Temporary Trigeminal Neuralgia
Posted , 3 users are following.
I have being diagnosed by a number of Doctors the last number of days with TN. I'm a 30 year old male think it might have being a blow I took to the head playing sports 3 weeks ago pain started about the same time. Visited the dentist told me my teeth are perfect might be a gum infection took antibiotics for that. No luck went to GP gave me gapopentin and steroids said if no improvement in 48 hours go to A&E. Long story short I stayed a number of nights in hospital and was diagnosed with TN I started on 400mg of Tegretol a day since last Monday had very bad side effects at the start but all settled down now. But I also have no pain in my face at all just wondering is this down to the Tegretol or maybe I only had TN temporally could this be true. Any help or thoughts really appreciated. Mark.
1 like, 10 replies
Valkyrie mark47040
Posted
The tegretol taking away the pain is not unusual with Tn. I hope you have been given a referral to a neurologist as you will need to have their advice as to whether to try decreasing the Tegretol and if so at what rate. Please don't even consider just stopping as people get very bad side effects if they do that. I wish you luck and that when you see the neurologist they take you slowly off the Tegretol and all is well
eddie13 mark47040
Posted
I've have had TN 8 years. I have heard of temporary. Once for gold & silver mixed fillings in different teaeth. Once for another toothe nerve problem. I have no problems with Tegretol. Perhaps a neurologist should have a look.
eddie13
mark47040
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Valkyrie mark47040
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eddie13 mark47040
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The mri should tell the neuro what is going on. For me, surgery is not an option. I started on Tegretol 400 mg a day. It gave instant relief right away. Over the years I've had to increase. Now 800 mg a day. 200 mg as close as possible to 6 hours apart (evenly) is critical for me. Side effects are commonly reported, but merely tiredness for me.
eddie13
Valkyrie eddie13
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eddie13 Valkyrie
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No problem talking. First attack at age 47. Took 2 years to get diagnosed with MS. Lesions on sheath around brain. No procedure for that.
Today n yesterday tough eating. Because symptoms come n go, wife has hard time understanding how debilitating it can be.
Rather than find a cure, Most of us manage.
eddie13
Valkyrie eddie13
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eddie13 Valkyrie
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Sorry to hijack your discussion Mark. Hopefully you are finding the info useful.
Am curious about the 900mg Tegretol a day. Is that 300 every 8 hours? Cause I've found even spacing critical, and the more often you have to take it - the easier it becomes to forget. Forget by more than one hour is bad news. Since I take 4 - 200mg x 6 hours, I do forget now and again. Especially after things have been going really well for a while.
Am catching up to age 62. I see it coming.
eddie13
Valkyrie eddie13
Posted
I usually wake in the morning and have to take the Tegretol immediately or I start getting the little lightening flashes. Ditto the 2pm dose and the 10pm. Sometimes it's a bit hard to wait as I am getting warning jabs but I make myself hold out. It's coming into summer here at present and things are a bit better once we get over 25 degree days.