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I have been having a number of problems for a while now and I am looking for some advice.
It has been suggested by a colorectal consultant that I have a colonoscopy just to double check that everything is okay. I saw him a couple of months a go as I had been experiencing intense aching/pressure in my rectal area which would last for hours at a time which was unrelated to needing the toilet(my bowel movements were normal, no blood, dirrahoea, constipation etc.) He diagnosed me with a condition called proctalgia fugix with possible levator ani syndrome and prescribed me some medication to help me with the pain. I had also been experiencing bladder symptoms for a long time (around a year) where I had been getting frequency on and off and a deep, throbbing ache in the mid-lower right region of my pelvis whenever I drank anything (it would feel like I could feel my bladder filling up). I did mention this to him and he said if it carries on I might need a colonoscopy. Although, for me the pain doesn't feel related to my digestive system it feels like it's too low down and related to my bladder especially with the urinary symptoms I had been having?
I started taking the notriptyline and after a couple of weeks I started passing excessive wind and feeling like I needed to go to the toilet quite a lot (worst was about 5 times a day) but when I would go I would pass very little stool and still feel like I wasn't empty. I would also get mild abdominal pain alternating on my left and right side. My appetite was fine and I didn't feel feverish or anything. This would be a different type of pain and higher up than the pelvic pain. This happened on 8 separate occasions over a month. The intense aching (proctalgia fugix/levator ani pain) continued during this time.
I saw him again and mentioned that I had been having some new symptoms. He suggested I try some new medication for the aching which so far has been working really well. He ordered a stool sample test to check for inflammation which came back normal, and when he examined me at his surgery everything looked normal. However, even though the test has come back normal he still wants me to have the colonoscopy. I still have the pelvic pain/urinary symptoms and I have been referred to a urologist for this.
My bowel/rectal symptoms have been a lot better the past few weeks (I have had one day where the bad wind/trips to the toilet returned) and I really don't want to have this colonoscopy as it scares me so much. I have heard so many horror stories where people have experienced extreme pain and had long term side effects like diarrhoea, tummy pain that lasted for months afterwards which hadn't happened before the colonoscopy. I am always terrified about the bowl prep (I have been sent Moviprep). For me, it all just seems too much. I am under 30 and as much as I appreciate that the doctor wants to rule out anything sinister I am terrified and I don't want to put myself through this unnecessarily if it's going to cause me more problems down the line.
Does anyone have any advice on how to approach this or what their experiences of colonoscopy was like? I am close to cancelling it because I am so anxious. Everything about the procedure terrifies me.
Thank you for reading,
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