Terrified its lymphoma

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Hey all sorry this is going to be a long post..

i am a 21 yr old male.

back in august i had a severly sore throat and swollen glands running a high fever so i went to the doctors who told me it was glandular fever. After a week or so i went back cause i still wasnt feeling right and was than told it wasnt glandular fever and i had already been infected with the virus at an earlier stage in life. It has been about 3 months now and my glands are still enlarged not puffed up like they were that week but they are still there. I have had numerous blood tests done and everything comes back normal. Even checked for glandular again and again negative. I had an ultrasound on them recently and that come back saying they are reactive.. i am still suffering from a low grade fever everyday, but the doctor would just like to monitor them for a further 3 months and have another ultrasound done and more blood work.. im extremely worried it could be lymphoma and it has brang my anxiety back badly. Any ideas guys? Thanks

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  • Posted

    Hi kurt , I'm the same as you at the minute , 8 weeks ago I had the worst sore throat so I went to the doctor and they tested for strep (came back negative) them they tested for glandular fever also came back negative, after that I developed badly swollen lymph nodes and bad fatigue so I went back to the doctor and she said that I probably had tonsillitis and to get back to school , then ordered a ESR ( inflammaation test in blood). Came back and it was still raised so I ended up at the hospital because I couldn't get out of bed , my neck was swollen and I had a sore neck and head , the doctor there told me I was recovering from glandular fever and had a heart murmur, I went home and still felt terrible, a week later I woke up with a rubber like feeling lymph node , nausea and stimach pain , I went back to the doctors and got a new doctor who ordered blood tests to rule out conditions like Thyroid problems and diseases, my mum called the doctor today to find out my results and the receptionist told me that my inflammation marker (ESR) was still raised and that he had also put a note saying that there was something else he wanted to discuss in an appointment next week ( which was originally for my heart murmur and If I needed to see a specialist ) when the doctor let me see my results last time my White blood cell count and ESR was highlighted in red , I'm hoping that he hasn't found a cancer such as lymphoma because I have the symptoms and no glandular fever diagnosis, I'm guessing that your doctor isn't very good , I would ask to see a new one as this is what happened to me , let me know if you have any ideas what is wrong with me and if you need any help I'm here

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    • Posted

      Hey sophie i have been through numerous doctors who brush it off as a virus, ive had a doctor do chest xrays and another do an abdominal ct scan which is all normal, had 3 lots of blood tests done and everything there is fine.

      My lymph nodes are still enlarged after 3 months and have tested negative for everything they have tested for, i am doing a fob test and a sputum sample and also a breath test to see if its stomach bacteria causing the issues, other than that my new dr has done an ultrasound which come back as reactive lymph nodes so he wants to monitor them for a further 3 months. But i am going to ask for a biopsy as soon as i go back in for the other test results

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    • Posted

      Hi kurt , I'm soo glad I'm not the only one going through this at the minute, I hope you get your results soon and get a biopsy soon , I hate to say this but you may just have glandular fever as it can occur more than once if something triggered a relapse , I have a friend who has had it for 10 weeks now so it could still possibly be that , in my case twice my glandular fever test has came back negative but I have a high esr meaning that there is inflammation, I have had a high esr for 8 weeks now so it probably isn't viral , I'm going on Wednesday hopefully I am referred to someone who can test me for other things , do you have any ideas what I could have ?

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    • Posted

      I have had multiple blood tests done and everything is normal not showing any signs of anything, next step is checking for h pylori bacteria in a breath test, possibly an endoscopy and hopefully a biopsy as i cant see why my glands should still be enlarged and 'reactive' 3 months on..

      hope tou find the cause of your symptoms!

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    • Posted

      And i have been tested for glandular 2 times now and its negative no antibidies or anything all blood work in normal ranges
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  • Posted

    I am ever so sorry to hear that you are both so concerned but I would like to reassure you that I do not believe you have anything to be worried about. One of my sons had similar issues during his later teenage years that went on for a couple of years but it turned out to be nothing in the end.

    If you would like further advice to put your minds at rest then this is an excellent resource that contains further information and advice regarding Hodgkins lymphoma; I am sure will help https://bloodwise.org.uk/hodgkin-lymphoma/understanding-hodgkin-lymphoma

    Please try not to worry.

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