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So my tests results & more info is below. Some results only came back elevated by double and one doctor told me they need to be in the hundreds or three or four times normal to have cushings. Pretty much every test came back she was telling me I was wrong. For example the ACTH came back normal so she wanted to rule it out even though from my readings ACTH can come back normal. The saliva test came back double and she said it needs to be three to four times more and then urine test she said I must have peed more than normal. I'm so tired of doctors accusing us of not being correct. I pretty much came into her office and I told her I think I have Cushings and to run the tests, she would never found out I had this, she keeps thinking that is PCOS even though I was going to Gyno now for many many years and I've never had a cyst on my ovaries and my gynecologist does not think have PCOS and it has been ruled out. . Is this correct? As you see below I have pretty much every single symptom from Cushing has had this for years and years. I didn't have insurance prior and just figured I had to deal with all my problems but I just can't take it anymore. I got tired of being told it's multiple things and doctors just loves to treat the symptoms and not the actual issue. This doctor is clueless and I feel like I honestly know more than she does except the test of course. I see a true cushie specialist in the middle of April but I'm driving myself nuts until then.
24Hr Urine 127 (normal 20-50)
Midnight cortisol 0.19 (normal under 0.9)
Acth 46 (normal 20-65) although seems nirmal is common is pituitary tumors)
Dex 8mg test 34.6 (baseline morn before was 36.2)
Dhea 53 (lab said normal 18-360 but from what I read 20-29yrs is 65-360)
Symptoms for a many years, really getting bad the last six months especially my eyesight is declining rapidly.
Hair loss on head
Eye loss happening/pain
Acne (even on pill)
Fat rounded face
Buffalo hump since 2011 (gotten bigger)
Fat hump on lower back
Boils under arm pits/breast/ thighs
Wounds don't heal well
Pain all over
Back pain bad
Hair on chin/neck/sideburns
Stretch marks on stomach, arms, thighs, back
Look 7months pregnant ( actually how I found out I believe I have Cushings was by Google conditions that make you look pregnant)
No menses at all now
High blood pressure
Urinating a lot
Constant sweating (till I can ring my hair out)
Constant problems with colds or cervical cancer cells enable to clear
On top of this the doctor found my alt and AST blood test for liver elevated and dI'd the liver ultrasound which came back is 4.2 + 4.7 CM masses. I see hepatologist in a few days to figure out what those are.
Anyway do the test come back of somebody with Cushing's or do they need to be severely elevated? I suspected pituitary due to eye issues.
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