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Heather245
Heather245

I was diagnosed with PA about 18 months ago and get injections every three months. I find most of my symptoms are pains in my legs or left arm, asthma but my main concern are my digestive problems.

I have diarrhea aboutique three times a week and in the last two or three months I have had to take a great deal of heartburn tablets. I am very bloated and am finding it difficult to lose weight. My doctor found that I had an enlarged liver last year but nothing has been done since then.

I feel I am not being given the treatment I need. Us it usual to feel bloated and nauseous? Also, should the doctor be checking my blood levels? She has only done this once when I was first diagnosed.

Thanks.

0 likes, 3 replies

3 Replies

  • marion29181
    marion29181 Heather245

    Posted

    Hi heth74, sorry to hear things are bad for you. Has your Doctor ever checked your ferritin and folate along with the B12? These need to both be at good levels in order for the injected B12 to be used properly. You are entitled to ask for printed copies of any blood tests carried out. All our other vitamins seem to be at low levels too, so a good multivitamin every day is a good idea. I think you should have had follow up blood testing before now. The heartburn could indicate a high stomach acid problem, and the diarrhoea can also be a symptom of this. I am also concerned that you aren't having any referrals about the liver problem or digestive issues. Is there any possibility of asking to see another GP for a second opinion?

    lot's of us who struggle with only getting three monthly B12 injections use sublingual sprays or lozenges that we buy ourselves. I do feel bloated, but not often nauseous. I do hope you can get some more help with everything. Marion

    • Heather245
      Heather245 marion29181

      Posted

      Thanks for your help. I do think it's time for a second opinion as I am fed up with this.

      I will organise this as soon as I can.

  • bluemaran
    bluemaran Heather245

    Posted

    Hell, yes I think she should be doing much more. 

    Did anyone tell you that antacids (heartburn remedies) will be making your B12 absorption worse?  I don't know how old you are, but digestive problems associated with anaemia and B12 deficiency are more common as we get older, and definitely warrant further investigation. 

    Go back to your GP and ask why you havn't been referred for a gastroscopy or re-tested.  Ask for an up to date FULL set if blood tests, and demand a print out with explanatory notes. 

    You need to see a gastro specialist and maybe a haemotologist. 

    The biochemistry is complex, but if you can find the strength to read up on the subject, I recommend "Could it be B12" by Pacholok.  Then give the damn book to your GP. 

    I would be asking "Why do I have an enlarged liver?" for a start.

    One small caveat: you need to know that your B12 serum is really good, before self-medicating with folic acid, even if your folate reading is low.  There are serious risks.  Also, you need to get your iron levels up or B12 jabs, in raising your B12 level, can lower your ferritin reserves.

    The title GP means "general" practicioner and most GP's won't understand your condition adequately.  See a specialist.

     

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