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Terrible GERD feeling tired

Posted , 4 users are following.

sharon25858
sharon25858

im suffering from very bad GERD. I had CT scan as we thought it was my lungs but scan showed lungs good but there is hole in the oesophegus that should be closed, causing bad GERD. I knew I had reflux but never how bad it could get.

I take Nexium 20mg twice daily and Gaviscon advanced after dinner and bedtime.

its been awful lately, whatever I eat sets it off. Feeling out of breath after eating, horrendous pain in my upper back and sick feeling. Then really tired all the time. It's just miserable. The breathless feeling is awful and scary sometimes.

I am seeing a specialist who put me on Nexium, I am seeing him again in 2 weeks and we are going to do some tests as he wants me to have the Linx surgery, which I'm keen on as it should put a stop to all this.

Does anyone else get breathless and back pain after food?

1 like, 14 replies

14 Replies

  • kate65092
    kate65092 sharon25858

    Posted

    Hi sharon

    I've been suffering terribly upper back pain as well since October, I have reflux over a year now taking ppi wish I could get off them, exhausted all the time, full of gas and wind, nausea can be horrible too

    • sharon25858
      sharon25858 kate65092

      Posted

      Yes it's the worst even worse this time of year no fun for me, just hot water to drink. I'm going to have a Linx surgery in new year you should ask your doctor about it, sounds really good great success rate and recovery period is very quick. I'm so hoping it puts a stop to all this and I can get my life back!

    • kate65092
      kate65092 sharon25858

      Posted

      Hope it makes you feel better Sharon, can you please let me know how it goes for you, I can't go on much longer myself with all these horrible symptoms

  • ashley221
    ashley221 sharon25858

    Posted

    Hi Sharon. I was also diagnosed with GERD due to lax oesophagus muscle. Every doc I went to, told me that doing Belly breathing exercises everyday helps tighten the valve. I'm doing it everyday. Hopefully it helps and I can avoid surgery.

    • kate65092
      kate65092 ashley221

      Posted

      Hi Ashley

      Could you please let me know how to do those belly exercises, I'm in bits with reflux, ppi not helping

      Tks Kay

    • ashley221
      ashley221 kate65092

      Posted

      Hi Kate. There's loads of instruction vids on YouTube. It's similar to the yoga routine pranayam. You have to inhale and push your belly in, hold your breath for a few seconds and then exhale pushing your belly out. Doc said this will strengthen diaphragm muscles which in turn tightens the valve. I'm a bit skeptical but I'm doing it everyday. Trying the best I can to beat this horrible disease. I get the back pains too Kate. Had a visit to another doc today who said it might be side effects of PPI like vitamin deficiency or allergy. Took a blood test. If the levels are low, I'm supposed to take a vitamin pill.

    • sharon25858
      sharon25858 kate65092

      Posted

      By the way I have to take Gaviscon advanced after meals as well as the Nexium, alone Nexium isn't good enough.

    • ashley221
      ashley221 sharon25858

      Posted

      Hi Sharon. What do you for non acidic gastric contents which PPIs have no effect on. They get stuck in throat and give me sinus pressure and swallowing difficulties.
  • Takingtime
    Takingtime sharon25858

    Posted

    Hi there.....I too have been diagnosed with gerd from my symptoms and ruling out every other possible cause.  My symptoms are mainly lump sensation in the throat and upper back pain.   I have always suffered upper and lower back pain due to injury in my lower back, however this pain feels very different, almost like a nerve or burning muscle pain.....I recently had an updated X-ray on my back and they do not see any cause, so more than likely caused by gerd.  I have never suffered the classic symptoms of heart burn, only in my two pregnancies....but now researching I believe I may have been hit with silent reflux as I have had chronic sinus issues, and pst nasal drip for years.  What triggered me to look into this further is I had three different times where I had severe aqueezing pain in my chest after over eating...worried it was heart related I went to er....and that is where my journey began.  Every dr I saw said gerd, but didn't tell me what causes it or what you can do to heal it...they just offered Ppi or a acid blocker.  At this point I have no idea what shape my esophagus is in.....I feel some improvement since I have been changing my eating habits and keeping a diary of my symptoms...  I am using some natural remedies that seem to help with the healing.  Mine seems at it's worse if. I am stressed or at pms time...so hormones could be a factor in my case.  Prior to diagnosis, I was eating pretty alkaline, I had celery juice every morning, had no caffeine in my diet and drank alkaline water, so I was in shock that I have this.  I don't drink, or smoke,I am not overweight and an active person, I am in my early forties.......the only thing I have against me is I suffer anxiety and I developed shingles in February, so I wonder if these two things opened the door to this illness.....it's a guessing game, but I am determined to beat this.

    • sharon25858
      sharon25858 Takingtime

      Posted

      Yes I tried natural remedies too, almonds after eating. Eating small low fat meals and small mouthfuls, drinking warm water with food instead of cold. Anything fatty sets it off so I steer pretty clear, but with Xmas I did have the odd biscuit!

      harcly drink at all and am not overweight. It's just one of those things I guess. It's been brewing for many years I think. Got terrible 3 years ago when I had pneumonia and has slowly gotten worse. I too have chronic sinus, constantly blocked up. Had CT scan on sinuses recently and my specialist is going to perform a procedure to burn some of the nasal lining away to relieve it a bit. I also use a nasal rinse everyday.

      Thinks it's not uncommon to have the two problems together sounds like they make each other worse.

      Also have horrific burning pain in upper back and between shoulders. Feeling tired all the time and sometimes but dizzy. Although I think they're not helped by being down and miserable about the situation.

    • Takingtime
      Takingtime sharon25858

      Posted

      Have you had an endoscopy yet?  I have not had any tests done to check the esophagus, I have a refrain to get a modified barium swallow done on my throats to find out the cause of the lump feeling in my throat...if that comes back normal then I will request an upper GI X-ray....the endoscope will be my last resort for testing as my husband had one and he said it was awful...even though he was sedated he felt some of it....seeing I have crazy anxiety, I will save this test as my last resort.  It doesn't help that my aunts father died while having an endoscope....yikes!   So I am going for the less invasive testing.

    • sharon25858
      sharon25858 Takingtime

      Posted

      Not yet I'd rather not I'd there's other tests that's can be done, I kno they do a PH test and that's not as daunting

  • heathyer
    heathyer sharon25858

    Posted

    Hi Sharon, Just saw your post about reflux, I am suffering dreadfully with this! Did you ever get the Linx and wasit a success Many thanks Heather?
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