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Tests say i'm fine but i'm not! Help!?

Posted , 2 users are following.

SleepyPuppy23
SleepyPuppy23

Right so let's start at the top! I'm a female, 16 and desperate for an answer! Firstly the things I have been diagnosed with: OCD (severe)

         Anxiety (severe)

         Depression (severe) (taking Fluoxetine 40mg pd)

         IBS (given Anti spazmic drugs)

       

So these are the things that I have been diagnosed with! I had a B12 deficiency at the level of 192 I think it was, so still inside the range but very low. I also had heart surgery a little over a year ago to close a hole in my heart (ASD), that we suspect was causing familial hemiplegic Aura migraine! (Still get them but less and not as harsh) I had a serious reaction to the anaesthetic and ended up in a state of acute delirium, I was give a sedative that took around 4 hours to work because of the issues the delirium was causing. Aside from that I have had spells of eczema and that's about it. 

Anyway I have been to the Doctors surgery countless times now for various symptoms (listed below) :

-Chest pains 

-Headaches during day and upon waking 

-Severe Fatigue

-feeling of not getting enough breath

-suicidal thoughts (am now out of school and under the mental health service because of it)

-abdominal pain (admitted to hospital with suspected appendicitis twice (nothing was wrong according to tests))

-Irregular and very short periods

-brain fog

-lack of concentration

These are the symptoms I have at the moment. Now I went to the surgery the other day and asked what they were gonna test next and the Dr said that I've had full bloods so they've tested kidney function, liver function, stomach problems and everything, I have also had an ultrasound on my ovaries and nothing is wrong! All my tests have come back almost 100% normal minus a minute amount of blood and protein in my urine sample that they said was not worrying (This is aside from previous issues). I have looked into ME/CFS but everyone blames it all on medication or lack of sleep (I do sleep for at least 8 hours most days) I'm not sexually active so i'm not pregnant! The Drs say I'm fine but I know I'm not! Please help!!! 

 

1 like, 6 replies

6 Replies

  • laura2707
    laura2707 SleepyPuppy23

    Posted

    Hi there, I have similar symptoms to you and I'm getting checked for fibromyalgia at the moment.

    CFS has many of the same symptoms, I feel like you're on the right track with that. 

    I have IBS (could be related to CFS and fibromyalgia)

    Bipolar type II (more depression)

    Migraines

    Heart palpitations & shortness of breath (they said it was anxiety)

    Polycystic ovary syndrome (Irregular, hormones are messed up basically, can cause pain in lower abdomen) 

    So we have quite a lot in common (even the tiny amount of blood in urine). I really think you're on the right track with CFS be persistent as they're hard to diagnose and look up fibromyalgia too as there's a symptom called "fibro fog" which you've described which I feel I get.  Sorry if this wasn't any help. Good luck I hope you find the answer smile 

    • SleepyPuppy23
      SleepyPuppy23 laura2707

      Posted

      Thanks, it feels so good to know i'm not alone! I am really struggling to get noticed because even my parents just think its my meds, I hope all goes well for you x
  • laura2707
    laura2707 SleepyPuppy23

    Posted

    Thank you smile What medication are you on if you don't mind me asking? Other than fluoxetine and the antispasmodic? Cause those wouldn't cause any of those symptoms x
    • SleepyPuppy23
      SleepyPuppy23 laura2707

      Posted

      None, I'm not on any but my doc says that cause i've always had funny reactions to all meds, the Fluoxetine could be causing this, but its been here since before I started them meds. I have looked into Fibromyalgia before but I don't have the constant joint pain really, its the other symptoms I suffer with! I forgot to mention that I also have very limited appetite at the moment, mainly down to cold foods like salads and cereal and pre-cooked chicked... I do have Aspergers syndrome but that shouldn't really affect this i'd have thought. XD I just realised I put spazmic instead of spazmodic that was silly :P Oh well, thats about all I can give you really cause there isn't much else rolleyes
    • laura2707
      laura2707 SleepyPuppy23

      Posted

      It must be so frustrating for you sad You have so much going on and no help it's awful. I can't think what would give you aversions to food other than maybe the fluoxetine although it's quite strange.

      Yeah Its hard to remember all the names of things I get that one wrong all the time aha, I have them too but they make me feel sick for some reason. 

      If the doctor says you have funny reactions to things he should be changing them. I hate doctors aha. Well let me know how you get on, hopefully someone can reply to you with more answers smile x

    • SleepyPuppy23
      SleepyPuppy23 laura2707

      Posted

      Thanks Laura the support is help in itself smile good luck with your diagnosis, hope you hit some good news soon smile
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