My body feels weak and my eyes need to close etc. Then sometimes my fatigue brain fog lifts late in the evening 8 or 9 but then I get sleepy and go to bed. It gets worse when I get out of a shower. I have had this for 3 years and every doctor I visit tell me it's anexity depression which have have had before but its not like I can control the fatigue with any breathing etc. Its just there not matter what. If you find am answer please let me know. Because this sounds like me.

Also I just got a really bad eye floater and it feels like consent pressure in the right eye but just during the day.